CESKA, R., Tomáš FREIBERGER, M. VACLOVA, T. ALEKSICOVA, L. VOTAVOVA and M. VRABLIK. ScreenPro FH: From the Czech MedPed to International Collaboration. ScreenPro FH Is a Participating Project of the EAS-FHCS. Physiological research. Praha: Fyziologický ústav AV ČR, 2017, vol. 66, Suppl. 1, p. "S85"-"S90", 6 pp. ISSN 0862-8408.
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Basic information
Original name ScreenPro FH: From the Czech MedPed to International Collaboration. ScreenPro FH Is a Participating Project of the EAS-FHCS
Authors CESKA, R. (203 Czech Republic), Tomáš FREIBERGER (203 Czech Republic, guarantor, belonging to the institution), M. VACLOVA (203 Czech Republic), T. ALEKSICOVA (203 Czech Republic), L. VOTAVOVA (203 Czech Republic) and M. VRABLIK (203 Czech Republic).
Edition Physiological research, Praha, Fyziologický ústav AV ČR, 2017, 0862-8408.
Other information
Original language English
Type of outcome Article in a journal
Field of Study 30105 Physiology
Country of publisher Czech Republic
Confidentiality degree is not subject to a state or trade secret
Impact factor Impact factor: 1.324
RIV identification code RIV/00216224:14110/17:00098437
Organization unit Faculty of Medicine
UT WoS 000398620900010
Keywords in English MedPed; ScreenPro FH; FHSC; Familial hypercholesterolemia; Statin intolerance
Tags EL OK
Tags International impact, Reviewed
Changed by Changed by: Soňa Böhmová, učo 232884. Changed: 20/3/2018 14:16.
Abstract
This article describes the evolution of our understanding of familial hypercholesterolemia (FH) in the Central, Eastern, and Southern Europe (CESE) region, and the dissemination of this understanding to other countries. Using the ScreenPro FH project as an example, we would like to illustrate the progression from national objectives, to regional networking and, finally, to international collaboration via the Familial Hypercholesterolemia Studies Collaboration (FHSC) project under the leadership of the European Atherosclerosis Society (EAS). It is essential to improve our ability to diagnose FH. In this regard, the EAS and its FHSC project must be commended for their educational and organizational activities which, above all, are dedicated to the creation of a global FH patient registry. In the CESE region, FH diagnostics and treatment situation are markedly different than in Western Europe or North America. Since the Czech MedPed project (Make Early Diagnoses to Prevent Early Deaths in Medical Pedigrees) has been so successful (with results not only comparable to, but, for some parameters, even surpassing the results of many Western countries) we decided to apply the Czech experience to the CESE region. Thus, the ScreenPro FH project was created. The aim of ScreenPro FH is to create a specialist network in the CESE region. The primary objective of the ScreenPro FH project was to dramatically reduce the number of premature deaths due to clinical complications of atherosclerosis in FH patients. At present, ScreenPro FH comprises 18 member countries with a total population of 500,000,000; which, in terms of the FH population, represents 1-2 million patients.
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