Achieving Thoracic Oncology data collection in Europe: a
precursor study in 35 Countries

J 2018

Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries

RICH, Anna, David BALDWIN, Inmaculada ALFAGEME, Paul BECKETT, Thierry BERGHMANS et. al.

Basic information

Original name

Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries

Authors

RICH, Anna (826 United Kingdom of Great Britain and Northern Ireland, guarantor), David BALDWIN (826 United Kingdom of Great Britain and Northern Ireland), Inmaculada ALFAGEME (724 Spain), Paul BECKETT (826 United Kingdom of Great Britain and Northern Ireland), Thierry BERGHMANS (56 Belgium), Stephen BRINCAT (470 Malta), Otto BURGHUBER (40 Austria), Alexandru CORLATEANU (498 Republic of Moldova), Tanja CUFER (705 Slovenia), Ronald DAMHUIS (528 Netherlands), Edvardas DANILA (440 Lithuania), Joanna DOMAGALA-KULAWIK (616 Poland), Stefano ELIA (380 Italy), Mina GAGA (826 United Kingdom of Great Britain and Northern Ireland), Tuncay GOKSEL (792 Turkey), Bogdan GRIGORIU (642 Romania), Gunnar HILLERDAL (752 Sweden), Rudolf Maria HUBER (276 Germany), Erik JAKOBSEN (208 Denmark), Steinn JONSSON (352 Iceland), Dragana JOVANOVIC (688 Serbia), Elena KAVCOVA (703 Slovakia), Assia KONSOULOVA (100 Bulgaria), Tanel LAISAAR (233 Estonia), Riitta MAKITARO (246 Finland), Bakir MEHIC (70 Bosnia and Herzegovina), Robert MILROY (826 United Kingdom of Great Britain and Northern Ireland), Judit MOLDVAY (348 Hungary), Ross MORGAN (372 Ireland), Milda NANUSHI (8 Albania), Marianne PAESMANS (56 Belgium), Paul Martin PUTORA (756 Switzerland), Miroslav SAMARZIJA (191 Croatia), Arnaud SCHERPEREEL (250 France), Marc SCHLESSER (442 Luxembourg), Jean Paul SCULIER (56 Belgium), Jana SKŘIČKOVÁ (203 Czech Republic, belonging to the institution), Renato SOTTO-MAYOR (620 Portugal), Trond Eirik STRAND (578 Norway), Paul VAN SCHIL (56 Belgium) and Torsten Gerriet BLUM (276 Germany)

Edition

BMC Cancer, London, BioMed Central, 2018, 1471-2407

Other information

Language

English

Type of outcome

Článek v odborném periodiku

Field of Study

30204 Oncology

Country of publisher

United Kingdom of Great Britain and Northern Ireland

Confidentiality degree

není předmětem státního či obchodního tajemství

Impact factor

Impact factor: 2.933

RIV identification code

RIV/00216224:14110/18:00105351

Organization unit

Faculty of Medicine

DOI

http://dx.doi.org/10.1186/s12885-018-5009-y

UT WoS

000450762900002

Keywords in English

Lung Cancer; Epidemiology; Audit; Data collection; Datasets

Abstract

V originále

BackgroundA minority of European countries have participated in international comparisons with high level data on lung cancer. However, the nature and extent of data collection across the continent is simply unknown, and without accurate data collection it is not possible to compare practice and set benchmarks to which lung cancer services can aspire.MethodsUsing an established network of lung cancer specialists in 37 European countries, a survey was distributed in December 2014. The results relate to current practice in each country at the time, early 2015. The results were compiled and then verified with co-authors over the following months.ResultsThirty-five completed surveys were received which describe a range of current practice for lung cancer data collection. Thirty countries have data collection at the national level, but this is not so in Albania, Bosnia-Herzegovina, Italy, Spain and Switzerland. Data collection varied from paper records with no survival analysis, to well-established electronic databases with links to census data and survival analyses.ConclusionUsing a network of committed clinicians, we have gathered validated comparative data reporting an observed difference in data collection mechanisms across Europe. We have identified the need to develop a well-designed dataset, whilst acknowledging what is feasible within each country, and aspiring to collect high quality data for clinical research.

Citovat

RICH, Anna, David BALDWIN, Inmaculada ALFAGEME, Paul BECKETT, Thierry BERGHMANS, Stephen BRINCAT, Otto BURGHUBER, Alexandru CORLATEANU, Tanja CUFER, Ronald DAMHUIS, Edvardas DANILA, Joanna DOMAGALA-KULAWIK, Stefano ELIA, Mina GAGA, Tuncay GOKSEL, Bogdan GRIGORIU, Gunnar HILLERDAL, Rudolf Maria HUBER, Erik JAKOBSEN, Steinn JONSSON, Dragana JOVANOVIC, Elena KAVCOVA, Assia KONSOULOVA, Tanel LAISAAR, Riitta MAKITARO, Bakir MEHIC, Robert MILROY, Judit MOLDVAY, Ross MORGAN, Milda NANUSHI, Marianne PAESMANS, Paul Martin PUTORA, Miroslav SAMARZIJA, Arnaud SCHERPEREEL, Marc SCHLESSER, Jean Paul SCULIER, Jana SKŘIČKOVÁ, Renato SOTTO-MAYOR, Trond Eirik STRAND, Paul VAN SCHIL and Torsten Gerriet BLUM. Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries. BMC Cancer. London: BioMed Central, 2018, vol. 18, No 1144, p. 1-12. ISSN 1471-2407. Available from: https://dx.doi.org/10.1186/s12885-018-5009-y.

@article{1484632,
   author = {Rich, Anna and Baldwin, David and Alfageme, Inmaculada and Beckett, Paul and Berghmans, Thierry and Brincat, Stephen and Burghuber, Otto and Corlateanu, Alexandru and Cufer, Tanja and Damhuis, Ronald and Danila, Edvardas and DomagalaandKulawik, Joanna and Elia, Stefano and Gaga, Mina and Goksel, Tuncay and Grigoriu, Bogdan and Hillerdal, Gunnar and Huber, Rudolf Maria and Jakobsen, Erik and Jonsson, Steinn and Jovanovic, Dragana and Kavcova, Elena and Konsoulova, Assia and Laisaar, Tanel and Makitaro, Riitta and Mehic, Bakir and Milroy, Robert and Moldvay, Judit and Morgan, Ross and Nanushi, Milda and Paesmans, Marianne and Putora, Paul Martin and Samarzija, Miroslav and Scherpereel, Arnaud and Schlesser, Marc and Sculier, Jean Paul and Skřičková, Jana and SottoandMayor, Renato and Strand, Trond Eirik and Van Schil, Paul and Blum, Torsten Gerriet},
   article_location = {London},
   article_number = {1144},
   doi = {http://dx.doi.org/10.1186/s12885-018-5009-y},
   keywords = {Lung Cancer; Epidemiology; Audit; Data collection; Datasets},
   language = {eng},
   issn = {1471-2407},
   journal = {BMC Cancer},
   title = {Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries},
   volume = {18},
   year = {2018}
}

TY  - JOUR
ID  - 1484632
AU  - Rich, Anna - Baldwin, David - Alfageme, Inmaculada - Beckett, Paul - Berghmans, Thierry - Brincat, Stephen - Burghuber, Otto - Corlateanu, Alexandru - Cufer, Tanja - Damhuis, Ronald - Danila, Edvardas - Domagala-Kulawik, Joanna - Elia, Stefano - Gaga, Mina - Goksel, Tuncay - Grigoriu, Bogdan - Hillerdal, Gunnar - Huber, Rudolf Maria - Jakobsen, Erik - Jonsson, Steinn - Jovanovic, Dragana - Kavcova, Elena - Konsoulova, Assia - Laisaar, Tanel - Makitaro, Riitta - Mehic, Bakir - Milroy, Robert - Moldvay, Judit - Morgan, Ross - Nanushi, Milda - Paesmans, Marianne - Putora, Paul Martin - Samarzija, Miroslav - Scherpereel, Arnaud - Schlesser, Marc - Sculier, Jean Paul - Skřičková, Jana - Sotto-Mayor, Renato - Strand, Trond Eirik - Van Schil, Paul - Blum, Torsten Gerriet
PY  - 2018
TI  - Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries
JF  - BMC Cancer
VL  - 18
IS  - 1144
SP  - 1-12
EP  - 1-12
PB  - BioMed Central
SN  - 14712407
KW  - Lung Cancer
KW  - Epidemiology
KW  - Audit
KW  - Data collection
KW  - Datasets
N2  - BackgroundA minority of European countries have participated in international comparisons with high level data on lung cancer. However, the nature and extent of data collection across the continent is simply unknown, and without accurate data collection it is not possible to compare practice and set benchmarks to which lung cancer services can aspire.MethodsUsing an established network of lung cancer specialists in 37 European countries, a survey was distributed in December 2014. The results relate to current practice in each country at the time, early 2015. The results were compiled and then verified with co-authors over the following months.ResultsThirty-five completed surveys were received which describe a range of current practice for lung cancer data collection. Thirty countries have data collection at the national level, but this is not so in Albania, Bosnia-Herzegovina, Italy, Spain and Switzerland. Data collection varied from paper records with no survival analysis, to well-established electronic databases with links to census data and survival analyses.ConclusionUsing a network of committed clinicians, we have gathered validated comparative data reporting an observed difference in data collection mechanisms across Europe. We have identified the need to develop a well-designed dataset, whilst acknowledging what is feasible within each country, and aspiring to collect high quality data for clinical research.
ER  -

RICH, Anna, David BALDWIN, Inmaculada ALFAGEME, Paul BECKETT, Thierry BERGHMANS, Stephen BRINCAT, Otto BURGHUBER, Alexandru CORLATEANU, Tanja CUFER, Ronald DAMHUIS, Edvardas DANILA, Joanna DOMAGALA-KULAWIK, Stefano ELIA, Mina GAGA, Tuncay GOKSEL, Bogdan GRIGORIU, Gunnar HILLERDAL, Rudolf Maria HUBER, Erik JAKOBSEN, Steinn JONSSON, Dragana JOVANOVIC, Elena KAVCOVA, Assia KONSOULOVA, Tanel LAISAAR, Riitta MAKITARO, Bakir MEHIC, Robert MILROY, Judit MOLDVAY, Ross MORGAN, Milda NANUSHI, Marianne PAESMANS, Paul Martin PUTORA, Miroslav SAMARZIJA, Arnaud SCHERPEREEL, Marc SCHLESSER, Jean Paul SCULIER, Jana SKŘIČKOVÁ, Renato SOTTO-MAYOR, Trond Eirik STRAND, Paul VAN SCHIL and Torsten Gerriet BLUM. Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries. \textit{BMC Cancer}. London: BioMed Central, 2018, vol.~18, No~1144, p.~1-12. ISSN~1471-2407. Available from: https://dx.doi.org/10.1186/s12885-018-5009-y.

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