Detailed Information on Publication Record
2019
The legal framework for European cervical cancer screening programmes
MÁJEK, Ondřej, Ahti ANTTILA, Marc ARBYN, Evert Ben VAN VEEN, Birgit ENGESAETER et. al.Basic information
Original name
The legal framework for European cervical cancer screening programmes
Authors
MÁJEK, Ondřej (203 Czech Republic, guarantor, belonging to the institution), Ahti ANTTILA (246 Finland), Marc ARBYN (56 Belgium), Evert Ben VAN VEEN (528 Netherlands), Birgit ENGESAETER (578 Norway) and Stefan LONNBERG (246 Finland)
Edition
European journal of public health, OXFORD, OXFORD UNIV PRESS, 2019, 1101-1262
Other information
Language
English
Type of outcome
Článek v odborném periodiku
Field of Study
10103 Statistics and probability
Country of publisher
United Kingdom of Great Britain and Northern Ireland
Confidentiality degree
není předmětem státního či obchodního tajemství
References:
Impact factor
Impact factor: 2.391
RIV identification code
RIV/00216224:14110/19:00109669
Organization unit
Faculty of Medicine
UT WoS
000463809200027
Keywords in English
European cervical cancer screening programmes
Tags
International impact, Reviewed
Změněno: 16/5/2019 14:33, Soňa Böhmová
Abstract
V originále
Background: A comprehensive legal framework needs to be developed to run the health services and to regulate the information systems required to manage and to ensure the quality of cancer screening programmes. The aim of our study was to document and to compare the status of legal basis for cervical screening registration in European countries. Methods: An electronic questionnaire including questions on governance, decision-making structures and legal framework was developed. The primary responses were collected by September 2016. Results: We sent the questionnaire to representatives of 35 European countries (28 countries of the EU, with the United Kingdom included as 4 countries; 4 EFTA member countries: Iceland, Liechtenstein, Norway, and Switzerland); responses were collected from 33 countries. The legal framework makes it possible to personally invite individuals in 29 countries (88%). Systematic screening registration in an electronic registry is legally enshrined in 23 countries (70%). Individual linkage of records between screening and cancer registries is allowed in 19 of those countries. Linkage studies involving cancer and screening registries have been conducted in 15 countries. Conclusion: Although the majority of EU/EFTA countries have implemented population-based screening, only half of them have successfully performed record linkage studies, which are nevertheless a key recommendation for quality assurance of the entire screening process. The European legislation is open to the possibility of using health data for these purposes; however, member states themselves must recognize the public interest to create a legal basis, which would enable all the necessary functions for high-quality cancer screening programmes.