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@article{1534756,
author = {Holub, Petr and Kohlmayer, Florian and Prasser, Fabian and Mayrhofer, Michaela Theresia and Schlunder, Irene and Martin, Gillian M. and Casati, Sara and Koumakis, Lefteris and Wutte, Andrea and Kozera, Lukas and Strapagiel, Dominik and Anton, Gabriele and Zanetti, Gianluigi and Sezerman, Osman Ugur and Mendy, Maimuna and Valík, Dalibor and Lavitrano, Marialuisa and Dagher, Georges and Zatloukal, Kurt and van Ommen, GertJan B. and Litton, JanandEric},
article_location = {NEW ROCHELLE},
article_number = {2},
doi = {http://dx.doi.org/10.1089/bio.2017.0110},
keywords = {FAIR (Findable, Accessible, Interoperable, and Reusable) principles; provenance information management; privacy protection; open science; quality; incentives},
language = {eng},
issn = {1947-5535},
journal = {Biopreservation and Biobanking},
title = {Enhancing Reuse of Data and Biological Material in Medical Research: From FAIR to FAIR-Health},
url = {https://www.liebertpub.com/doi/abs/10.1089/bio.2017.0110},
volume = {16},
year = {2018}
}
TY - JOUR
ID - 1534756
AU - Holub, Petr - Kohlmayer, Florian - Prasser, Fabian - Mayrhofer, Michaela Theresia - Schlunder, Irene - Martin, Gillian M. - Casati, Sara - Koumakis, Lefteris - Wutte, Andrea - Kozera, Lukas - Strapagiel, Dominik - Anton, Gabriele - Zanetti, Gianluigi - Sezerman, Osman Ugur - Mendy, Maimuna - Valík, Dalibor - Lavitrano, Marialuisa - Dagher, Georges - Zatloukal, Kurt - van Ommen, GertJan B. - Litton, Jan-Eric
PY - 2018
TI - Enhancing Reuse of Data and Biological Material in Medical Research: From FAIR to FAIR-Health
JF - Biopreservation and Biobanking
VL - 16
IS - 2
SP - 97-105
EP - 97-105
PB - MARY ANN LIEBERT, INC
SN - 19475535
KW - FAIR (Findable, Accessible, Interoperable, and Reusable) principles
KW - provenance information management
KW - privacy protection
KW - open science
KW - quality
KW - incentives
UR - https://www.liebertpub.com/doi/abs/10.1089/bio.2017.0110
N2 - The known challenge of underutilization of data and biological material from biorepositories as potential resources for medical research has been the focus of discussion for over a decade. Recently developed guidelines for improved data availability and reusability-entitled FAIR Principles (Findability, Accessibility, Interoperability, and Reusability)-are likely to address only parts of the problem. In this article, we argue that biological material and data should be viewed as a unified resource. This approach would facilitate access to complete provenance information, which is a prerequisite for reproducibility and meaningful integration of the data. A unified view also allows for optimization of long-term storage strategies, as demonstrated in the case of biobanks. We propose an extension of the FAIR Principles to include the following additional components: (1) quality aspects related to research reproducibility and meaningful reuse of the data, (2) incentives to stimulate effective enrichment of data sets and biological material collections and its reuse on all levels, and (3) privacy-respecting approaches for working with the human material and data. These FAIR-Health principles should then be applied to both the biological material and data. We also propose the development of common guidelines for cloud architectures, due to the unprecedented growth of volume and breadth of medical data generation, as well as the associated need to process the data efficiently.
ER -
HOLUB, Petr, Florian KOHLMAYER, Fabian PRASSER, Michaela Theresia MAYRHOFER, Irene SCHLUNDER, Gillian M. MARTIN, Sara CASATI, Lefteris KOUMAKIS, Andrea WUTTE, Lukas KOZERA, Dominik STRAPAGIEL, Gabriele ANTON, Gianluigi ZANETTI, Osman Ugur SEZERMAN, Maimuna MENDY, Dalibor VALÍK, Marialuisa LAVITRANO, Georges DAGHER, Kurt ZATLOUKAL, GertJan B. VAN OMMEN and Jan-Eric LITTON. Enhancing Reuse of Data and Biological Material in Medical Research: From FAIR to FAIR-Health. \textit{Biopreservation and Biobanking}. NEW ROCHELLE: MARY ANN LIEBERT, INC, 2018, vol.~16, No~2, p.~97-105. ISSN~1947-5535. Available from: https://dx.doi.org/10.1089/bio.2017.0110.
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