Involving children and young people in clinical research
through the forum of a European Young Persons' Advisory Group:
needs and challenges

J 2018

Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges

GAILLARD, S., S. MALIK, J. PRESTON, B. N. ESCALERA, P. DICKS et. al.

Basic information

Original name

Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges

Authors

GAILLARD, S., S. MALIK, J. PRESTON, B. N. ESCALERA, P. DICKS, N. TOUIL, S. MARDIROSSIAN, J. CLAVEROL-TORRES and B. KASSAI

Edition

FUNDAMENTAL & CLINICAL PHARMACOLOGY, HOBOKEN, WILEY, 2018, 0767-3981

Other information

Language

English

Type of outcome

Článek v odborném periodiku

Field of Study

30104 Pharmacology and pharmacy

Country of publisher

United States of America

Confidentiality degree

není předmětem státního či obchodního tajemství

References:

URL

Impact factor

Impact factor: 2.229

RIV identification code

RIV/00216224:14110/18:00121483

Organization unit

Faculty of Medicine

DOI

http://dx.doi.org/10.1111/fcp.12360

UT WoS

000438025300002

Keywords in English

adolescent; advisory groups; children; clinical research; patient and public involvement; pediatrics; young person

Abstract

V originále

Children and young people are seen as fundamental to the design and delivery of clinical research as active and reflective participants. In Europe, involvement of children and young people in clinical research is promoted extensively in order to engage young people in research as partners and to give them a voice to raise their own issues or opinions and for their involvement in planning and decision making in addition to learning research skills. Children and young people can be trained in clinical research through participation in young person advisory groups (YPAGs). Members of YPAGs assist other children and young people to learn about clinical research and share their experience and point of view with researchers, thereby possibly influencing all phases of research including the development and prioritization of research questions, design and methods, recruitment plans, and strategies for results dissemination. In the long term, the expansion of YPAGs in Europe will serve as a driving force for refining pediatric clinical research. It will help in a better definition of research projects according to the patients' needs. Furthermore, direct engagement of children and young people in research will be favorable to both researchers and young people.

Links

90090, large research infrastructures

Name: CZECRIN II

Citovat

GAILLARD, S., S. MALIK, J. PRESTON, B. N. ESCALERA, P. DICKS, N. TOUIL, S. MARDIROSSIAN, J. CLAVEROL-TORRES and B. KASSAI. Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges. FUNDAMENTAL & CLINICAL PHARMACOLOGY. HOBOKEN: WILEY, 2018, vol. 32, No 4, p. 357-362. ISSN 0767-3981. Available from: https://dx.doi.org/10.1111/fcp.12360.

@article{1763956,
   author = {Gaillard, S. and Malik, S. and Preston, J. and Escalera, B. N. and Dicks, P. and Touil, N. and Mardirossian, S. and ClaverolandTorres, J. and Kassai, B.},
   article_location = {HOBOKEN},
   article_number = {4},
   doi = {http://dx.doi.org/10.1111/fcp.12360},
   keywords = {adolescent; advisory groups; children; clinical research; patient and public involvement; pediatrics; young person},
   language = {eng},
   issn = {0767-3981},
   journal = {FUNDAMENTAL & CLINICAL PHARMACOLOGY},
   title = {Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges},
   url = {https://onlinelibrary.wiley.com/doi/full/10.1111/fcp.12360},
   volume = {32},
   year = {2018}
}

TY  - JOUR
ID  - 1763956
AU  - Gaillard, S. - Malik, S. - Preston, J. - Escalera, B. N. - Dicks, P. - Touil, N. - Mardirossian, S. - Claverol-Torres, J. - Kassai, B.
PY  - 2018
TI  - Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges
JF  - FUNDAMENTAL & CLINICAL PHARMACOLOGY
VL  - 32
IS  - 4
SP  - 357-362
EP  - 357-362
PB  - WILEY
SN  - 07673981
KW  - adolescent
KW  - advisory groups
KW  - children
KW  - clinical research
KW  - patient and public involvement
KW  - pediatrics
KW  - young person
UR  - https://onlinelibrary.wiley.com/doi/full/10.1111/fcp.12360
N2  - Children and young people are seen as fundamental to the design and delivery of clinical research as active and reflective participants. In Europe, involvement of children and young people in clinical research is promoted extensively in order to engage young people in research as partners and to give them a voice to raise their own issues or opinions and for their involvement in planning and decision making in addition to learning research skills. Children and young people can be trained in clinical research through participation in young person advisory groups (YPAGs). Members of YPAGs assist other children and young people to learn about clinical research and share their experience and point of view with researchers, thereby possibly influencing all phases of research including the development and prioritization of research questions, design and methods, recruitment plans, and strategies for results dissemination. In the long term, the expansion of YPAGs in Europe will serve as a driving force for refining pediatric clinical research. It will help in a better definition of research projects according to the patients' needs. Furthermore, direct engagement of children and young people in research will be favorable to both researchers and young people.
ER  -

GAILLARD, S., S. MALIK, J. PRESTON, B. N. ESCALERA, P. DICKS, N. TOUIL, S. MARDIROSSIAN, J. CLAVEROL-TORRES and B. KASSAI. Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges. \textit{FUNDAMENTAL \&{}amp; CLINICAL PHARMACOLOGY}. HOBOKEN: WILEY, 2018, vol.~32, No~4, p.~357-362. ISSN~0767-3981. Available from: https://dx.doi.org/10.1111/fcp.12360.

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