It matters how it ends: The quality of end-of-life care and
communication from the perspective of bereaved family members

k 2021

It matters how it ends: The quality of end-of-life care and communication from the perspective of bereaved family members

SLEZÁČKOVÁ, Alena, Kristýna DVOŘÁČKOVÁ, Libuše ČERMÁKOVÁ, Kateřina RUSINOVÁ, Ondřej KOPECKÝ et. al.

Basic information

Original name

It matters how it ends: The quality of end-of-life care and communication from the perspective of bereaved family members

Authors

SLEZÁČKOVÁ, Alena (203 Czech Republic, guarantor, belonging to the institution), Kristýna DVOŘÁČKOVÁ (203 Czech Republic, belonging to the institution), Libuše ČERMÁKOVÁ (203 Czech Republic, belonging to the institution), Kateřina RUSINOVÁ (203 Czech Republic) and Ondřej KOPECKÝ (203 Czech Republic)

Edition

32. International Congress of Psychology, Prague, 2021

Other information

Language

English

Type of outcome

Prezentace na konferencích

Field of Study

50101 Psychology

Country of publisher

Czech Republic

Confidentiality degree

není předmětem státního či obchodního tajemství

References:

Congress website

RIV identification code

RIV/00216224:14110/21:00119833

Organization unit

Faculty of Medicine

Keywords (in Czech)

end-of-life care;communication; bereaved family members

Keywords in English

péče v závěru života; komunikace; pozůstalí

Abstract

V originále

High-quality care for hospitalised patients at the end of life requires health care teams to involve patients and their families in communication and decision-making about optimal care. As the issue of end-of-life (EoL) communication in the hospitals has been under-investigated in the Czech Republic, the main purpose of this study is to provide insight into the quality of care and communication at the end of life of the patient from the perspective of bereaved family members. Open-ended questions were used within a survey asking family members about their satisfaction with EoL care for their relatives and quality of communication in a large hospital in Prague. Responses from 300 relatives of decedents (64% female, mean age 53.9 years) were analyzed using a content analysis. The analysis resulted in the identification of three main categories related to the experience of EoL care: quality of communication, quality of health care, and system issues. Among most frequently reported shortcomings and difficulties were mentioned inadequate, insufficient communication of doctors and nurses, inappropriate health care, and unsatisfactory environment such as lack of privacy. The most frequently mentioned positive aspects were helpful, kind, and clear communication from physicians and nurses, satisfaction with provided health care, and good and supportive environment (including a possibility to say goodbye). We were also interested in what was considered the most important by relatives. The most important aspects of EoL care were friendly, helpful and commmunicative staff, possibility to be with the dying relative until the end, and considerate and respectful environment enabling dignified dying. The results pointed at the challenges that family members encounter when faced with EoL care in hospital. The participants identified the importance of quality communication that can better meet the needs of patient and family members and improve the process of the EoL care. High-quality care for hospitalised patients at the end of life requires health care teams to involve patients and their families in communication and decision-making about optimal care. As the issue of end-of-life (EoL) communication in the hospitals has been under-investigated in the Czech Republic, the main purpose of this study is to provide insight into the quality of care and communication at the end of life of the patient from the perspective of bereaved family members. Open-ended questions were used within a survey asking family members about their satisfaction with EoL care for their relatives and quality of communication in a large hospital in Prague. Responses from 300 relatives of decedents (64% female, mean age 53.9 years) were analyzed using a content analysis. The analysis resulted in the identification of three main categories related to the experience of EoL care: quality of communication, quality of health care, and system issues. Among most frequently reported shortcomings and difficulties were mentioned inadequate, insufficient communication of doctors and nurses, inappropriate health care, and unsatisfactory environment such as lack of privacy. The most frequently mentioned positive aspects were helpful, kind, and clear communication from physicians and nurses, satisfaction with provided health care, and good and supportive environment (including a possibility to say goodbye). We were also interested in what was considered the most important by relatives. The most important aspects of EoL care were friendly, helpful and commmunicative staff, possibility to be with the dying relative until the end, and considerate and respectful environment enabling dignified dying. The results pointed at the challenges that family members encounter when faced with EoL care in hospital. The participants identified the importance of quality communication that can better meet the needs of patient and family members and improve the process of the EoL care.

Links

TL02000360, research and development project

Name: Rozhodování o zdravotní péči v závěru života (Acronym: DECAREL)

Investor: Technology Agency of the Czech Republic

Citovat

SLEZÁČKOVÁ, Alena, Kristýna DVOŘÁČKOVÁ, Libuše ČERMÁKOVÁ, Kateřina RUSINOVÁ and Ondřej KOPECKÝ. It matters how it ends: The quality of end-of-life care and communication from the perspective of bereaved family members. In 32. International Congress of Psychology, Prague. 2021.

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   author = {Slezáčková, Alena and Dvořáčková, Kristýna and Čermáková, Libuše and Rusinová, Kateřina and Kopecký, Ondřej},
   booktitle = {32. International Congress of Psychology, Prague},
   keywords = {péče v závěru života; komunikace; pozůstalí},
   language = {eng},
   title = {It matters how it ends: The quality of end-of-life care and communication from the perspective of bereaved family members},
   url = {https://www.icp2020.com},
   year = {2021}
}

TY  - CONF
ID  - 1783534
AU  - Slezáčková, Alena - Dvořáčková, Kristýna - Čermáková, Libuše - Rusinová, Kateřina - Kopecký, Ondřej
PY  - 2021
TI  - It matters how it ends: The quality of end-of-life care and communication from the perspective of bereaved family members
KW  - péče v závěru života
KW  - komunikace
KW  - pozůstalí
UR  - https://www.icp2020.com
N2  - High-quality care for hospitalised patients at the end of life requires health care teams to involve patients and their families in communication and decision-making about optimal care. As the issue of end-of-life (EoL) communication in the hospitals has been under-investigated in the Czech Republic, the main purpose of this study is to provide insight into the quality of care and communication at the end of life of the patient from the perspective of bereaved family members. Open-ended questions were used within a survey asking family members about their satisfaction with EoL care for their relatives and quality of communication in a large hospital in Prague. Responses from 300 relatives of decedents (64% female, mean age 53.9 years) were analyzed using a content analysis. The analysis resulted in the identification of three main categories related to the experience of EoL care: quality of communication, quality of health care, and system issues. Among most frequently reported shortcomings and difficulties were mentioned inadequate, insufficient communication of doctors and nurses, inappropriate health care, and unsatisfactory environment such as lack of privacy. The most frequently mentioned positive aspects were helpful, kind, and clear communication from physicians and nurses, satisfaction with provided health care, and good and supportive environment (including a possibility to say goodbye). We were also interested in what was considered the most important by relatives. The most important aspects of EoL care were friendly, helpful and commmunicative staff, possibility to be with the dying relative until the end, and considerate and respectful environment enabling dignified dying. The results pointed at the challenges that family members encounter when faced with EoL care in hospital. The participants identified the importance of quality communication that can better meet the needs of patient and family members and improve the process of the EoL care. High-quality care for hospitalised patients at the end of life requires health care teams to involve patients and their families in communication and decision-making about optimal care. As the issue of end-of-life (EoL) communication in the hospitals has been under-investigated in the Czech Republic, the main purpose of this study is to provide insight into the quality of care and communication at the end of life of the patient from the perspective of bereaved family members. Open-ended questions were used within a survey asking family members about their satisfaction with EoL care for their relatives and quality of communication in a large hospital in Prague. Responses from 300 relatives of decedents (64% female, mean age 53.9 years) were analyzed using a content analysis. The analysis resulted in the identification of three main categories related to the experience of EoL care: quality of communication, quality of health care, and system issues. Among most frequently reported shortcomings and difficulties were mentioned inadequate, insufficient communication of doctors and nurses, inappropriate health care, and unsatisfactory environment such as lack of privacy. The most frequently mentioned positive aspects were helpful, kind, and clear communication from physicians and nurses, satisfaction with provided health care, and good and supportive environment (including a possibility to say goodbye). We were also interested in what was considered the most important by relatives. The most important aspects of EoL care were friendly, helpful and commmunicative staff, possibility to be with the dying relative until the end, and considerate and respectful environment enabling dignified dying. The results pointed at the challenges that family members encounter when faced with EoL care in hospital. The participants identified the importance of quality communication that can better meet the needs of patient and family members and improve the process of the EoL care.
ER  -

SLEZÁČKOVÁ, Alena, Kristýna DVOŘÁČKOVÁ, Libuše ČERMÁKOVÁ, Kateřina RUSINOVÁ and Ondřej KOPECKÝ. It matters how it ends: The quality of end-of-life care and communication from the perspective of bereaved family members. In \textit{32. International Congress of Psychology, Prague}. 2021.

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