European Joint Programme Rare Diseases NSS/ECRIN

DEMLOVÁ, Regina. European Joint Programme Rare Diseases NSS/ECRIN. 2021.

Basic information

Original name

European Joint Programme Rare Diseases NSS/ECRIN

Authors

DEMLOVÁ, Regina (203 Czech Republic, guarantor, belonging to the institution)

Edition

2021

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Other information

Language

English

Type of outcome

Uspořádání konference

Field of Study

30230 Other clinical medicine subjects

Country of publisher

Czech Republic

Confidentiality degree

není předmětem státního či obchodního tajemství

References:

URL

RIV identification code

RIV/00216224:14110/21:00123781

Organization unit

Faculty of Medicine

Keywords (in Czech)

Rare diseases; FAIR principles; research methodologies

Keywords in English

Rare diseases; FAIR principles; research methodologies

Tags

conference, ECRIN, MU, RIV, rivok

Tags

International impact

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Abstract

V originále

Rare diseases are a major challenge that requires integrated and collaborative efforts from a wide range of stakeholders. To take rare disease collaborative research in Europe to the next level and support achievement of the IRDiRC 2027 goals, the European Commission has approved the European Joint Programme on Rare Diseases (EJP-RD), an EU-wide and patient-centred initiative to foster rare disease research from bench to bedside and back. The programme, due to launch in January 2019, will receive 55 million EUR over 5 years to establish a comprehensive strategy covering funding, research, data, training, tools and clinical aspects to increase the efficiency of results use, diagnosis, drug discovery, patient care and to empowering all stakeholders.

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Links

90128, large research infrastructures

Name: CZECRIN III