The European multistakeholder PanCareFollowUp project: novel,
person-centred survivorship care to improve care quality,
effectiveness, cost-effectiveness and accessibility for cancer
survivors and caregivers

J 2021

The European multistakeholder PanCareFollowUp project: novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers

VAN KALSBEEK, R. J., H. J. H. VAN DER PAL, L. HJORTH, J. F. WINTHER, G. MICHEL et. al.

Basic information

Original name

The European multistakeholder PanCareFollowUp project: novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers

Authors

VAN KALSBEEK, R. J., H. J. H. VAN DER PAL, L. HJORTH, J. F. WINTHER, G. MICHEL, R. HAUPT, A . UYTTEBROECK, K. O'BRIEN, Kateřina KEPÁKOVÁ (203 Czech Republic, belonging to the institution), C. FOLLIN, M. MURACA, Tomáš KEPÁK (203 Czech Republic, belonging to the institution), V. ARAUJO-SOARES, E. BARDI, A. BLONDEEL, E. BOUWMAN, M. C. BROWN, L. E. FREDERIKSEN, S. ESSIAF, R. P. M. G. HERMENS, A. KIENESBERGER, J. C. KOREVAAR, L. MADER, M. MANGELSCHOTS, R. L. MULDER, S. VAN DEN OEVER, M. RIJKEN, K. ROSER, R. SKINNER, S. M. F. PLUIJM, J. J. LOONEN and L. C. M. KREMER

Edition

European Journal of Cancer, Oxford, Elsevier Science Inc. 2021, 0959-8049

Other information

Language

English

Type of outcome

Článek v odborném periodiku

Field of Study

30204 Oncology

Country of publisher

United Kingdom of Great Britain and Northern Ireland

Confidentiality degree

není předmětem státního či obchodního tajemství

References:

URL

Impact factor

Impact factor: 10.002

RIV identification code

RIV/00216224:14110/21:00124146

Organization unit

Faculty of Medicine

DOI

http://dx.doi.org/10.1016/j.ejca.2021.05.030

UT WoS

000686051300010

Keywords in English

Neoplasms; Cancer survivors; Survivorship; Aftercare; Patient-centred care; Decision-making; Shared; Practice guideline; Empowerment; Quality of life

Abstract

V originále

Background: The majority of childhood cancer survivors are at risk of treatment related adverse health outcomes. Survivorship care to mitigate these late effects is endorsed, but it is not available for many adult survivors of childhood cancer in Europe. The PanCareFollowUp project was initiated to improve their health and quality of life (QoL) by facilitating person-centred survivorship care. Methods: The PanCareFollowUp consortium was established in 2018, consisting of 14 project partners from ten European countries, including survivor representatives. The consortium will develop two PanCareFollowUp Interventions, including a person-centred guideline-based model of care (Care Intervention) and eHealth lifestyle coaching (Lifestyle Intervention). Their development will be informed by several qualitative studies and systematic reviews on barriers and facilitators for implementation and needs and preferences of healthcare providers (HCPs) and survivors. Implementation of the PanCareFollowUp Care Intervention as usual care will be evaluated prospectively among 800 survivors from Belgium, Czech Republic, Italy and Sweden for survivor empowerment, detection of adverse health conditions, satisfaction among survivors and HCPs, cost-effectiveness and feasibility. The feasibility of the PanCareFollowUp Lifestyle Intervention will be evaluated in the Netherlands among 60 survivors. Results: Replication manuals, allowing for replication of the PanCareFollowUp Care and Lifestyle Intervention, will be published and made freely available after the project. Moreover, results of the corresponding studies are expected within the next five years. Conclusions: The PanCareFollowUp project is a novel European collaboration aiming to improve the health and QoL of all survivors across Europe by developing and prospectively evaluating the person-centred PanCareFollowUp Care and Lifestyle Interventions. 2021 Elsevier Ltd. All rights reserved.

Citovat

VAN KALSBEEK, R. J., H. J. H. VAN DER PAL, L. HJORTH, J. F. WINTHER, G. MICHEL, R. HAUPT, A . UYTTEBROECK, K. O'BRIEN, Kateřina KEPÁKOVÁ, C. FOLLIN, M. MURACA, Tomáš KEPÁK, V. ARAUJO-SOARES, E. BARDI, A. BLONDEEL, E. BOUWMAN, M. C. BROWN, L. E. FREDERIKSEN, S. ESSIAF, R. P. M. G. HERMENS, A. KIENESBERGER, J. C. KOREVAAR, L. MADER, M. MANGELSCHOTS, R. L. MULDER, S. VAN DEN OEVER, M. RIJKEN, K. ROSER, R. SKINNER, S. M. F. PLUIJM, J. J. LOONEN and L. C. M. KREMER. The European multistakeholder PanCareFollowUp project: novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers. European Journal of Cancer. Oxford: Elsevier Science Inc., 2021, vol. 153, August 2021, p. 74-85. ISSN 0959-8049. Available from: https://dx.doi.org/10.1016/j.ejca.2021.05.030.

@article{1834237,
   author = {van Kalsbeek, R. J. and van der Pal, H. J. H. and Hjorth, L. and Winther, J. F. and Michel, G. and Haupt, R. and Uyttebroeck, A . and O'Brien, K. and Kepáková, Kateřina and Follin, C. and Muraca, M. and Kepák, Tomáš and AraujoandSoares, V. and Bardi, E. and Blondeel, A. and Bouwman, E. and Brown, M. C. and Frederiksen, L. E. and Essiaf, S. and Hermens, R. P. M. G. and Kienesberger, A. and Korevaar, J. C. and Mader, L. and Mangelschots, M. and Mulder, R. L. and van den Oever, S. and Rijken, M. and Roser, K. and Skinner, R. and Pluijm, S. M. F. and Loonen, J. J. and Kremer, L. C. M.},
   article_location = {Oxford},
   article_number = {August 2021},
   doi = {http://dx.doi.org/10.1016/j.ejca.2021.05.030},
   keywords = {Neoplasms; Cancer survivors; Survivorship; Aftercare; Patient-centred care; Decision-making; Shared; Practice guideline; Empowerment; Quality of life},
   language = {eng},
   issn = {0959-8049},
   journal = {European Journal of Cancer},
   title = {The European multistakeholder PanCareFollowUp project: novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers},
   url = {https://www.sciencedirect.com/science/article/pii/S0959804921003403?via%3Dihub},
   volume = {153},
   year = {2021}
}

TY  - JOUR
ID  - 1834237
AU  - van Kalsbeek, R. J. - van der Pal, H. J. H. - Hjorth, L. - Winther, J. F. - Michel, G. - Haupt, R. - Uyttebroeck, A . - O'Brien, K. - Kepáková, Kateřina - Follin, C. - Muraca, M. - Kepák, Tomáš - Araujo-Soares, V. - Bardi, E. - Blondeel, A. - Bouwman, E. - Brown, M. C. - Frederiksen, L. E. - Essiaf, S. - Hermens, R. P. M. G. - Kienesberger, A. - Korevaar, J. C. - Mader, L. - Mangelschots, M. - Mulder, R. L. - van den Oever, S. - Rijken, M. - Roser, K. - Skinner, R. - Pluijm, S. M. F. - Loonen, J. J. - Kremer, L. C. M.
PY  - 2021
TI  - The European multistakeholder PanCareFollowUp project: novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers
JF  - European Journal of Cancer
VL  - 153
IS  - August 2021
SP  - 74-85
EP  - 74-85
PB  - Elsevier Science Inc.
SN  - 09598049
KW  - Neoplasms
KW  - Cancer survivors
KW  - Survivorship
KW  - Aftercare
KW  - Patient-centred care
KW  - Decision-making
KW  - Shared
KW  - Practice guideline
KW  - Empowerment
KW  - Quality of life
UR  - https://www.sciencedirect.com/science/article/pii/S0959804921003403?via%3Dihub
N2  - Background: The majority of childhood cancer survivors are at risk of treatment related adverse health outcomes. Survivorship care to mitigate these late effects is endorsed, but it is not available for many adult survivors of childhood cancer in Europe. The PanCareFollowUp project was initiated to improve their health and quality of life (QoL) by facilitating person-centred survivorship care. Methods: The PanCareFollowUp consortium was established in 2018, consisting of 14 project partners from ten European countries, including survivor representatives. The consortium will develop two PanCareFollowUp Interventions, including a person-centred guideline-based model of care (Care Intervention) and eHealth lifestyle coaching (Lifestyle Intervention). Their development will be informed by several qualitative studies and systematic reviews on barriers and facilitators for implementation and needs and preferences of healthcare providers (HCPs) and survivors. Implementation of the PanCareFollowUp Care Intervention as usual care will be evaluated prospectively among 800 survivors from Belgium, Czech Republic, Italy and Sweden for survivor empowerment, detection of adverse health conditions, satisfaction among survivors and HCPs, cost-effectiveness and feasibility. The feasibility of the PanCareFollowUp Lifestyle Intervention will be evaluated in the Netherlands among 60 survivors. Results: Replication manuals, allowing for replication of the PanCareFollowUp Care and Lifestyle Intervention, will be published and made freely available after the project. Moreover, results of the corresponding studies are expected within the next five years. Conclusions: The PanCareFollowUp project is a novel European collaboration aiming to improve the health and QoL of all survivors across Europe by developing and prospectively evaluating the person-centred PanCareFollowUp Care and Lifestyle Interventions. 2021 Elsevier Ltd. All rights reserved.
ER  -

VAN KALSBEEK, R. J., H. J. H. VAN DER PAL, L. HJORTH, J. F. WINTHER, G. MICHEL, R. HAUPT, A . UYTTEBROECK, K. O'BRIEN, Kateřina KEPÁKOVÁ, C. FOLLIN, M. MURACA, Tomáš KEPÁK, V. ARAUJO-SOARES, E. BARDI, A. BLONDEEL, E. BOUWMAN, M. C. BROWN, L. E. FREDERIKSEN, S. ESSIAF, R. P. M. G. HERMENS, A. KIENESBERGER, J. C. KOREVAAR, L. MADER, M. MANGELSCHOTS, R. L. MULDER, S. VAN DEN OEVER, M. RIJKEN, K. ROSER, R. SKINNER, S. M. F. PLUIJM, J. J. LOONEN and L. C. M. KREMER. The European multistakeholder PanCareFollowUp project: novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers. \textit{European Journal of Cancer}. Oxford: Elsevier Science Inc., 2021, vol.~153, August 2021, p.~74-85. ISSN~0959-8049. Available from: https://dx.doi.org/10.1016/j.ejca.2021.05.030.

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