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@article{1834259,
author = {van Kalsbeek, R. J . and van der Pal, H. J. H. and Kremer, L. C. M. and Bardi, E. and Brown, M. C. and Effeney, R. and Winther, J. F. and Follin, C. and den Hartogh, J. and Haupt, R. and Hjorth, L. and Kepák, Tomáš and Kepáková, Kateřina and Levitt, G. and Loonen, J. J. and Mangelschots, M. and Muraca, M. and Renard, M. and Sabic, H. and Schneider, C. U. and Uyttebroeck, A. and Skinner, R. and Mulder, R. L.},
article_location = {Oxford},
article_number = {September 2021},
doi = {http://dx.doi.org/10.1016/j.ejca.2021.06.004},
keywords = {Neoplasms; Cancer survivors; Survivorship; Aftercare; Practice guideline; Patient participation; Quality of life},
language = {eng},
issn = {0959-8049},
journal = {European Journal of Cancer},
title = {European PanCareFollowUp Recommendations for surveillance of late effects of childhood, adolescent, and young adult cancer},
url = {https://www.sciencedirect.com/science/article/pii/S0959804921003683?via%3Dihub},
volume = {154},
year = {2021}
}
TY - JOUR
ID - 1834259
AU - van Kalsbeek, R. J . - van der Pal, H. J. H. - Kremer, L. C. M. - Bardi, E. - Brown, M. C. - Effeney, R. - Winther, J. F. - Follin, C. - den Hartogh, J. - Haupt, R. - Hjorth, L. - Kepák, Tomáš - Kepáková, Kateřina - Levitt, G. - Loonen, J. J. - Mangelschots, M. - Muraca, M. - Renard, M. - Sabic, H. - Schneider, C. U. - Uyttebroeck, A. - Skinner, R. - Mulder, R. L.
PY - 2021
TI - European PanCareFollowUp Recommendations for surveillance of late effects of childhood, adolescent, and young adult cancer
JF - European Journal of Cancer
VL - 154
IS - September 2021
SP - 316-328
EP - 316-328
PB - Elsevier Science Inc.
SN - 09598049
KW - Neoplasms
KW - Cancer survivors
KW - Survivorship
KW - Aftercare
KW - Practice guideline
KW - Patient participation
KW - Quality of life
UR - https://www.sciencedirect.com/science/article/pii/S0959804921003683?via%3Dihub
N2 - Background: Long-term follow-up (LTFU) care for childhood, adolescent, and young adult (CAYA) cancer survivors is essential to preserve health and quality of life (QoL). Evidence-based guidelines are needed to inform optimal surveillance strategies, but many topics are yet to be addressed by the International Late Effects of Childhood Cancer Guideline Harmonization Group (IGHG). Therefore, the PanCareFollowUp Recommendations Working Group collaborated with stakeholders to develop European harmonised recommendations in anticipation of evidence-based IGHG guidelines. Methods: The PanCareFollowUp Recommendations Working Group, consisting of 23 late effects specialists, researchers, and survivor representatives from nine countries, collaborated in the first Europe-wide effort to provide unified recommendations in anticipation of evidence based guidelines. A pragmatic methodology was used to define recommendations for topics where no evidence-based IGHG recommendations exist. The objective was to describe the surveillance requirements for high-quality care while balancing the different infrastructures and resources across European health care systems. The process included two face-to-face meetings and an external consultation round involving 18 experts from 14 countries. Results: Twenty-five harmonised recommendations for LTFU care were developed collaboratively and address topics requiring awareness only (n = 6), awareness, history and/or physical examination (n = 9), or additional surveillance tests (n = 10). Conclusions: The PanCareFollowUp Recommendations, representing a unique agreement across European stakeholders, emphasise awareness among survivors and health care providers in addition to tailored clinical evaluation and/or surveillance tests. They include existing IGHG guidelines and additional recommendations developed by a pragmatic methodology and will be used in the Horizon 2020-funded PanCareFollowUp project to improve health and QoL of CAYA cancer survivors. (C) 2021 The Authors. Published by Elsevier Ltd. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
ER -
VAN KALSBEEK, R. J ., H. J. H. VAN DER PAL, L. C. M. KREMER, E. BARDI, M. C. BROWN, R. EFFENEY, J. F. WINTHER, C. FOLLIN, J. DEN HARTOGH, R. HAUPT, L. HJORTH, Tomáš KEPÁK, Kateřina KEPÁKOVÁ, G. LEVITT, J. J. LOONEN, M. MANGELSCHOTS, M. MURACA, M. RENARD, H. SABIC, C. U. SCHNEIDER, A. UYTTEBROECK, R. SKINNER and R. L. MULDER. European PanCareFollowUp Recommendations for surveillance of late effects of childhood, adolescent, and young adult cancer. \textit{European Journal of Cancer}. Oxford: Elsevier Science Inc., 2021, vol.~154, September 2021, p.~316-328. ISSN~0959-8049. Available from: https://dx.doi.org/10.1016/j.ejca.2021.06.004.
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