BLAY, J.Y., P. CASALI, C. BOUVIER, C. DEHAIS, I. GALLOWAY, J. GIETEMA, Jana HALÁMKOVÁ, N. HINDI, A. IDBAIH, E. KINLOCH, H.J. KLUMPEN, T. KOLAROVA, K. KOPECKOVA, J. LOVEY, M. MAGALHAES, K. OSELIN, S. PIPERNO-NEUMANN, A. RAVNSBAEK, M. ROGASIK, A. SAFWAT, S. SCHEIPL, M. SECKL, J. TAYLOR, M. TEMNYK, A. TRAMA, M. URBONAS, M. WARTENBERG and A. WEINMAN. European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN. ESMO OPEN. LONDON: BMJ PUBLISHING GROUP, 2021, vol. 6, No 4, p. 1-10. ISSN 2059-7029. Available from: https://dx.doi.org/10.1016/j.esmoop.2021.100174. |
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@article{1840919, author = {Blay, J.Y. and Casali, P. and Bouvier, C. and Dehais, C. and Galloway, I. and Gietema, J. and Halámková, Jana and Hindi, N. and Idbaih, A. and Kinloch, E. and Klumpen, H.J. and Kolarova, T. and Kopeckova, K. and Lovey, J. and Magalhaes, M. and Oselin, K. and PipernoandNeumann, S. and Ravnsbaek, A. and Rogasik, M. and Safwat, A. and Scheipl, S. and Seckl, M. and Taylor, J. and Temnyk, M. and Trama, A. and Urbonas, M. and Wartenberg, M. and Weinman, A.}, article_location = {LONDON}, article_number = {4}, doi = {http://dx.doi.org/10.1016/j.esmoop.2021.100174}, keywords = {ERN; European Reference Network; EU; European Union; EURACAN; ESMO; solid cancers;}, language = {eng}, issn = {2059-7029}, journal = {ESMO OPEN}, title = {European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN}, url = {https://www.sciencedirect.com/science/article/pii/S2059702921001344?via%3Dihub}, volume = {6}, year = {2021} }
TY - JOUR ID - 1840919 AU - Blay, J.Y. - Casali, P. - Bouvier, C. - Dehais, C. - Galloway, I. - Gietema, J. - Halámková, Jana - Hindi, N. - Idbaih, A. - Kinloch, E. - Klumpen, H.J. - Kolarova, T. - Kopeckova, K. - Lovey, J. - Magalhaes, M. - Oselin, K. - Piperno-Neumann, S. - Ravnsbaek, A. - Rogasik, M. - Safwat, A. - Scheipl, S. - Seckl, M. - Taylor, J. - Temnyk, M. - Trama, A. - Urbonas, M. - Wartenberg, M. - Weinman, A. PY - 2021 TI - European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN JF - ESMO OPEN VL - 6 IS - 4 SP - 1-10 EP - 1-10 PB - BMJ PUBLISHING GROUP SN - 20597029 KW - ERN KW - European Reference Network KW - EU KW - European Union KW - EURACAN KW - ESMO KW - solid cancers; UR - https://www.sciencedirect.com/science/article/pii/S2059702921001344?via%3Dihub N2 - A better understanding of the biology of rare cancers, an improved access to optimal diagnosis, to effective therapies, and to evidence-based treatment guidelines will all improve the outcome of patients with rare cancers. Still, disparities exist across Europe between countries and regions, with heterogeneous patient pathways, and different points of access contacted for initial health care management. Health migration issues also need to be addressed to reduce inequities in care for the European patient. ER -
BLAY, J.Y., P. CASALI, C. BOUVIER, C. DEHAIS, I. GALLOWAY, J. GIETEMA, Jana HALÁMKOVÁ, N. HINDI, A. IDBAIH, E. KINLOCH, H.J. KLUMPEN, T. KOLAROVA, K. KOPECKOVA, J. LOVEY, M. MAGALHAES, K. OSELIN, S. PIPERNO-NEUMANN, A. RAVNSBAEK, M. ROGASIK, A. SAFWAT, S. SCHEIPL, M. SECKL, J. TAYLOR, M. TEMNYK, A. TRAMA, M. URBONAS, M. WARTENBERG and A. WEINMAN. European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN. \textit{ESMO OPEN}. LONDON: BMJ PUBLISHING GROUP, 2021, vol.~6, No~4, p.~1-10. ISSN~2059-7029. Available from: https://dx.doi.org/10.1016/j.esmoop.2021.100174.
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