European Reference Network for rare adult solid cancers,
statement and integration to health care systems of member
states: a position paper of the ERN EURACAN

J 2021

European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN

BLAY, J.Y., P. CASALI, C. BOUVIER, C. DEHAIS, I. GALLOWAY et. al.

Basic information

Original name

European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN

Authors

BLAY, J.Y. (guarantor), P. CASALI, C. BOUVIER, C. DEHAIS, I. GALLOWAY, J. GIETEMA, Jana HALÁMKOVÁ (203 Czech Republic, belonging to the institution), N. HINDI, A. IDBAIH, E. KINLOCH, H.J. KLUMPEN, T. KOLAROVA, K. KOPECKOVA, J. LOVEY, M. MAGALHAES, K. OSELIN, S. PIPERNO-NEUMANN, A. RAVNSBAEK, M. ROGASIK, A. SAFWAT, S. SCHEIPL, M. SECKL, J. TAYLOR, M. TEMNYK, A. TRAMA, M. URBONAS, M. WARTENBERG and A. WEINMAN

Edition

ESMO OPEN, LONDON, BMJ PUBLISHING GROUP, 2021, 2059-7029

Other information

Language

English

Type of outcome

Článek v odborném periodiku

Field of Study

30230 Other clinical medicine subjects

Country of publisher

Netherlands

Confidentiality degree

není předmětem státního či obchodního tajemství

References:

URL

Impact factor

Impact factor: 6.883

RIV identification code

RIV/00216224:14110/21:00124404

Organization unit

Faculty of Medicine

DOI

http://dx.doi.org/10.1016/j.esmoop.2021.100174

UT WoS

000703610200044

Keywords (in Czech)

ERN; European Reference Network; EU; European Union; EURACAN; ESMO; solid cancers;

Keywords in English

ERN; European Reference Network; EU; European Union; EURACAN; ESMO; solid cancers;

Abstract

V originále

A better understanding of the biology of rare cancers, an improved access to optimal diagnosis, to effective therapies, and to evidence-based treatment guidelines will all improve the outcome of patients with rare cancers. Still, disparities exist across Europe between countries and regions, with heterogeneous patient pathways, and different points of access contacted for initial health care management. Health migration issues also need to be addressed to reduce inequities in care for the European patient.

Links

LM2018128, research and development project

Name: Český národní uzel Evropské sítě infrastruktur klinického výzkumu (Acronym: CZECRIN)

Investor: Ministry of Education, Youth and Sports of the CR

Citovat

BLAY, J.Y., P. CASALI, C. BOUVIER, C. DEHAIS, I. GALLOWAY, J. GIETEMA, Jana HALÁMKOVÁ, N. HINDI, A. IDBAIH, E. KINLOCH, H.J. KLUMPEN, T. KOLAROVA, K. KOPECKOVA, J. LOVEY, M. MAGALHAES, K. OSELIN, S. PIPERNO-NEUMANN, A. RAVNSBAEK, M. ROGASIK, A. SAFWAT, S. SCHEIPL, M. SECKL, J. TAYLOR, M. TEMNYK, A. TRAMA, M. URBONAS, M. WARTENBERG and A. WEINMAN. European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN. ESMO OPEN. LONDON: BMJ PUBLISHING GROUP, 2021, vol. 6, No 4, p. 1-10. ISSN 2059-7029. Available from: https://dx.doi.org/10.1016/j.esmoop.2021.100174.

@article{1840919,
   author = {Blay, J.Y. and Casali, P. and Bouvier, C. and Dehais, C. and Galloway, I. and Gietema, J. and Halámková, Jana and Hindi, N. and Idbaih, A. and Kinloch, E. and Klumpen, H.J. and Kolarova, T. and Kopeckova, K. and Lovey, J. and Magalhaes, M. and Oselin, K. and PipernoandNeumann, S. and Ravnsbaek, A. and Rogasik, M. and Safwat, A. and Scheipl, S. and Seckl, M. and Taylor, J. and Temnyk, M. and Trama, A. and Urbonas, M. and Wartenberg, M. and Weinman, A.},
   article_location = {LONDON},
   article_number = {4},
   doi = {http://dx.doi.org/10.1016/j.esmoop.2021.100174},
   keywords = {ERN; European Reference Network; EU; European Union; EURACAN; ESMO; solid cancers;},
   language = {eng},
   issn = {2059-7029},
   journal = {ESMO OPEN},
   title = {European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN},
   url = {https://www.sciencedirect.com/science/article/pii/S2059702921001344?via%3Dihub},
   volume = {6},
   year = {2021}
}

TY  - JOUR
ID  - 1840919
AU  - Blay, J.Y. - Casali, P. - Bouvier, C. - Dehais, C. - Galloway, I. - Gietema, J. - Halámková, Jana - Hindi, N. - Idbaih, A. - Kinloch, E. - Klumpen, H.J. - Kolarova, T. - Kopeckova, K. - Lovey, J. - Magalhaes, M. - Oselin, K. - Piperno-Neumann, S. - Ravnsbaek, A. - Rogasik, M. - Safwat, A. - Scheipl, S. - Seckl, M. - Taylor, J. - Temnyk, M. - Trama, A. - Urbonas, M. - Wartenberg, M. - Weinman, A.
PY  - 2021
TI  - European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN
JF  - ESMO OPEN
VL  - 6
IS  - 4
SP  - 1-10
EP  - 1-10
PB  - BMJ PUBLISHING GROUP
SN  - 20597029
KW  - ERN
KW  - European Reference Network
KW  - EU
KW  - European Union
KW  - EURACAN
KW  - ESMO
KW  - solid cancers;
UR  - https://www.sciencedirect.com/science/article/pii/S2059702921001344?via%3Dihub
N2  - A better understanding of the biology of rare cancers, an improved access to optimal diagnosis, to effective therapies, and to evidence-based treatment guidelines will all improve the outcome of patients with rare cancers. Still, disparities exist across Europe between countries and regions, with heterogeneous patient pathways, and different points of access contacted for initial health care management. Health migration issues also need to be addressed to reduce inequities in care for the European patient.
ER  -

BLAY, J.Y., P. CASALI, C. BOUVIER, C. DEHAIS, I. GALLOWAY, J. GIETEMA, Jana HALÁMKOVÁ, N. HINDI, A. IDBAIH, E. KINLOCH, H.J. KLUMPEN, T. KOLAROVA, K. KOPECKOVA, J. LOVEY, M. MAGALHAES, K. OSELIN, S. PIPERNO-NEUMANN, A. RAVNSBAEK, M. ROGASIK, A. SAFWAT, S. SCHEIPL, M. SECKL, J. TAYLOR, M. TEMNYK, A. TRAMA, M. URBONAS, M. WARTENBERG and A. WEINMAN. European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN. \textit{ESMO OPEN}. LONDON: BMJ PUBLISHING GROUP, 2021, vol.~6, No~4, p.~1-10. ISSN~2059-7029. Available from: https://dx.doi.org/10.1016/j.esmoop.2021.100174.

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