First experience of a hemophilia monitoring platform: florio
HAEMO

J 2022

First experience of a hemophilia monitoring platform: florio HAEMO

ZAPOTOCKA, Ester, Angelika BATOROVA, Ernest BILIC, Ana BOBAN, Carmen Escuriola ETTINGSHAUSEN et. al.

Basic information

Original name

First experience of a hemophilia monitoring platform: florio HAEMO

Authors

ZAPOTOCKA, Ester (203 Czech Republic, guarantor), Angelika BATOROVA, Ernest BILIC, Ana BOBAN, Carmen Escuriola ETTINGSHAUSEN, Barbara Faganel KOTNIK, Radomira HRDLICKOVA, Pawel LAGUNA, Jan MÁCHAL (203 Czech Republic, belonging to the institution), Laszlo NEMES, Irena Preloznik ZUPAN, Gediminas PURAS and Marianna ZOMBORI

Edition

RESEARCH AND PRACTICE IN THROMBOSIS AND HAEMOSTASIS, HOBOKEN, WILEY, 2022, 2475-0379

Other information

Language

English

Type of outcome

Článek v odborném periodiku

Field of Study

30205 Hematology

Country of publisher

United States of America

Confidentiality degree

není předmětem státního či obchodního tajemství

References:

URL

Impact factor

Impact factor: 4.600

RIV identification code

RIV/00216224:14110/22:00128315

Organization unit

Faculty of Medicine

DOI

http://dx.doi.org/10.1002/rth2.12685

UT WoS

000783276100005

Keywords in English

hemophilia; patient preference; pharmacokinetics; telemedicine

Abstract

V originále

Background: florio HAEMO is a new hemophilia treatment monitoring application consisting of a patient smartphone application (app) and a web-based dashboard for healthcare professionals, providing several novel features, including activity tracking, wearable connectivity, kids and caregiver mode, and real-time pharmacokinetic factor level estimation. Objectives: To assess intuitiveness, ease-of-use, and patient preference of florio HAEMO in Central Europe using a cross-sectional survey. Methods: This survey was conducted in six Central European countries between 9 December 2020 and 24 May 2021, The online questionnaire included 17 questions about overall satisfaction, ease-of-use, intuitiveness, and patient preference. Adults or children with hemophilia on regular prophylaxis and using the florio HAEM app for a minimum of 1 week were invited to complete the online questionnaire by their treating physician. Results: Sixty-six participants took part in the survey. The median duration for all respondents using the florio HAEMO app was 3 to 4 weeks. Overall, 89.4% of users reported being very satisfied or rather satisfied after using florio HAEMO. Of the 23 respondents who had switched from another hemophilia app, 87.0% indicated that they strongly preferred or preferred using florio HAEMO. Most florio HAEMO users reported that the app was very easy or rather easy to use (97.0%) and intuitive (94.0%). florio HAEMO had a positive impact on daily living, with 78.8% of users reporting that the app was very important or rather important to them. Conclusions: This survey suggests that florio HAEMO is an easy-to-use and intuitive app to assist self-management of home prophylaxis.

Citovat

ZAPOTOCKA, Ester, Angelika BATOROVA, Ernest BILIC, Ana BOBAN, Carmen Escuriola ETTINGSHAUSEN, Barbara Faganel KOTNIK, Radomira HRDLICKOVA, Pawel LAGUNA, Jan MÁCHAL, Laszlo NEMES, Irena Preloznik ZUPAN, Gediminas PURAS and Marianna ZOMBORI. First experience of a hemophilia monitoring platform: florio HAEMO. RESEARCH AND PRACTICE IN THROMBOSIS AND HAEMOSTASIS. HOBOKEN: WILEY, 2022, vol. 6, No 2, p. 1-9. ISSN 2475-0379. Available from: https://dx.doi.org/10.1002/rth2.12685.

@article{2250031,
   author = {Zapotocka, Ester and Batorova, Angelika and Bilic, Ernest and Boban, Ana and Ettingshausen, Carmen Escuriola and Kotnik, Barbara Faganel and Hrdlickova, Radomira and Laguna, Pawel and Máchal, Jan and Nemes, Laszlo and Zupan, Irena Preloznik and Puras, Gediminas and Zombori, Marianna},
   article_location = {HOBOKEN},
   article_number = {2},
   doi = {http://dx.doi.org/10.1002/rth2.12685},
   keywords = {hemophilia; patient preference; pharmacokinetics; telemedicine},
   language = {eng},
   issn = {2475-0379},
   journal = {RESEARCH AND PRACTICE IN THROMBOSIS AND HAEMOSTASIS},
   title = {First experience of a hemophilia monitoring platform: florio HAEMO},
   url = {https://www.sciencedirect.com/science/article/pii/S2475037922011736?via%3Dihub},
   volume = {6},
   year = {2022}
}

TY  - JOUR
ID  - 2250031
AU  - Zapotocka, Ester - Batorova, Angelika - Bilic, Ernest - Boban, Ana - Ettingshausen, Carmen Escuriola - Kotnik, Barbara Faganel - Hrdlickova, Radomira - Laguna, Pawel - Máchal, Jan - Nemes, Laszlo - Zupan, Irena Preloznik - Puras, Gediminas - Zombori, Marianna
PY  - 2022
TI  - First experience of a hemophilia monitoring platform: florio HAEMO
JF  - RESEARCH AND PRACTICE IN THROMBOSIS AND HAEMOSTASIS
VL  - 6
IS  - 2
SP  - 1-9
EP  - 1-9
PB  - WILEY
SN  - 24750379
KW  - hemophilia
KW  - patient preference
KW  - pharmacokinetics
KW  - telemedicine
UR  - https://www.sciencedirect.com/science/article/pii/S2475037922011736?via%3Dihub
N2  - Background: florio HAEMO is a new hemophilia treatment monitoring application consisting of a patient smartphone application (app) and a web-based dashboard for healthcare professionals, providing several novel features, including activity tracking, wearable connectivity, kids and caregiver mode, and real-time pharmacokinetic factor level estimation. Objectives: To assess intuitiveness, ease-of-use, and patient preference of florio HAEMO in Central Europe using a cross-sectional survey. Methods: This survey was conducted in six Central European countries between 9 December 2020 and 24 May 2021, The online questionnaire included 17 questions about overall satisfaction, ease-of-use, intuitiveness, and patient preference. Adults or children with hemophilia on regular prophylaxis and using the florio HAEM app for a minimum of 1 week were invited to complete the online questionnaire by their treating physician. Results: Sixty-six participants took part in the survey. The median duration for all respondents using the florio HAEMO app was 3 to 4 weeks. Overall, 89.4% of users reported being very satisfied or rather satisfied after using florio HAEMO. Of the 23 respondents who had switched from another hemophilia app, 87.0% indicated that they strongly preferred or preferred using florio HAEMO. Most florio HAEMO users reported that the app was very easy or rather easy to use (97.0%) and intuitive (94.0%). florio HAEMO had a positive impact on daily living, with 78.8% of users reporting that the app was very important or rather important to them. Conclusions: This survey suggests that florio HAEMO is an easy-to-use and intuitive app to assist self-management of home prophylaxis.
ER  -

ZAPOTOCKA, Ester, Angelika BATOROVA, Ernest BILIC, Ana BOBAN, Carmen Escuriola ETTINGSHAUSEN, Barbara Faganel KOTNIK, Radomira HRDLICKOVA, Pawel LAGUNA, Jan MÁCHAL, Laszlo NEMES, Irena Preloznik ZUPAN, Gediminas PURAS and Marianna ZOMBORI. First experience of a hemophilia monitoring platform: florio HAEMO. \textit{RESEARCH AND PRACTICE IN THROMBOSIS AND HAEMOSTASIS}. HOBOKEN: WILEY, 2022, vol.~6, No~2, p.~1-9. ISSN~2475-0379. Available from: https://dx.doi.org/10.1002/rth2.12685.

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