Experiences of mothers of children with profound intellectual
and multiple disabilities in the Czech Republic

J 2023

Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic

SEDLACKOVA, Dagmar, Jiri KANTOR, Ivona DOMISCHOVA and Lucia KANTOROVÁ

Basic information

Original name

Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic

Authors

SEDLACKOVA, Dagmar (203 Czech Republic, guarantor), Jiri KANTOR (203 Czech Republic), Ivona DOMISCHOVA (203 Czech Republic) and Lucia KANTOROVÁ (703 Slovakia, belonging to the institution)

Edition

BRITISH JOURNAL OF LEARNING DISABILITIES, Hoboken, WILEY, 2023, 1354-4187

Other information

Language

English

Type of outcome

Článek v odborném periodiku

Field of Study

30230 Other clinical medicine subjects

Country of publisher

United States of America

Confidentiality degree

není předmětem státního či obchodního tajemství

References:

URL

Impact factor

Impact factor: 1.500 in 2022

RIV identification code

RIV/00216224:14110/23:00130252

Organization unit

Faculty of Medicine

DOI

http://dx.doi.org/10.1111/bld.12443

UT WoS

000751880500001

Keywords in English

challenges; lived experiences; mothers; multiple disability; profound intellectual and multiple disability; services

Abstract

V originále

Background The objective of this study is to explore experiences of Czech mothers caring for children with profound intellectual and multiple disabilities. Methods Semistructured interviews combined with biographical narration of mothers of children with profound intellectual and multiple disabilities and a short questionnaire for demographic data were used for data collection. Data analyses were carried out according to Van Manen's approach, including defining the main themes and description of the lived experiences of mothers. Findings The dominant themes that emerged from the interviews were (1) losses and limits, (2) increased demands and exhaustion, (3) worries, (4) challenges connected to help and support, (5) transformation, (6) pleasures with contentment of the child and a small development and (7) functional support. Conclusions The findings demonstrate that mothers of children with profound intellectual and multiple disabilities are at risk of facing many kinds of life difficulties, but the children have also positive impact on the mothers' lives. Relevant professionals and policy makers should be aware of the needs and challenges experienced by this vulnerable population.

Citovat

SEDLACKOVA, Dagmar, Jiri KANTOR, Ivona DOMISCHOVA and Lucia KANTOROVÁ. Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic. BRITISH JOURNAL OF LEARNING DISABILITIES. Hoboken: WILEY, 2023, vol. 51, No 1, p. 3-12. ISSN 1354-4187. Available from: https://dx.doi.org/10.1111/bld.12443.

@article{2250983,
   author = {Sedlackova, Dagmar and Kantor, Jiri and Domischova, Ivona and Kantorová, Lucia},
   article_location = {Hoboken},
   article_number = {1},
   doi = {http://dx.doi.org/10.1111/bld.12443},
   keywords = {challenges; lived experiences; mothers; multiple disability; profound intellectual and multiple disability; services},
   language = {eng},
   issn = {1354-4187},
   journal = {BRITISH JOURNAL OF LEARNING DISABILITIES},
   title = {Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic},
   url = {https://onlinelibrary.wiley.com/doi/10.1111/bld.12443},
   volume = {51},
   year = {2023}
}

TY  - JOUR
ID  - 2250983
AU  - Sedlackova, Dagmar - Kantor, Jiri - Domischova, Ivona - Kantorová, Lucia
PY  - 2023
TI  - Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic
JF  - BRITISH JOURNAL OF LEARNING DISABILITIES
VL  - 51
IS  - 1
SP  - 3-12
EP  - 3-12
PB  - WILEY
SN  - 13544187
KW  - challenges
KW  - lived experiences
KW  - mothers
KW  - multiple disability
KW  - profound intellectual and multiple disability
KW  - services
UR  - https://onlinelibrary.wiley.com/doi/10.1111/bld.12443
N2  - Background The objective of this study is to explore experiences of Czech mothers caring for children with profound intellectual and multiple disabilities. Methods Semistructured interviews combined with biographical narration of mothers of children with profound intellectual and multiple disabilities and a short questionnaire for demographic data were used for data collection. Data analyses were carried out according to Van Manen's approach, including defining the main themes and description of the lived experiences of mothers. Findings The dominant themes that emerged from the interviews were (1) losses and limits, (2) increased demands and exhaustion, (3) worries, (4) challenges connected to help and support, (5) transformation, (6) pleasures with contentment of the child and a small development and (7) functional support. Conclusions The findings demonstrate that mothers of children with profound intellectual and multiple disabilities are at risk of facing many kinds of life difficulties, but the children have also positive impact on the mothers' lives. Relevant professionals and policy makers should be aware of the needs and challenges experienced by this vulnerable population.
ER  -

SEDLACKOVA, Dagmar, Jiri KANTOR, Ivona DOMISCHOVA and Lucia KANTOROVÁ. Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic. \textit{BRITISH JOURNAL OF LEARNING DISABILITIES}. Hoboken: WILEY, 2023, vol.~51, No~1, p.~3-12. ISSN~1354-4187. Available from: https://dx.doi.org/10.1111/bld.12443.

Detailed Information on Publication Record