The PanCareFollowUp Care Intervention: A European harmonised
approach to person-centred guideline-based survivorship care
after childhood, adolescent and young adult cancer

J 2022

The PanCareFollowUp Care Intervention: A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer

VAN KALSBEEK, Rebecca J., Renee L MULDER, Riccardo HAUPT, Monica MURACA, Lars HJORTH et. al.

Basic information

Original name

The PanCareFollowUp Care Intervention: A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer

Authors

VAN KALSBEEK, Rebecca J., Renee L MULDER, Riccardo HAUPT, Monica MURACA, Lars HJORTH, Cecilia FOLLIN, Tomáš KEPÁK (203 Czech Republic, belonging to the institution), Kateřina KEPÁKOVÁ (203 Czech Republic, belonging to the institution), Anne UYTTEBROECK, Marlies MANGELSCHOTS, Jeanette Falck WINTHER, Jacqueline J LOONEN, Gisela MICHEL, Edit BARDI, Line Elmerdahl FREDERIKSEN, den Hartogh JAAP, Luzius MADER, Katharina ROSER, Carina SCHNEIDER, Morven C BROWN, Melanie BRUNHOFER, Irene GOTTGENS, Rosella P M G HERMENS, Anita KIENESBERGER, Joke C KOREVAAR, Roderick SKINNER, Helena J. H. VAN DER PAL (guarantor) and Leontine C M KREMER

Edition

European Journal of Cancer, Oxford, Elsevier Science Inc. 2022, 0959-8049

Other information

Language

English

Type of outcome

Článek v odborném periodiku

Field of Study

30204 Oncology

Country of publisher

United Kingdom of Great Britain and Northern Ireland

Confidentiality degree

není předmětem státního či obchodního tajemství

References:

URL

Impact factor

Impact factor: 8.400

RIV identification code

RIV/00216224:14110/22:00128852

Organization unit

Faculty of Medicine

DOI

http://dx.doi.org/10.1016/j.ejca.2021.10.035

UT WoS

000796006400004

Keywords in English

Childhood cancer survivor; Cancer survivorship care; Long-term follow-up care; Person-centred care; Shared decision-making; Quality of life

Abstract

V originále

Background: Long-term follow-up (LTFU) care, although endorsed, is not available for the majority of adult survivors of childhood, adolescence and young adult (CAYA) cancer. Barriers to implementation include lack of time, knowledge, personnel and funding. Sustainable solutions are urgently needed to address the needs of CAYA cancer survivors to improve the quality of life and reduce the burden of late effects on survivors, health care systems and society. The European Union-funded PanCareFollowUp project, initiated by the Pan-European Network for Care of Survivors after Childhood and Adolescent Cancer, was established to facilitate the implementation of person-centred survivorship care across Europe. Patients and methods: The PanCareFollowUp Care Intervention was co-developed with survivors as part of the PanCareFollowUp project. It is a person-centred approach to survivorship care, supported by guidelines and with flexibility to adapt to local health care settings. The Care Intervention consists of three steps: (1) previsit completion of a Survivor Questionnaire (by the survivor) and Treatment Summary (by the health care provider [HCP]), (2) a clinic visit including shared decision-making, and (3) a follow-up call to finalise the individualised Survivorship Care Plan. Results: We developed the key components of the PanCareFollowUp Care Intervention: a PanCareFollowUp Survivor Questionnaire, Treatment Summary template, Survivorship Care Plan template, and educational materials for HCPs and survivors. Wide implementation of the PanCareFollowUp Care Intervention will be supported with a freely distributed Replication Manual on completion of the PanCareFollowUp project. Conclusions: The PanCareFollowUp Care Intervention will support the implementation of person-centred, guideline-based LTFU care in different health care settings across Europe to improve survivors' health and well-being.

Citovat

VAN KALSBEEK, Rebecca J., Renee L MULDER, Riccardo HAUPT, Monica MURACA, Lars HJORTH, Cecilia FOLLIN, Tomáš KEPÁK, Kateřina KEPÁKOVÁ, Anne UYTTEBROECK, Marlies MANGELSCHOTS, Jeanette Falck WINTHER, Jacqueline J LOONEN, Gisela MICHEL, Edit BARDI, Line Elmerdahl FREDERIKSEN, den Hartogh JAAP, Luzius MADER, Katharina ROSER, Carina SCHNEIDER, Morven C BROWN, Melanie BRUNHOFER, Irene GOTTGENS, Rosella P M G HERMENS, Anita KIENESBERGER, Joke C KOREVAAR, Roderick SKINNER, Helena J. H. VAN DER PAL and Leontine C M KREMER. The PanCareFollowUp Care Intervention: A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer. European Journal of Cancer. Oxford: Elsevier Science Inc., 2022, vol. 162, February 2022, p. 34-44. ISSN 0959-8049. Available from: https://dx.doi.org/10.1016/j.ejca.2021.10.035.

@article{2266198,
   author = {van Kalsbeek, Rebecca J. and Mulder, Renee L and Haupt, Riccardo and Muraca, Monica and Hjorth, Lars and Follin, Cecilia and Kepák, Tomáš and Kepáková, Kateřina and Uyttebroeck, Anne and Mangelschots, Marlies and Winther, Jeanette Falck and Loonen, Jacqueline J and Michel, Gisela and Bardi, Edit and Frederiksen, Line Elmerdahl and Jaap, den Hartogh and Mader, Luzius and Roser, Katharina and Schneider, Carina and Brown, Morven C and Brunhofer, Melanie and Gottgens, Irene and Hermens, Rosella P M G and Kienesberger, Anita and Korevaar, Joke C and Skinner, Roderick and van der Pal, Helena J. H. and Kremer, Leontine C M},
   article_location = {Oxford},
   article_number = {February 2022},
   doi = {http://dx.doi.org/10.1016/j.ejca.2021.10.035},
   keywords = {Childhood cancer survivor; Cancer survivorship care; Long-term follow-up care; Person-centred care; Shared decision-making; Quality of life},
   language = {eng},
   issn = {0959-8049},
   journal = {European Journal of Cancer},
   title = {The PanCareFollowUp Care Intervention: A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer},
   url = {https://www.ejcancer.com/article/S0959-8049(21)01203-X/fulltext},
   volume = {162},
   year = {2022}
}

TY  - JOUR
ID  - 2266198
AU  - van Kalsbeek, Rebecca J. - Mulder, Renee L - Haupt, Riccardo - Muraca, Monica - Hjorth, Lars - Follin, Cecilia - Kepák, Tomáš - Kepáková, Kateřina - Uyttebroeck, Anne - Mangelschots, Marlies - Winther, Jeanette Falck - Loonen, Jacqueline J - Michel, Gisela - Bardi, Edit - Frederiksen, Line Elmerdahl - Jaap, den Hartogh - Mader, Luzius - Roser, Katharina - Schneider, Carina - Brown, Morven C - Brunhofer, Melanie - Gottgens, Irene - Hermens, Rosella P M G - Kienesberger, Anita - Korevaar, Joke C - Skinner, Roderick - van der Pal, Helena J. H. - Kremer, Leontine C M
PY  - 2022
TI  - The PanCareFollowUp Care Intervention: A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer
JF  - European Journal of Cancer
VL  - 162
IS  - February 2022
SP  - 34-44
EP  - 34-44
PB  - Elsevier Science Inc.
SN  - 09598049
KW  - Childhood cancer survivor
KW  - Cancer survivorship care
KW  - Long-term follow-up care
KW  - Person-centred care
KW  - Shared decision-making
KW  - Quality of life
UR  - https://www.ejcancer.com/article/S0959-8049(21)01203-X/fulltext
N2  - Background: Long-term follow-up (LTFU) care, although endorsed, is not available for the majority of adult survivors of childhood, adolescence and young adult (CAYA) cancer. Barriers to implementation include lack of time, knowledge, personnel and funding. Sustainable solutions are urgently needed to address the needs of CAYA cancer survivors to improve the quality of life and reduce the burden of late effects on survivors, health care systems and society. The European Union-funded PanCareFollowUp project, initiated by the Pan-European Network for Care of Survivors after Childhood and Adolescent Cancer, was established to facilitate the implementation of person-centred survivorship care across Europe. Patients and methods: The PanCareFollowUp Care Intervention was co-developed with survivors as part of the PanCareFollowUp project. It is a person-centred approach to survivorship care, supported by guidelines and with flexibility to adapt to local health care settings. The Care Intervention consists of three steps: (1) previsit completion of a Survivor Questionnaire (by the survivor) and Treatment Summary (by the health care provider [HCP]), (2) a clinic visit including shared decision-making, and (3) a follow-up call to finalise the individualised Survivorship Care Plan. Results: We developed the key components of the PanCareFollowUp Care Intervention: a PanCareFollowUp Survivor Questionnaire, Treatment Summary template, Survivorship Care Plan template, and educational materials for HCPs and survivors. Wide implementation of the PanCareFollowUp Care Intervention will be supported with a freely distributed Replication Manual on completion of the PanCareFollowUp project. Conclusions: The PanCareFollowUp Care Intervention will support the implementation of person-centred, guideline-based LTFU care in different health care settings across Europe to improve survivors' health and well-being.
ER  -

VAN KALSBEEK, Rebecca J., Renee L MULDER, Riccardo HAUPT, Monica MURACA, Lars HJORTH, Cecilia FOLLIN, Tomáš KEPÁK, Kateřina KEPÁKOVÁ, Anne UYTTEBROECK, Marlies MANGELSCHOTS, Jeanette Falck WINTHER, Jacqueline J LOONEN, Gisela MICHEL, Edit BARDI, Line Elmerdahl FREDERIKSEN, den Hartogh JAAP, Luzius MADER, Katharina ROSER, Carina SCHNEIDER, Morven C BROWN, Melanie BRUNHOFER, Irene GOTTGENS, Rosella P M G HERMENS, Anita KIENESBERGER, Joke C KOREVAAR, Roderick SKINNER, Helena J. H. VAN DER PAL and Leontine C M KREMER. The PanCareFollowUp Care Intervention: A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer. \textit{European Journal of Cancer}. Oxford: Elsevier Science Inc., 2022, vol.~162, February 2022, p.~34-44. ISSN~0959-8049. Available from: https://dx.doi.org/10.1016/j.ejca.2021.10.035.

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