J 2024

A strategic neurological research agenda for Europe: Towards clinically relevant and patient-centred neurological research priorities

BOON, Paul, Emma LESCRAUWAET, Katina ALEKSOVSKA, Maria KONTI, Thomas BERGER et. al.

Basic information

Original name

A strategic neurological research agenda for Europe: Towards clinically relevant and patient-centred neurological research priorities

Authors

BOON, Paul (guarantor), Emma LESCRAUWAET, Katina ALEKSOVSKA, Maria KONTI, Thomas BERGER, Matilde LEONARDI, Tony MARSON, Ulf KALLWEIT, Elena MORO, Antonio TOSCANO, Irena REKTOROVÁ (203 Czech Republic, belonging to the institution), Michael CREAN, Anja SANDER, Robert JOYCE and Claudio BASSETTI

Edition

European Journal of Neurology, HOBOKEN, WILEY, 2024, 1351-5101

Other information

Language

English

Type of outcome

Článek v odborném periodiku

Field of Study

30210 Clinical neurology

Country of publisher

United States of America

Confidentiality degree

není předmětem státního či obchodního tajemství

References:

Impact factor

Impact factor: 5.100 in 2022

Organization unit

Central European Institute of Technology

UT WoS

001123920400001

Keywords in English

Europe; neurological disorders; research agenda; research gaps; research priorities

Tags

International impact, Reviewed
Změněno: 3/6/2024 08:49, Mgr. Tereza Miškechová

Abstract

V originále

Background and purpose: Neurological disorders constitute a significant portion of the global disease burden, affecting >30% of the world's population. This prevalence poses a substantial threat to global health in the foreseeable future. A lack of awareness regarding this high burden of neurological diseases has led to their underrecognition, underappreciation, and insufficient funding. Establishing a strategic and comprehensive research agenda for brain-related studies is a crucial step towards aligning research objectives among all pertinent stakeholders and fostering greater societal awareness.Methods: A scoping literature review was undertaken by a working group from the European Academy of Neurology (EAN) to identify any existing research agendas relevant to neurology. Additionally, a specialized survey was conducted among all EAN scientific panels, including neurologists and patients, inquiring about their perspectives on the current research priorities and gaps in neurology.Results: The review revealed the absence of a unified, overarching brain research agenda. Existing research agendas predominantly focus on specialized topics within neurology, resulting in an imbalance in the number of agendas across subspecialties. The survey indicated a prioritization of neurological disorders and research gaps.Conclusions: Building upon the findings from the review and survey, key components for a strategic and comprehensive neurological research agenda in Europe were delineated. This research agenda serves as a valuable prioritization tool for neuroscientific researchers, as well as for clinicians, donors, and funding agencies in the field of neurology. It offers essential guidance for creating a roadmap for research and clinical advancement, ultimately leading to heightened awareness and reduced burden of neurological disorders.