Getting your DUCs in a row - standardising the representation
of Digital Use Conditions

J 2024

Getting your DUCs in a row - standardising the representation of Digital Use Conditions

JEANSON, Francis, Spencer J GIBSON, Pinar ALPER, Alexander BERNIER, J Patrick WOOLLEY et. al.

Basic information

Original name

Getting your DUCs in a row - standardising the representation of Digital Use Conditions

Authors

Edition

SCIENTIFIC DATA, London, NATURE PORTFOLIO, 2024, 2052-4463

Other information

Language

English

Type of outcome

Článek v odborném periodiku

Field of Study

10201 Computer sciences, information science, bioinformatics

Country of publisher

Germany

Confidentiality degree

není předmětem státního či obchodního tajemství

References:

URL

Impact factor

Impact factor: 9.800 in 2022

Organization unit

Institute of Computer Science

DOI

http://dx.doi.org/10.1038/s41597-024-03280-6

Změněno: 13/5/2024 13:19, doc. RNDr. Petr Holub, Ph.D.

Abstract

V originále

Improving patient care and advancing scientific discovery requires responsible sharing of research data, healthcare records, biosamples, and biomedical resources that must also respect applicable use conditions. Defining a standard to structure and manage these use conditions is a complex and challenging task. This is exemplified by a near unlimited range of asset types, a high variability of applicable conditions, and differing applications at the individual or collective level. Furthermore, the specifics and granularity required are likely to vary depending on the ultimate contexts of use. All these factors confound alignment of institutional missions, funding objectives, regulatory and technical requirements to facilitate effective sharing. The presented work highlights the complexity and diversity of the problem, reviews the current state of the art, and emphasises the need for a flexible and adaptable approach. We propose Digital Use Conditions (DUC) as a framework that addresses these needs by leveraging existing standards, striking a balance between expressiveness versus ambiguity, and considering the breadth of applicable information with their context of use.

Citovat

JEANSON, Francis, Spencer J GIBSON, Pinar ALPER, Alexander BERNIER, J Patrick WOOLLEY, Daniel MIETCHEN, Andrzej STRUG, Regina BECKER, Pim KAMERLING, Maria del Carmen Sanchez GONZALEZ, Nancy MAH, Ann NOVAKOWSKI, Mark D WILKINSON, Oussama Mohammed BENHAMED, Annalisa LANDI, Georg Philip KROG, Heimo MÜLLER, Umar RIAZ, Colin VEAL, Petr HOLUB, Esther VAN ENCKEVORT and Anthony J BROOKES. Getting your DUCs in a row - standardising the representation of Digital Use Conditions. SCIENTIFIC DATA. London: NATURE PORTFOLIO, 2024, vol. 11, No 1, p. 1-10. ISSN 2052-4463. Available from: https://dx.doi.org/10.1038/s41597-024-03280-6.

@article{2401179,
   author = {Jeanson, Francis and Gibson, Spencer J and Alper, Pinar and Bernier, Alexander and Woolley, J Patrick and Mietchen, Daniel and Strug, Andrzej and Becker, Regina and Kamerling, Pim and Gonzalez, Maria del Carmen Sanchez and Mah, Nancy and Novakowski, Ann and Wilkinson, Mark D and Benhamed, Oussama Mohammed and Landi, Annalisa and Krog, Georg Philip and Müller, Heimo and Riaz, Umar and Veal, Colin and Holub, Petr and van Enckevort, Esther and Brookes, Anthony J},
   article_location = {London},
   article_number = {1},
   doi = {http://dx.doi.org/10.1038/s41597-024-03280-6},
   language = {eng},
   issn = {2052-4463},
   journal = {SCIENTIFIC DATA},
   title = {Getting your DUCs in a row - standardising the representation of Digital Use Conditions},
   url = {https://www.nature.com/articles/s41597-024-03280-6},
   volume = {11},
   year = {2024}
}

TY  - JOUR
ID  - 2401179
AU  - Jeanson, Francis - Gibson, Spencer J - Alper, Pinar - Bernier, Alexander - Woolley, J Patrick - Mietchen, Daniel - Strug, Andrzej - Becker, Regina - Kamerling, Pim - Gonzalez, Maria del Carmen Sanchez - Mah, Nancy - Novakowski, Ann - Wilkinson, Mark D - Benhamed, Oussama Mohammed - Landi, Annalisa - Krog, Georg Philip - Müller, Heimo - Riaz, Umar - Veal, Colin - Holub, Petr - van Enckevort, Esther - Brookes, Anthony J
PY  - 2024
TI  - Getting your DUCs in a row - standardising the representation of Digital Use Conditions
JF  - SCIENTIFIC DATA
VL  - 11
IS  - 1
SP  - 1-10
EP  - 1-10
PB  - NATURE PORTFOLIO
SN  - 20524463
UR  - https://www.nature.com/articles/s41597-024-03280-6
N2  - Improving patient care and advancing scientific discovery requires responsible sharing of research data, healthcare records, biosamples, and biomedical resources that must also respect applicable use conditions. Defining a standard to structure and manage these use conditions is a complex and challenging task. This is exemplified by a near unlimited range of asset types, a high variability of applicable conditions, and differing applications at the individual or collective level. Furthermore, the specifics and granularity required are likely to vary depending on the ultimate contexts of use. All these factors confound alignment of institutional missions, funding objectives, regulatory and technical requirements to facilitate effective sharing. The presented work highlights the complexity and diversity of the problem, reviews the current state of the art, and emphasises the need for a flexible and adaptable approach. We propose Digital Use Conditions (DUC) as a framework that addresses these needs by leveraging existing standards, striking a balance between expressiveness versus ambiguity, and considering the breadth of applicable information with their context of use.
ER  -

JEANSON, Francis, Spencer J GIBSON, Pinar ALPER, Alexander BERNIER, J Patrick WOOLLEY, Daniel MIETCHEN, Andrzej STRUG, Regina BECKER, Pim KAMERLING, Maria del Carmen Sanchez GONZALEZ, Nancy MAH, Ann NOVAKOWSKI, Mark D WILKINSON, Oussama Mohammed BENHAMED, Annalisa LANDI, Georg Philip KROG, Heimo MÜLLER, Umar RIAZ, Colin VEAL, Petr HOLUB, Esther VAN ENCKEVORT and Anthony J BROOKES. Getting your DUCs in a row - standardising the representation of Digital Use Conditions. \textit{SCIENTIFIC DATA}. London: NATURE PORTFOLIO, 2024, vol.~11, No~1, p.~1-10. ISSN~2052-4463. Available from: https://dx.doi.org/10.1038/s41597-024-03280-6.

Detailed Information on Publication Record