“I’m telling you my story, not publishing a blog” : Considerations and suggestions on data sharing in qualitative health psychology research on sensitive topics

GORE-GORSZEWSKA, Gabriela. “I’m telling you my story, not publishing a blog” : Considerations and suggestions on data sharing in qualitative health psychology research on sensitive topics. Journal of Health Psychology. London: SAGE Publications, 2024, vol. 29, No 7, p. 665-673. ISSN 1359-1053. Available from: https://dx.doi.org/10.1177/13591053241239109.

Basic information

• Original name: “I’m telling you my story, not publishing a blog” : Considerations and suggestions on data sharing in qualitative health psychology research on sensitive topics
• Authors: GORE-GORSZEWSKA, Gabriela (616 Poland, guarantor, belonging to the institution).
• Edition: Journal of Health Psychology, London, SAGE Publications, 2024, 1359-1053.

Other information

• Original language: English
• Type of outcome: Article in a journal
• Field of Study: 50101 Psychology
• Country of publisher: United Kingdom of Great Britain and Northern Ireland
• Confidentiality degree: is not subject to a state or trade secret
• WWW: URL
• Impact factor: Impact factor: 3.200 in 2022
• Organization unit: Faculty of Social Studies
• Doi: http://dx.doi.org/10.1177/13591053241239109
• UT WoS: 999
• Keywords in English: data sharing; ethics; informed consent; older adults; qualitative methods; sexuality
• Tags: International impact, Reviewed

Abstract

Qualitative research plays a pivotal role in health psychology, offering insights into the intricacies of health-related issues. However, the specificity of qualitative methodology presents challenges in adhering to standard open science principles, including data sharing. The guidelines to address these issues are limited. Drawing from the author’s experience in conducting in-depth interviews with middle-aged and older adults regarding their sexuality, this article discusses various challenges in implementing data sharing requirements. It emphasizes factors like participants’ reasonable reluctance to share in specific populations, the depth of personal information gleaned from comprehensive interviews, concerns surrounding potential data misuse both within and outside academic circles, and the complex issue of obtaining informed consent. A universal approach to data sharing in qualitative research proves impractical, emphasizing the necessity for adaptable, context-specific guidelines that acknowledge the methodology’s nuances. Striking a balance between transparency and ethical responsibility requires tailored strategies and thoughtful consideration.

Links

• MUNI/A/1571/2023, interní kód MU: Name: Aktuální otázky psychologie zdraví 3

Investor: Masaryk University