Monitoring of ECFS quality standards for the clinical
management of adults with cystic fibrosis

J 2024

Monitoring of ECFS quality standards for the clinical management of adults with cystic fibrosis

GRAMEGNA, Andrea, Stefano ALIBERTI, Adelina AMORIM, Francesco BLASI, Stephen BOURKE et. al.

Basic information

Original name

Monitoring of ECFS quality standards for the clinical management of adults with cystic fibrosis

Authors

GRAMEGNA, Andrea, Stefano ALIBERTI, Adelina AMORIM, Francesco BLASI, Stephen BOURKE, Pierre-Regis BURGEL, Filia DIAMANTEA, Isabelle DURIEU, Libor FILA, Giron Moreno Rosa MARIA, Barbara MESSORE, Eva POKOJOVÁ (203 Czech Republic, belonging to the institution), Giovanni TACCETTI, Stijn VERHULST, Andrea Vukic DUGAC, Sabine WEGE, Alistair DUFF, Kevin W SOUTHERN and Carlo CASTELLANI

Edition

Journal of Cystic Fibrosis, Netherlands, Elsevier BV, 2024, 1569-1993

Other information

Language

English

Type of outcome

Článek v odborném periodiku

Field of Study

30203 Respiratory systems

Country of publisher

Netherlands

Confidentiality degree

není předmětem státního či obchodního tajemství

References:

URL

Impact factor

Impact factor: 5.200 in 2022

Organization unit

Faculty of Medicine

DOI

http://dx.doi.org/10.1016/j.jcf.2023.11.001

UT WoS

001292542000001

Keywords in English

Cystic fibrosis; Adulthood; Quality standards; Standards of care; Cystic fibrosis centers

Abstract

V originále

Background: Although cystic fibrosis (CF) standards of care have been produced and regularly updated, they are not specifically targeting at the adult population. The ECFS Standards of Care Project established an international task force of experts to identify quality standards for adults with CF and assess their adherence. Methods: This study was composed of two phases. In the first one, a task force of international experts derived from published guidelines and graded ten quality standards for adult CF care using a modified Delphi methodology. In the second phase, an international audit was conducted among adult CF centers to retrospectively validate the quality statements and monitor adherence. Results: The task force identified 10 quality standards specific to the care of adults with CF, mainly based on the 2018 ECFS standards of care. 14 adult CF centers participated in the audit, which showed that most quality standards for the management of CF in adults are met across Europe. Heterogeneity in adherence to standards was found across centers according to geographical setting and centers' characteristics . Conclusions: The identification of quality standards is a valuable resource for the standardization and monitoring of care delivery across centers taking care of adults with CF.

Citovat

GRAMEGNA, Andrea, Stefano ALIBERTI, Adelina AMORIM, Francesco BLASI, Stephen BOURKE, Pierre-Regis BURGEL, Filia DIAMANTEA, Isabelle DURIEU, Libor FILA, Giron Moreno Rosa MARIA, Barbara MESSORE, Eva POKOJOVÁ, Giovanni TACCETTI, Stijn VERHULST, Andrea Vukic DUGAC, Sabine WEGE, Alistair DUFF, Kevin W SOUTHERN and Carlo CASTELLANI. Monitoring of ECFS quality standards for the clinical management of adults with cystic fibrosis. Journal of Cystic Fibrosis. Netherlands: Elsevier BV, 2024, vol. 23, No 2, p. 306-313. ISSN 1569-1993. Available from: https://dx.doi.org/10.1016/j.jcf.2023.11.001.

@article{2428098,
   author = {Gramegna, Andrea and Aliberti, Stefano and Amorim, Adelina and Blasi, Francesco and Bourke, Stephen and Burgel, PierreandRegis and Diamantea, Filia and Durieu, Isabelle and Fila, Libor and Maria, Giron Moreno Rosa and Messore, Barbara and Pokojová, Eva and Taccetti, Giovanni and Verhulst, Stijn and Dugac, Andrea Vukic and Wege, Sabine and Duff, Alistair and Southern, Kevin W and Castellani, Carlo},
   article_location = {Netherlands},
   article_number = {2},
   doi = {http://dx.doi.org/10.1016/j.jcf.2023.11.001},
   keywords = {Cystic fibrosis; Adulthood; Quality standards; Standards of care; Cystic fibrosis centers},
   language = {eng},
   issn = {1569-1993},
   journal = {Journal of Cystic Fibrosis},
   title = {Monitoring of ECFS quality standards for the clinical management of adults with cystic fibrosis},
   url = {https://www.sciencedirect.com/science/article/pii/S1569199323016727?via%3Dihub},
   volume = {23},
   year = {2024}
}

TY  - JOUR
ID  - 2428098
AU  - Gramegna, Andrea - Aliberti, Stefano - Amorim, Adelina - Blasi, Francesco - Bourke, Stephen - Burgel, Pierre-Regis - Diamantea, Filia - Durieu, Isabelle - Fila, Libor - Maria, Giron Moreno Rosa - Messore, Barbara - Pokojová, Eva - Taccetti, Giovanni - Verhulst, Stijn - Dugac, Andrea Vukic - Wege, Sabine - Duff, Alistair - Southern, Kevin W - Castellani, Carlo
PY  - 2024
TI  - Monitoring of ECFS quality standards for the clinical management of adults with cystic fibrosis
JF  - Journal of Cystic Fibrosis
VL  - 23
IS  - 2
SP  - 306-313
EP  - 306-313
PB  - Elsevier BV
SN  - 15691993
KW  - Cystic fibrosis
KW  - Adulthood
KW  - Quality standards
KW  - Standards of care
KW  - Cystic fibrosis centers
UR  - https://www.sciencedirect.com/science/article/pii/S1569199323016727?via%3Dihub
N2  - Background: Although cystic fibrosis (CF) standards of care have been produced and regularly updated, they are not specifically targeting at the adult population. The ECFS Standards of Care Project established an international task force of experts to identify quality standards for adults with CF and assess their adherence. Methods: This study was composed of two phases. In the first one, a task force of international experts derived from published guidelines and graded ten quality standards for adult CF care using a modified Delphi methodology. In the second phase, an international audit was conducted among adult CF centers to retrospectively validate the quality statements and monitor adherence. Results: The task force identified 10 quality standards specific to the care of adults with CF, mainly based on the 2018 ECFS standards of care. 14 adult CF centers participated in the audit, which showed that most quality standards for the management of CF in adults are met across Europe. Heterogeneity in adherence to standards was found across centers according to geographical setting and centers' characteristics . Conclusions: The identification of quality standards is a valuable resource for the standardization and monitoring of care delivery across centers taking care of adults with CF.
ER  -

GRAMEGNA, Andrea, Stefano ALIBERTI, Adelina AMORIM, Francesco BLASI, Stephen BOURKE, Pierre-Regis BURGEL, Filia DIAMANTEA, Isabelle DURIEU, Libor FILA, Giron Moreno Rosa MARIA, Barbara MESSORE, Eva POKOJOVÁ, Giovanni TACCETTI, Stijn VERHULST, Andrea Vukic DUGAC, Sabine WEGE, Alistair DUFF, Kevin W SOUTHERN and Carlo CASTELLANI. Monitoring of ECFS quality standards for the clinical management of adults with cystic fibrosis. \textit{Journal of Cystic Fibrosis}. Netherlands: Elsevier BV, 2024, vol.~23, No~2, p.~306-313. ISSN~1569-1993. Available from: https://dx.doi.org/10.1016/j.jcf.2023.11.001.

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