| VRY, Julia, Kathrin GRAMSCH, Sunil RODGER, Rachel THOMPSON, Birgit F. STEFFENSEN, Jes RAHBEK, Sam DOERKEN, Adrian TASSONI, María de los BEYTÍA, Velina GUERGUELTCHEVA, Teodora CHAMOVA, Ivailo TOURNEV, Anna KOSTERA-PRUSZCZYK, Anna KAMINSKA, Anna LUSAKOWSKA, Lenka MRÁZOVÁ, Lenka MOKRÁ, Jana STRENKOVÁ, Petr VONDRÁČEK, Marta GARAMI, Veronika KARCAGI, Ágnes HERCZEGFALVI, katherine BUSHBY, Hanns LOCHMÜLLER a Janbernd KIRSCHNER. European Cross-Sectional Survey of Current Care Practices for Duchenne Muscular Dystrophy Reveals Regional and Age-Dependent Differences. Journal of Neuromuscular Diseases. Amsterodam: IOS Press, 2016, roč. 3, č. 4, s. 517-527. ISSN 2214-3599. Dostupné z: https://dx.doi.org/10.3233/JND-160185. |
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@article{1365474,
author = {Vry, Julia and Gramsch, Kathrin and Rodger, Sunil and Thompson, Rachel and Steffensen, Birgit F. and Rahbek, Jes and Doerken, Sam and Tassoni, Adrian and Beytía, María de los and Guergueltcheva, Velina and Chamova, Teodora and Tournev, Ivailo and KosteraandPruszczyk, Anna and Kaminska, Anna and Lusakowska, Anna and Mrázová, Lenka and Mokrá, Lenka and Strenková, Jana and Vondráček, Petr and Garami, Marta and Karcagi, Veronika and Herczegfalvi, Ágnes and Bushby, katherine and Lochmüller, Hanns and Kirschner, Janbernd},
article_location = {Amsterodam},
article_number = {4},
doi = {http://dx.doi.org/10.3233/JND-160185},
keywords = {Duchenne muscular dystrophy; standards of care; corticosteroid treatment; functional status},
language = {eng},
issn = {2214-3599},
journal = {Journal of Neuromuscular Diseases},
title = {European Cross-Sectional Survey of Current Care Practices for Duchenne Muscular Dystrophy Reveals Regional and Age-Dependent Differences},
volume = {3},
year = {2016}
}
TY - JOUR
ID - 1365474
AU - Vry, Julia - Gramsch, Kathrin - Rodger, Sunil - Thompson, Rachel - Steffensen, Birgit F. - Rahbek, Jes - Doerken, Sam - Tassoni, Adrian - Beytía, María de los - Guergueltcheva, Velina - Chamova, Teodora - Tournev, Ivailo - Kostera-Pruszczyk, Anna - Kaminska, Anna - Lusakowska, Anna - Mrázová, Lenka - Mokrá, Lenka - Strenková, Jana - Vondráček, Petr - Garami, Marta - Karcagi, Veronika - Herczegfalvi, Ágnes - Bushby, katherine - Lochmüller, Hanns - Kirschner, Janbernd
PY - 2016
TI - European Cross-Sectional Survey of Current Care Practices for Duchenne Muscular Dystrophy Reveals Regional and Age-Dependent Differences
JF - Journal of Neuromuscular Diseases
VL - 3
IS - 4
SP - 517-527
EP - 517-527
PB - IOS Press
SN - 22143599
KW - Duchenne muscular dystrophy
KW - standards of care
KW - corticosteroid treatment
KW - functional status
N2 - Publication of comprehensive clinical care guidelines for Duchenne muscular dystrophy (DMD) in 2010 was a milestone for DMD patient management. Our CARE-NMD survey investigates the neuromuscular, medical, and psychosocial care of DMD patients in Europe, and compares it to the guidelines.
ER -
VRY, Julia, Kathrin GRAMSCH, Sunil RODGER, Rachel THOMPSON, Birgit F. STEFFENSEN, Jes RAHBEK, Sam DOERKEN, Adrian TASSONI, María de los BEYTÍA, Velina GUERGUELTCHEVA, Teodora CHAMOVA, Ivailo TOURNEV, Anna KOSTERA-PRUSZCZYK, Anna KAMINSKA, Anna LUSAKOWSKA, Lenka MRÁZOVÁ, Lenka MOKRÁ, Jana STRENKOVÁ, Petr VONDRÁČEK, Marta GARAMI, Veronika KARCAGI, Ágnes HERCZEGFALVI, katherine BUSHBY, Hanns LOCHMÜLLER a Janbernd KIRSCHNER. European Cross-Sectional Survey of Current Care Practices for Duchenne Muscular Dystrophy Reveals Regional and Age-Dependent Differences. \textit{Journal of Neuromuscular Diseases}. Amsterodam: IOS Press, 2016, roč.~3, č.~4, s.~517-527. ISSN~2214-3599. Dostupné z: https://dx.doi.org/10.3233/JND-160185.
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