| VALLEJO-VAZ, A.J., M. DE MARCO, C.A.T. STEVENS, A. AKRAM, Tomáš FREIBERGER, G.K. HOVINGH, J.J.P. KASTELEIN, P. MATA, F.J. RAAL, R.D. SANTOS, H. SORAN, G.F. WATTS, M. ABIFADEL, C.A. AGUILAR-SALINAS, M. AL-KHNIFSAWI, F.A. ALKINDI, F. ALNOURI, R. ALONSO, K. AL-RASADI, A. AL-SARRAF, T.F. ASHAVAID, C.J. BINDER, M.P. BOGSRUD, M. BOURBON, E. BRUCKERT, K. CHLEBUS, P. CORRAL, O. DESCAMPS, R. DURST, M. EZHOV, Z. FRAS, J. GENEST, U. GROSELJ, M. HARADA-SHIBA, M. KAYIKCIOGLU, K. LALIC, C.S.P. LAM, G. LATKOVSKIS, U. LAUFS, E. LIBEROPOULOS, J. LIN, V. MAHER, N. MAJANO, A.D. MARAIS, W. MARZ, E. MIRRAKHIMOV, A.R. MISEREZ, O. MITCHENKO, H.M. NAWAWI, B.G. NORDESTGAARD, G. PARAGH, Z. PETRULIONIENE, B. POJSKIC, A. POSTADZHIYAN, A. REDA, Z. REINER, W.E. SADOH, A. SAHEBKAR, A. SHEHAB, A.B. SHEK, M. STOLL, T.C. SU, T. SUBRAMANIAM, A.V. SUSEKOV, P. SYMEONIDES, M. TILNEY, B. TOMLINSON, T.H. TRUONG, A.D. TSELEPIS, A. TYBJAERG-HANSENB, A. VAZQUEZ-CARDENAS, M. VIIGIMAA, B. VOHNOUT, E. WIDEN, S. YAMASHITA, M. BANACH, D. GAITA, L.X. JIANG, L. NILSSON, L.E. SANTOS, H. SCHUNKERT, L. TOKGOZOGLU, J. CAR, A.L. CATAPANO a K.K. RAY. Overview of the current status of familial hypercholesterolaemia care in over 60 countries - The EAS Familial Hypercholesterolaemia Studies Collaboration (FHSC). Atherosclerosis. Clare: ELSEVIER SCI IRELAND LTD, 2018, roč. 277, OCT, s. 234-255. ISSN 0021-9150. Dostupné z: https://dx.doi.org/10.1016/j.atherosclerosis.2018.08.051. |
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@article{1498538,
author = {VallejoandVaz, A.J. and De Marco, M. and Stevens, C.A.T. and Akram, A. and Freiberger, Tomáš and Hovingh, G.K. and Kastelein, J.J.P. and Mata, P. and Raal, F.J. and Santos, R.D. and Soran, H. and Watts, G.F. and Abifadel, M. and AguilarandSalinas, C.A. and AlandKhnifsawi, M. and AlKindi, F.A. and Alnouri, F. and Alonso, R. and AlandRasadi, K. and AlandSarraf, A. and Ashavaid, T.F. and Binder, C.J. and Bogsrud, M.P. and Bourbon, M. and Bruckert, E. and Chlebus, K. and Corral, P. and Descamps, O. and Durst, R. and Ezhov, M. and Fras, Z. and Genest, J. and Groselj, U. and HaradaandShiba, M. and Kayikcioglu, M. and Lalic, K. and Lam, C.S.P. and Latkovskis, G. and Laufs, U. and Liberopoulos, E. and Lin, J. and Maher, V. and Majano, N. and Marais, A.D. and Marz, W. and Mirrakhimov, E. and Miserez, A.R. and Mitchenko, O. and Nawawi, H.M. and Nordestgaard, B.G. and Paragh, G. and Petrulioniene, Z. and Pojskic, B. and Postadzhiyan, A. and Reda, A. and Reiner, Z. and Sadoh, W.E. and Sahebkar, A. and Shehab, A. and Shek, A.B. and Stoll, M. and Su, T.C. and Subramaniam, T. and Susekov, A.V. and Symeonides, P. and Tilney, M. and Tomlinson, B. and Truong, T.H. and Tselepis, A.D. and TybjaergandHansenb, A. and VazquezandCardenas, A. and Viigimaa, M. and Vohnout, B. and Widen, E. and Yamashita, S. and Banach, M. and Gaita, D. and Jiang, L.X. and Nilsson, L. and Santos, L.E. and Schunkert, H. and Tokgozoglu, L. and Car, J. and Catapano, A.L. and Ray, K.K.},
article_location = {Clare},
article_number = {OCT},
doi = {http://dx.doi.org/10.1016/j.atherosclerosis.2018.08.051},
keywords = {Familial hypercholesterolaemia; Primary dyslipidaemia; FHSC},
language = {eng},
issn = {0021-9150},
journal = {Atherosclerosis},
title = {Overview of the current status of familial hypercholesterolaemia care in over 60 countries - The EAS Familial Hypercholesterolaemia Studies Collaboration (FHSC)},
url = {https://www.sciencedirect.com/science/article/pii/S0021915018313595?via%3Dihub},
volume = {277},
year = {2018}
}
TY - JOUR
ID - 1498538
AU - Vallejo-Vaz, A.J. - De Marco, M. - Stevens, C.A.T. - Akram, A. - Freiberger, Tomáš - Hovingh, G.K. - Kastelein, J.J.P. - Mata, P. - Raal, F.J. - Santos, R.D. - Soran, H. - Watts, G.F. - Abifadel, M. - Aguilar-Salinas, C.A. - Al-Khnifsawi, M. - AlKindi, F.A. - Alnouri, F. - Alonso, R. - Al-Rasadi, K. - Al-Sarraf, A. - Ashavaid, T.F. - Binder, C.J. - Bogsrud, M.P. - Bourbon, M. - Bruckert, E. - Chlebus, K. - Corral, P. - Descamps, O. - Durst, R. - Ezhov, M. - Fras, Z. - Genest, J. - Groselj, U. - Harada-Shiba, M. - Kayikcioglu, M. - Lalic, K. - Lam, C.S.P. - Latkovskis, G. - Laufs, U. - Liberopoulos, E. - Lin, J. - Maher, V. - Majano, N. - Marais, A.D. - Marz, W. - Mirrakhimov, E. - Miserez, A.R. - Mitchenko, O. - Nawawi, H.M. - Nordestgaard, B.G. - Paragh, G. - Petrulioniene, Z. - Pojskic, B. - Postadzhiyan, A. - Reda, A. - Reiner, Z. - Sadoh, W.E. - Sahebkar, A. - Shehab, A. - Shek, A.B. - Stoll, M. - Su, T.C. - Subramaniam, T. - Susekov, A.V. - Symeonides, P. - Tilney, M. - Tomlinson, B. - Truong, T.H. - Tselepis, A.D. - Tybjaerg-Hansenb, A. - Vazquez-Cardenas, A. - Viigimaa, M. - Vohnout, B. - Widen, E. - Yamashita, S. - Banach, M. - Gaita, D. - Jiang, L.X. - Nilsson, L. - Santos, L.E. - Schunkert, H. - Tokgozoglu, L. - Car, J. - Catapano, A.L. - Ray, K.K.
PY - 2018
TI - Overview of the current status of familial hypercholesterolaemia care in over 60 countries - The EAS Familial Hypercholesterolaemia Studies Collaboration (FHSC)
JF - Atherosclerosis
VL - 277
IS - OCT
SP - 234-255
EP - 234-255
PB - ELSEVIER SCI IRELAND LTD
SN - 00219150
KW - Familial hypercholesterolaemia
KW - Primary dyslipidaemia
KW - FHSC
UR - https://www.sciencedirect.com/science/article/pii/S0021915018313595?via%3Dihub
N2 - Background and aims: Management of familial hypercholesterolaemia (FH) may vary across different settings due to factors related to population characteristics, practice, resources and/or policies. We conducted a survey among the worldwide network of EAS FHSC Lead Investigators to provide an overview of FH status in different countries. Methods: Lead Investigators from countries formally involved in the EAS FHSC by mid-May 2018 were invited to provide a brief report on FH status in their countries, including available information, programmes, initiatives, and management. Results: 63 countries provided reports. Data on FH prevalence are lacking in most countries. Where available, data tend to align with recent estimates, suggesting a higher frequency than that traditionally considered. Low rates of FH detection are reported across all regions. National registries and education programmes to improve FH awareness/knowledge are a recognised priority, but funding is often lacking. In most countries, diagnosis primarily relies on the Dutch Lipid Clinics Network criteria. Although available in many countries, genetic testing is not widely implemented (frequent cost issues). There are only a few national official government programmes for FH. Under-treatment is an issue. FH therapy is not universally reimbursed. PCSK9-inhibitors are available in similar to 2/3 countries. Lipoprotein-apheresis is offered in similar to 60% countries, although access is limited. Conclusions: FH is a recognised public health concern. Management varies widely across countries, with overall suboptimal identification and under-treatment. Efforts and initiatives to improve FH knowledge and management are underway, including development of national registries, but support, particularly from health authorities, and better funding are greatly needed.
ER -
VALLEJO-VAZ, A.J., M. DE MARCO, C.A.T. STEVENS, A. AKRAM, Tomáš FREIBERGER, G.K. HOVINGH, J.J.P. KASTELEIN, P. MATA, F.J. RAAL, R.D. SANTOS, H. SORAN, G.F. WATTS, M. ABIFADEL, C.A. AGUILAR-SALINAS, M. AL-KHNIFSAWI, F.A. ALKINDI, F. ALNOURI, R. ALONSO, K. AL-RASADI, A. AL-SARRAF, T.F. ASHAVAID, C.J. BINDER, M.P. BOGSRUD, M. BOURBON, E. BRUCKERT, K. CHLEBUS, P. CORRAL, O. DESCAMPS, R. DURST, M. EZHOV, Z. FRAS, J. GENEST, U. GROSELJ, M. HARADA-SHIBA, M. KAYIKCIOGLU, K. LALIC, C.S.P. LAM, G. LATKOVSKIS, U. LAUFS, E. LIBEROPOULOS, J. LIN, V. MAHER, N. MAJANO, A.D. MARAIS, W. MARZ, E. MIRRAKHIMOV, A.R. MISEREZ, O. MITCHENKO, H.M. NAWAWI, B.G. NORDESTGAARD, G. PARAGH, Z. PETRULIONIENE, B. POJSKIC, A. POSTADZHIYAN, A. REDA, Z. REINER, W.E. SADOH, A. SAHEBKAR, A. SHEHAB, A.B. SHEK, M. STOLL, T.C. SU, T. SUBRAMANIAM, A.V. SUSEKOV, P. SYMEONIDES, M. TILNEY, B. TOMLINSON, T.H. TRUONG, A.D. TSELEPIS, A. TYBJAERG-HANSENB, A. VAZQUEZ-CARDENAS, M. VIIGIMAA, B. VOHNOUT, E. WIDEN, S. YAMASHITA, M. BANACH, D. GAITA, L.X. JIANG, L. NILSSON, L.E. SANTOS, H. SCHUNKERT, L. TOKGOZOGLU, J. CAR, A.L. CATAPANO a K.K. RAY. Overview of the current status of familial hypercholesterolaemia care in over 60 countries - The EAS Familial Hypercholesterolaemia Studies Collaboration (FHSC). \textit{Atherosclerosis}. Clare: ELSEVIER SCI IRELAND LTD, 2018, roč.~277, OCT, s.~234-255. ISSN~0021-9150. Dostupné z: https://dx.doi.org/10.1016/j.atherosclerosis.2018.08.051.
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