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@article{1531401, author = {Májek, Ondřej and Anttila, Ahti and Arbyn, Marc and van Veen, Evert Ben and Engesaeter, Birgit and Lonnberg, Stefan}, article_location = {OXFORD}, article_number = {2}, doi = {http://dx.doi.org/10.1093/eurpub/cky200}, keywords = {European cervical cancer screening programmes}, language = {eng}, issn = {1101-1262}, journal = {European journal of public health}, title = {The legal framework for European cervical cancer screening programmes}, url = {http://dx.doi.org/10.1093/eurpub/cky200}, volume = {29}, year = {2019} }
TY - JOUR ID - 1531401 AU - Májek, Ondřej - Anttila, Ahti - Arbyn, Marc - van Veen, Evert Ben - Engesaeter, Birgit - Lonnberg, Stefan PY - 2019 TI - The legal framework for European cervical cancer screening programmes JF - European journal of public health VL - 29 IS - 2 SP - 345-350 EP - 345-350 PB - OXFORD UNIV PRESS SN - 11011262 KW - European cervical cancer screening programmes UR - http://dx.doi.org/10.1093/eurpub/cky200 L2 - http://dx.doi.org/10.1093/eurpub/cky200 N2 - Background: A comprehensive legal framework needs to be developed to run the health services and to regulate the information systems required to manage and to ensure the quality of cancer screening programmes. The aim of our study was to document and to compare the status of legal basis for cervical screening registration in European countries. Methods: An electronic questionnaire including questions on governance, decision-making structures and legal framework was developed. The primary responses were collected by September 2016. Results: We sent the questionnaire to representatives of 35 European countries (28 countries of the EU, with the United Kingdom included as 4 countries; 4 EFTA member countries: Iceland, Liechtenstein, Norway, and Switzerland); responses were collected from 33 countries. The legal framework makes it possible to personally invite individuals in 29 countries (88%). Systematic screening registration in an electronic registry is legally enshrined in 23 countries (70%). Individual linkage of records between screening and cancer registries is allowed in 19 of those countries. Linkage studies involving cancer and screening registries have been conducted in 15 countries. Conclusion: Although the majority of EU/EFTA countries have implemented population-based screening, only half of them have successfully performed record linkage studies, which are nevertheless a key recommendation for quality assurance of the entire screening process. The European legislation is open to the possibility of using health data for these purposes; however, member states themselves must recognize the public interest to create a legal basis, which would enable all the necessary functions for high-quality cancer screening programmes. ER -
MÁJEK, Ondřej, Ahti ANTTILA, Marc ARBYN, Evert Ben VAN VEEN, Birgit ENGESAETER a Stefan LONNBERG. The legal framework for European cervical cancer screening programmes. \textit{European journal of public health}. OXFORD: OXFORD UNIV PRESS, 2019, roč.~29, č.~2, s.~345-350. ISSN~1101-1262. Dostupné z: https://dx.doi.org/10.1093/eurpub/cky200.
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