Social support and resilience in persons with severe
haemophilia: An interpretative phenomenological analysis

J 2020

Social support and resilience in persons with severe haemophilia: An interpretative phenomenological analysis

RATAJOVA, Katerina, Jan BLATNÝ, Iva SOLCOVA POLACKOVA, Zdenek MEIER, Tekla HORNAKOVA et. al.

Základní údaje

Originální název

Social support and resilience in persons with severe haemophilia: An interpretative phenomenological analysis

Autoři

RATAJOVA, Katerina (203 Česká republika, garant), Jan BLATNÝ (203 Česká republika, domácí), Iva SOLCOVA POLACKOVA (203 Česká republika), Zdenek MEIER (203 Česká republika), Tekla HORNAKOVA (203 Česká republika), Robert BRNKA (203 Česká republika) a Peter TAVEL (203 Česká republika)

Vydání

Haemophilia, Hoboken, Wiley-Blackwell, 2020, 1351-8216

Další údaje

Jazyk

angličtina

Typ výsledku

Článek v odborném periodiku

Obor

30205 Hematology

Stát vydavatele

Spojené státy

Utajení

není předmětem státního či obchodního tajemství

Odkazy

URL

Impakt faktor

Impact factor: 4.287

Kód RIV

RIV/00216224:14110/20:00116021

Organizační jednotka

Lékařská fakulta

DOI

http://dx.doi.org/10.1111/hae.13999

UT WoS

000525836000001

Klíčová slova anglicky

group therapy; haemophilia; individual therapy; resilience; social support

Štítky

14110321, rivok

Příznaky

Mezinárodní význam, Recenzováno

Změněno: 17. 7. 2020 08:54, Mgr. Tereza Miškechová

Anotace

V originále

Introduction Haemophilia is a hereditary haemorrhagic disorder characterized by deficiency or dysfunction of coagulation factors. Recurrent joint and muscle bleeds lead to progressive musculoskeletal damage. Haemophilia affects patients physically but also socially and psychologically. Traumatic experiences, chronic stress and illnesses can lead to mental disorders, but many persons with haemophilia maintain a highly positive outlook. Aim To explore qualitatively which coping mechanisms persons with haemophilia use and in what way they help them to live with their diagnosis. Methods We recruited five adults with haemophilia and conducted semi-structured face-to-face interviews. Transcripts were analysed using interpretative phenomenological analysis (IPA). Results Two core themes emerged from the analysis: social support as an external factor and resilience as an internal factor of coping with the disease. Persons with haemophilia usually need help with health-related complications, and this affects the social support they require. Their wider support network tends to involve family and friends but also healthcare professionals and other specialists. This network provides practical help but also functions as an important psychological protective factor. An unexpected finding was that persons with haemophilia want not only to receive support but are also keen to offer support to others. Conclusion These findings can help identify persons who provide most support to people suffering from haemophilia. Haemophilic centres should include in their teams psychologists and social workers and offer individual and group therapy to their clients, group meetings for friends and families of persons with haemophilia, provide learning resources to teachers aiming to incorporate children with haemophilia in their peer group, and organize Balint groups for physicians, psychologists and other healthcare professionals.

Citovat

RATAJOVA, Katerina, Jan BLATNÝ, Iva SOLCOVA POLACKOVA, Zdenek MEIER, Tekla HORNAKOVA, Robert BRNKA a Peter TAVEL. Social support and resilience in persons with severe haemophilia: An interpretative phenomenological analysis. Haemophilia. Hoboken: Wiley-Blackwell, 2020, roč. 26, č. 3, s. "E74"-"E80", 7 s. ISSN 1351-8216. Dostupné z: https://dx.doi.org/10.1111/hae.13999.

@article{1670602,
   author = {Ratajova, Katerina and Blatný, Jan and Solcova Polackova, Iva and Meier, Zdenek and Hornakova, Tekla and Brnka, Robert and Tavel, Peter},
   article_location = {Hoboken},
   article_number = {3},
   doi = {http://dx.doi.org/10.1111/hae.13999},
   keywords = {group therapy; haemophilia; individual therapy; resilience; social support},
   language = {eng},
   issn = {1351-8216},
   journal = {Haemophilia},
   title = {Social support and resilience in persons with severe haemophilia: An interpretative phenomenological analysis},
   url = {https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/hae.13999},
   volume = {26},
   year = {2020}
}

TY  - JOUR
ID  - 1670602
AU  - Ratajova, Katerina - Blatný, Jan - Solcova Polackova, Iva - Meier, Zdenek - Hornakova, Tekla - Brnka, Robert - Tavel, Peter
PY  - 2020
TI  - Social support and resilience in persons with severe haemophilia: An interpretative phenomenological analysis
JF  - Haemophilia
VL  - 26
IS  - 3
SP  - "E74"-"E80"
EP  - "E74"-"E80"
PB  - Wiley-Blackwell
SN  - 13518216
KW  - group therapy
KW  - haemophilia
KW  - individual therapy
KW  - resilience
KW  - social support
UR  - https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/hae.13999
L2  - https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/hae.13999
N2  - Introduction Haemophilia is a hereditary haemorrhagic disorder characterized by deficiency or dysfunction of coagulation factors. Recurrent joint and muscle bleeds lead to progressive musculoskeletal damage. Haemophilia affects patients physically but also socially and psychologically. Traumatic experiences, chronic stress and illnesses can lead to mental disorders, but many persons with haemophilia maintain a highly positive outlook. Aim To explore qualitatively which coping mechanisms persons with haemophilia use and in what way they help them to live with their diagnosis. Methods We recruited five adults with haemophilia and conducted semi-structured face-to-face interviews. Transcripts were analysed using interpretative phenomenological analysis (IPA). Results Two core themes emerged from the analysis: social support as an external factor and resilience as an internal factor of coping with the disease. Persons with haemophilia usually need help with health-related complications, and this affects the social support they require. Their wider support network tends to involve family and friends but also healthcare professionals and other specialists. This network provides practical help but also functions as an important psychological protective factor. An unexpected finding was that persons with haemophilia want not only to receive support but are also keen to offer support to others. Conclusion These findings can help identify persons who provide most support to people suffering from haemophilia. Haemophilic centres should include in their teams psychologists and social workers and offer individual and group therapy to their clients, group meetings for friends and families of persons with haemophilia, provide learning resources to teachers aiming to incorporate children with haemophilia in their peer group, and organize Balint groups for physicians, psychologists and other healthcare professionals.
ER  -

RATAJOVA, Katerina, Jan BLATNÝ, Iva SOLCOVA POLACKOVA, Zdenek MEIER, Tekla HORNAKOVA, Robert BRNKA a Peter TAVEL. Social support and resilience in persons with severe haemophilia: An interpretative phenomenological analysis. \textit{Haemophilia}. Hoboken: Wiley-Blackwell, 2020, roč.~26, č.~3, s.~''E74''-''E80'', 7 s. ISSN~1351-8216. Dostupné z: https://dx.doi.org/10.1111/hae.13999.

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