Involving children and young people in clinical research
through the forum of a European Young Persons' Advisory Group:
needs and challenges

J 2018

Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges

GAILLARD, S., S. MALIK, J. PRESTON, B. N. ESCALERA, P. DICKS et. al.

Základní údaje

Originální název

Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges

Autoři

GAILLARD, S., S. MALIK, J. PRESTON, B. N. ESCALERA, P. DICKS, N. TOUIL, S. MARDIROSSIAN, J. CLAVEROL-TORRES a B. KASSAI

Vydání

FUNDAMENTAL & CLINICAL PHARMACOLOGY, HOBOKEN, WILEY, 2018, 0767-3981

Další údaje

Jazyk

angličtina

Typ výsledku

Článek v odborném periodiku

Obor

30104 Pharmacology and pharmacy

Stát vydavatele

Spojené státy

Utajení

není předmětem státního či obchodního tajemství

Odkazy

URL

Impakt faktor

Impact factor: 2.229

Kód RIV

RIV/00216224:14110/18:00121483

Organizační jednotka

Lékařská fakulta

DOI

http://dx.doi.org/10.1111/fcp.12360

UT WoS

000438025300002

Klíčová slova anglicky

adolescent; advisory groups; children; clinical research; patient and public involvement; pediatrics; young person

Štítky

Excelence Science, INT, RIV, rivok, user

Příznaky

Mezinárodní význam, Recenzováno

Změněno: 28. 4. 2021 09:40, Mgr. Tereza Miškechová

Anotace

V originále

Children and young people are seen as fundamental to the design and delivery of clinical research as active and reflective participants. In Europe, involvement of children and young people in clinical research is promoted extensively in order to engage young people in research as partners and to give them a voice to raise their own issues or opinions and for their involvement in planning and decision making in addition to learning research skills. Children and young people can be trained in clinical research through participation in young person advisory groups (YPAGs). Members of YPAGs assist other children and young people to learn about clinical research and share their experience and point of view with researchers, thereby possibly influencing all phases of research including the development and prioritization of research questions, design and methods, recruitment plans, and strategies for results dissemination. In the long term, the expansion of YPAGs in Europe will serve as a driving force for refining pediatric clinical research. It will help in a better definition of research projects according to the patients' needs. Furthermore, direct engagement of children and young people in research will be favorable to both researchers and young people.

Návaznosti

90090, velká výzkumná infrastruktura

Název: CZECRIN II

Citovat

GAILLARD, S., S. MALIK, J. PRESTON, B. N. ESCALERA, P. DICKS, N. TOUIL, S. MARDIROSSIAN, J. CLAVEROL-TORRES a B. KASSAI. Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges. FUNDAMENTAL & CLINICAL PHARMACOLOGY. HOBOKEN: WILEY, 2018, roč. 32, č. 4, s. 357-362. ISSN 0767-3981. Dostupné z: https://dx.doi.org/10.1111/fcp.12360.

@article{1763956,
   author = {Gaillard, S. and Malik, S. and Preston, J. and Escalera, B. N. and Dicks, P. and Touil, N. and Mardirossian, S. and ClaverolandTorres, J. and Kassai, B.},
   article_location = {HOBOKEN},
   article_number = {4},
   doi = {http://dx.doi.org/10.1111/fcp.12360},
   keywords = {adolescent; advisory groups; children; clinical research; patient and public involvement; pediatrics; young person},
   language = {eng},
   issn = {0767-3981},
   journal = {FUNDAMENTAL & CLINICAL PHARMACOLOGY},
   title = {Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges},
   url = {https://onlinelibrary.wiley.com/doi/full/10.1111/fcp.12360},
   volume = {32},
   year = {2018}
}

TY  - JOUR
ID  - 1763956
AU  - Gaillard, S. - Malik, S. - Preston, J. - Escalera, B. N. - Dicks, P. - Touil, N. - Mardirossian, S. - Claverol-Torres, J. - Kassai, B.
PY  - 2018
TI  - Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges
JF  - FUNDAMENTAL & CLINICAL PHARMACOLOGY
VL  - 32
IS  - 4
SP  - 357-362
EP  - 357-362
PB  - WILEY
SN  - 07673981
KW  - adolescent
KW  - advisory groups
KW  - children
KW  - clinical research
KW  - patient and public involvement
KW  - pediatrics
KW  - young person
UR  - https://onlinelibrary.wiley.com/doi/full/10.1111/fcp.12360
N2  - Children and young people are seen as fundamental to the design and delivery of clinical research as active and reflective participants. In Europe, involvement of children and young people in clinical research is promoted extensively in order to engage young people in research as partners and to give them a voice to raise their own issues or opinions and for their involvement in planning and decision making in addition to learning research skills. Children and young people can be trained in clinical research through participation in young person advisory groups (YPAGs). Members of YPAGs assist other children and young people to learn about clinical research and share their experience and point of view with researchers, thereby possibly influencing all phases of research including the development and prioritization of research questions, design and methods, recruitment plans, and strategies for results dissemination. In the long term, the expansion of YPAGs in Europe will serve as a driving force for refining pediatric clinical research. It will help in a better definition of research projects according to the patients' needs. Furthermore, direct engagement of children and young people in research will be favorable to both researchers and young people.
ER  -

GAILLARD, S., S. MALIK, J. PRESTON, B. N. ESCALERA, P. DICKS, N. TOUIL, S. MARDIROSSIAN, J. CLAVEROL-TORRES a B. KASSAI. Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges. \textit{FUNDAMENTAL \&{}amp; CLINICAL PHARMACOLOGY}. HOBOKEN: WILEY, 2018, roč.~32, č.~4, s.~357-362. ISSN~0767-3981. Dostupné z: https://dx.doi.org/10.1111/fcp.12360.

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