2018
Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges
GAILLARD, S., S. MALIK, J. PRESTON, B. N. ESCALERA, P. DICKS et. al.Základní údaje
Originální název
Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges
Autoři
GAILLARD, S., S. MALIK, J. PRESTON, B. N. ESCALERA, P. DICKS, N. TOUIL, S. MARDIROSSIAN, J. CLAVEROL-TORRES a B. KASSAI
Vydání
FUNDAMENTAL & CLINICAL PHARMACOLOGY, HOBOKEN, WILEY, 2018, 0767-3981
Další údaje
Jazyk
angličtina
Typ výsledku
Článek v odborném periodiku
Obor
30104 Pharmacology and pharmacy
Stát vydavatele
Spojené státy
Utajení
není předmětem státního či obchodního tajemství
Odkazy
Impakt faktor
Impact factor: 2.229
Kód RIV
RIV/00216224:14110/18:00121483
Organizační jednotka
Lékařská fakulta
UT WoS
000438025300002
Klíčová slova anglicky
adolescent; advisory groups; children; clinical research; patient and public involvement; pediatrics; young person
Štítky
Příznaky
Mezinárodní význam, Recenzováno
Změněno: 28. 4. 2021 09:40, Mgr. Tereza Miškechová
Anotace
V originále
Children and young people are seen as fundamental to the design and delivery of clinical research as active and reflective participants. In Europe, involvement of children and young people in clinical research is promoted extensively in order to engage young people in research as partners and to give them a voice to raise their own issues or opinions and for their involvement in planning and decision making in addition to learning research skills. Children and young people can be trained in clinical research through participation in young person advisory groups (YPAGs). Members of YPAGs assist other children and young people to learn about clinical research and share their experience and point of view with researchers, thereby possibly influencing all phases of research including the development and prioritization of research questions, design and methods, recruitment plans, and strategies for results dissemination. In the long term, the expansion of YPAGs in Europe will serve as a driving force for refining pediatric clinical research. It will help in a better definition of research projects according to the patients' needs. Furthermore, direct engagement of children and young people in research will be favorable to both researchers and young people.
Návaznosti
90090, velká výzkumná infrastruktura |
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