BBMRI-ERIC Negotiator: Implementing Efficient Access to
Biobanks

J 2021

BBMRI-ERIC Negotiator: Implementing Efficient Access to Biobanks

REIHS, Robert, Rumyana PROYNOVA, Saher MAQSOOD, Maxmilian ATAIAN, Martin LABLANS et. al.

Základní údaje

Originální název

BBMRI-ERIC Negotiator: Implementing Efficient Access to Biobanks

Autoři

Vydání

Biopreservation and Biobanking, NEW ROCHELLE, MARY ANN LIEBERT, INC, 2021, 1947-5535

Další údaje

Jazyk

angličtina

Typ výsledku

Článek v odborném periodiku

Utajení

není předmětem státního či obchodního tajemství

Odkazy

URL

Impakt faktor

Impact factor: 2.256

DOI

http://dx.doi.org/10.1089/bio.2020.0144

UT WoS

000667530000001

Klíčová slova anglicky

biobanking; information technology; access; BBMRI-ERIC Negotiator

Změněno: 19. 7. 2021 10:11, Mgr. Dominik František Bučík

Anotace

V originále

Various biological resources, such as biobanks and disease-specific registries, have become indispensable resources to better understand the epidemiology and biological mechanisms of disease and are fundamental for advancing medical research. Nevertheless, biobanks and similar resources still face significant challenges to become more findable and accessible by users on both national and global scales. One of the main challenges for users is to find relevant resources using cataloging and search services such as the BBMRI-ERIC Directory, operated by European Research Infrastructure on Biobanking and Biomolecular Resources (BBMRI-ERIC), as these often do not contain the information needed by the researchers to decide if the resource has relevant material/data; these resources are only weakly characterized. Hence, the researcher is typically left with too many resources to explore and investigate. In addition, resources often have complex procedures for accessing holdings, particularly for depletable biological materials. This article focuses on designing a system for effective negotiation of access to holdings, in which a researcher can approach many resources simultaneously, while giving each resource team the ability to implement their own mechanisms to check if the material/data are available and to decide if access should be provided. The BBMRI-ERIC has developed and implemented an access and negotiation tool called the BBMRI-ERIC Negotiator. The Negotiator enables access negotiation to more than 600 biobanks from the BBMRI-ERIC Directory and other discovery services such as GBA/BBMRI-ERIC Locator or RD-Connect Finder. This article summarizes the principles that guided the design of the tool, the terminology used and underlying data model, request workflows, authentication and authorization mechanism(s), and the mechanisms and monitoring processes to stimulate the desired behavior of the resources: to effectively deliver access to biological material and data.

Citovat

REIHS, Robert, Rumyana PROYNOVA, Saher MAQSOOD, Maxmilian ATAIAN, Martin LABLANS, Philip R. QUINLAN, Emma LAWRENCE, Erinna BOWMAN, Esther VAN ENCKEVORT, Dominik František BUČÍK, Heimo MÜLLER a Petr HOLUB. BBMRI-ERIC Negotiator: Implementing Efficient Access to Biobanks. Biopreservation and Biobanking. NEW ROCHELLE: MARY ANN LIEBERT, INC, 2021, 8 s. ISSN 1947-5535. Dostupné z: https://dx.doi.org/10.1089/bio.2020.0144.

@article{1782968,
   author = {Reihs, Robert and Proynova, Rumyana and Maqsood, Saher and Ataian, Maxmilian and Lablans, Martin and Quinlan, Philip R. and Lawrence, Emma and Bowman, Erinna and van Enckevort, Esther and Bučík, Dominik František and Müller, Heimo and Holub, Petr},
   article_location = {NEW ROCHELLE},
   doi = {http://dx.doi.org/10.1089/bio.2020.0144},
   keywords = {biobanking; information technology; access; BBMRI-ERIC Negotiator},
   language = {eng},
   issn = {1947-5535},
   journal = {Biopreservation and Biobanking},
   title = {BBMRI-ERIC Negotiator: Implementing Efficient Access to Biobanks},
   url = {https://doi.org/10.1089/bio.2020.0144},
   year = {2021}
}

TY  - JOUR
ID  - 1782968
AU  - Reihs, Robert - Proynova, Rumyana - Maqsood, Saher - Ataian, Maxmilian - Lablans, Martin - Quinlan, Philip R. - Lawrence, Emma - Bowman, Erinna - van Enckevort, Esther - Bučík, Dominik František - Müller, Heimo - Holub, Petr
PY  - 2021
TI  - BBMRI-ERIC Negotiator: Implementing Efficient Access to Biobanks
JF  - Biopreservation and Biobanking
PB  - MARY ANN LIEBERT, INC
SN  - 19475535
KW  - biobanking
KW  - information technology
KW  - access
KW  - BBMRI-ERIC Negotiator
UR  - https://doi.org/10.1089/bio.2020.0144
N2  - Various biological resources, such as biobanks and disease-specific registries, have become indispensable resources to better understand the epidemiology and biological mechanisms of disease and are fundamental for advancing medical research. Nevertheless, biobanks and similar resources still face significant challenges to become more findable and accessible by users on both national and global scales. One of the main challenges for users is to find relevant resources using cataloging and search services such as the BBMRI-ERIC Directory, operated by European Research Infrastructure on Biobanking and Biomolecular Resources (BBMRI-ERIC), as these often do not contain the information needed by the researchers to decide if the resource has relevant material/data; these resources are only weakly characterized. Hence, the researcher is typically left with too many resources to explore and investigate. In addition, resources often have complex procedures for accessing holdings, particularly for depletable biological materials. This article focuses on designing a system for effective negotiation of access to holdings, in which a researcher can approach many resources simultaneously, while giving each resource team the ability to implement their own mechanisms to check if the material/data are available and to decide if access should be provided. The BBMRI-ERIC has developed and implemented an access and negotiation tool called the BBMRI-ERIC Negotiator. The Negotiator enables access negotiation to more than 600 biobanks from the BBMRI-ERIC Directory and other discovery services such as GBA/BBMRI-ERIC Locator or RD-Connect Finder. This article summarizes the principles that guided the design of the tool, the terminology used and underlying data model, request workflows, authentication and authorization mechanism(s), and the mechanisms and monitoring processes to stimulate the desired behavior of the resources: to effectively deliver access to biological material and data.
ER  -

REIHS, Robert, Rumyana PROYNOVA, Saher MAQSOOD, Maxmilian ATAIAN, Martin LABLANS, Philip R. QUINLAN, Emma LAWRENCE, Erinna BOWMAN, Esther VAN ENCKEVORT, Dominik František BUČÍK, Heimo MÜLLER a Petr HOLUB. BBMRI-ERIC Negotiator: Implementing Efficient Access to Biobanks. \textit{Biopreservation and Biobanking}. NEW ROCHELLE: MARY ANN LIEBERT, INC, 2021, 8 s. ISSN~1947-5535. Dostupné z: https://dx.doi.org/10.1089/bio.2020.0144.

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