| BANNIER, E., G. BARKER, V. BORGHESANI, N. BROECKX, P. CLEMENT, K. E. EMBLEM, S. GHOSH, E. GLEREAN, K. J. GORGOLEWSKI, M. HAVU, Y. O. HALCHENKO, P. HERHOLZ, A. HESPEL, S. HEUNIS, Y. HU, C. P. HU, D. HUIJSER, M. D. VAYA, Radim JANČÁLEK, V. K. KATSAROS, M. L. KIESELER, C. MAUMET, C. A. MOREAU, H. J. MUTSAERTS, R. OOSTENVELD, E. OZTURK-ISIK, N. P. L. ESPINOSA, J. PELLMAN, C. R. PERNET, F. B. PIZZINI, A. S. TRBALIC, P. J. TOUSSAINT, M. V. D. CASTELLO, F. J. WANG, C. WANG a H. ZHU. The Open Brain Consent: Informing research participants and obtaining consent to share brain imaging data. Human Brain mapping. Hoboken: Wiley, 2021, roč. 42, č. 7, s. 1945-1951. ISSN 1065-9471. Dostupné z: https://dx.doi.org/10.1002/hbm.25351. |
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@article{1786782,
author = {Bannier, E. and Barker, G. and Borghesani, V. and Broeckx, N. and Clement, P. and Emblem, K. E. and Ghosh, S. and Glerean, E. and Gorgolewski, K. J. and Havu, M. and Halchenko, Y. O. and Herholz, P. and Hespel, A. and Heunis, S. and Hu, Y. and Hu, C. P. and Huijser, D. and Vaya, M. D. and Jančálek, Radim and Katsaros, V. K. and Kieseler, M. L. and Maumet, C. and Moreau, C. A. and Mutsaerts, H. J. and Oostenveld, R. and OzturkandIsik, E. and Espinosa, N. P. L. and Pellman, J. and Pernet, C. R. and Pizzini, F. B. and Trbalic, A. S. and Toussaint, P. J. and Castello, M. V. D. and Wang, F. J. and Wang, C. and Zhu, H.},
article_location = {Hoboken},
article_number = {7},
doi = {http://dx.doi.org/10.1002/hbm.25351},
keywords = {brain imaging; general data protection regulation; informed consent},
language = {eng},
issn = {1065-9471},
journal = {Human Brain mapping},
title = {The Open Brain Consent: Informing research participants and obtaining consent to share brain imaging data},
url = {https://onlinelibrary.wiley.com/doi/10.1002/hbm.25351},
volume = {42},
year = {2021}
}
TY - JOUR
ID - 1786782
AU - Bannier, E. - Barker, G. - Borghesani, V. - Broeckx, N. - Clement, P. - Emblem, K. E. - Ghosh, S. - Glerean, E. - Gorgolewski, K. J. - Havu, M. - Halchenko, Y. O. - Herholz, P. - Hespel, A. - Heunis, S. - Hu, Y. - Hu, C. P. - Huijser, D. - Vaya, M. D. - Jančálek, Radim - Katsaros, V. K. - Kieseler, M. L. - Maumet, C. - Moreau, C. A. - Mutsaerts, H. J. - Oostenveld, R. - Ozturk-Isik, E. - Espinosa, N. P. L. - Pellman, J. - Pernet, C. R. - Pizzini, F. B. - Trbalic, A. S. - Toussaint, P. J. - Castello, M. V. D. - Wang, F. J. - Wang, C. - Zhu, H.
PY - 2021
TI - The Open Brain Consent: Informing research participants and obtaining consent to share brain imaging data
JF - Human Brain mapping
VL - 42
IS - 7
SP - 1945-1951
EP - 1945-1951
PB - Wiley
SN - 10659471
KW - brain imaging
KW - general data protection regulation
KW - informed consent
UR - https://onlinelibrary.wiley.com/doi/10.1002/hbm.25351
N2 - Having the means to share research data openly is essential to modern science. For human research, a key aspect in this endeavor is obtaining consent from participants, not just to take part in a study, which is a basic ethical principle, but also to share their data with the scientific community. To ensure that the participants' privacy is respected, national and/or supranational regulations and laws are in place. It is, however, not always clear to researchers what the implications of those are, nor how to comply with them. The Open Brain Consent (https://open-brain-consent.readthedocs.io) is an international initiative that aims to provide researchers in the brain imaging community with information about data sharing options and tools. We present here a short history of this project and its latest developments, and share pointers to consent forms, including a template consent form that is compliant with the EU general data protection regulation. We also share pointers to an associated data user agreement that is not only useful in the EU context, but also for any researchers dealing with personal (clinical) data elsewhere.
ER -
BANNIER, E., G. BARKER, V. BORGHESANI, N. BROECKX, P. CLEMENT, K. E. EMBLEM, S. GHOSH, E. GLEREAN, K. J. GORGOLEWSKI, M. HAVU, Y. O. HALCHENKO, P. HERHOLZ, A. HESPEL, S. HEUNIS, Y. HU, C. P. HU, D. HUIJSER, M. D. VAYA, Radim JANČÁLEK, V. K. KATSAROS, M. L. KIESELER, C. MAUMET, C. A. MOREAU, H. J. MUTSAERTS, R. OOSTENVELD, E. OZTURK-ISIK, N. P. L. ESPINOSA, J. PELLMAN, C. R. PERNET, F. B. PIZZINI, A. S. TRBALIC, P. J. TOUSSAINT, M. V. D. CASTELLO, F. J. WANG, C. WANG a H. ZHU. The Open Brain Consent: Informing research participants and obtaining consent to share brain imaging data. \textit{Human Brain mapping}. Hoboken: Wiley, 2021, roč.~42, č.~7, s.~1945-1951. ISSN~1065-9471. Dostupné z: https://dx.doi.org/10.1002/hbm.25351.
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