DEMLOVÁ, Regina. European Joint Programme Rare Diseases NSS/ECRIN. 2021.
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Basic information
Original name European Joint Programme Rare Diseases NSS/ECRIN
Authors DEMLOVÁ, Regina (203 Czech Republic, guarantor, belonging to the institution).
Edition 2021.
Other information
Original language English
Type of outcome Organization of a conference
Field of Study 30230 Other clinical medicine subjects
Country of publisher Czech Republic
Confidentiality degree is not subject to a state or trade secret
WWW URL
RIV identification code RIV/00216224:14110/21:00123781
Organization unit Faculty of Medicine
Keywords (in Czech) Rare diseases; FAIR principles; research methodologies
Keywords in English Rare diseases; FAIR principles; research methodologies
Tags conference, ECRIN, MU, RIV, rivok
Tags International impact
Changed by Changed by: Mgr. Tereza Miškechová, učo 341652. Changed: 8/2/2022 10:46.
Abstract
Rare diseases are a major challenge that requires integrated and collaborative efforts from a wide range of stakeholders. To take rare disease collaborative research in Europe to the next level and support achievement of the IRDiRC 2027 goals, the European Commission has approved the European Joint Programme on Rare Diseases (EJP-RD), an EU-wide and patient-centred initiative to foster rare disease research from bench to bedside and back. The programme, due to launch in January 2019, will receive 55 million EUR over 5 years to establish a comprehensive strategy covering funding, research, data, training, tools and clinical aspects to increase the efficiency of results use, diagnosis, drug discovery, patient care and to empowering all stakeholders.
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90128, large research infrastructuresName: CZECRIN III
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