European Reference Network for rare adult solid cancers,
statement and integration to health care systems of member
states: a position paper of the ERN EURACAN

J 2021

European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN

BLAY, J.Y., P. CASALI, C. BOUVIER, C. DEHAIS, I. GALLOWAY et. al.

Základní údaje

Originální název

European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN

Autoři

BLAY, J.Y. (garant), P. CASALI, C. BOUVIER, C. DEHAIS, I. GALLOWAY, J. GIETEMA, Jana HALÁMKOVÁ (203 Česká republika, domácí), N. HINDI, A. IDBAIH, E. KINLOCH, H.J. KLUMPEN, T. KOLAROVA, K. KOPECKOVA, J. LOVEY, M. MAGALHAES, K. OSELIN, S. PIPERNO-NEUMANN, A. RAVNSBAEK, M. ROGASIK, A. SAFWAT, S. SCHEIPL, M. SECKL, J. TAYLOR, M. TEMNYK, A. TRAMA, M. URBONAS, M. WARTENBERG a A. WEINMAN

Vydání

ESMO OPEN, LONDON, BMJ PUBLISHING GROUP, 2021, 2059-7029

Další údaje

Jazyk

angličtina

Typ výsledku

Článek v odborném periodiku

Obor

30230 Other clinical medicine subjects

Stát vydavatele

Nizozemské království

Utajení

není předmětem státního či obchodního tajemství

Odkazy

URL

Impakt faktor

Impact factor: 6.883

Kód RIV

RIV/00216224:14110/21:00124404

Organizační jednotka

Lékařská fakulta

DOI

http://dx.doi.org/10.1016/j.esmoop.2021.100174

UT WoS

000703610200044

Klíčová slova česky

ERN; European Reference Network; EU; European Union; EURACAN; ESMO; solid cancers;

Klíčová slova anglicky

ERN; European Reference Network; EU; European Union; EURACAN; ESMO; solid cancers;

Štítky

Excelence Science, INT, MU, operator, RIV

Příznaky

Mezinárodní význam, Recenzováno

Změněno: 16. 3. 2022 11:04, Bc. Hana Vladíková, BBA

Anotace

V originále

A better understanding of the biology of rare cancers, an improved access to optimal diagnosis, to effective therapies, and to evidence-based treatment guidelines will all improve the outcome of patients with rare cancers. Still, disparities exist across Europe between countries and regions, with heterogeneous patient pathways, and different points of access contacted for initial health care management. Health migration issues also need to be addressed to reduce inequities in care for the European patient.

Návaznosti

LM2018128, projekt VaV

Název: Český národní uzel Evropské sítě infrastruktur klinického výzkumu (Akronym: CZECRIN)

Investor: Ministerstvo školství, mládeže a tělovýchovy ČR, Český národní uzel Evropské sítě infrastruktur klinického výzkumu (CZECRIN)

Citovat

BLAY, J.Y., P. CASALI, C. BOUVIER, C. DEHAIS, I. GALLOWAY, J. GIETEMA, Jana HALÁMKOVÁ, N. HINDI, A. IDBAIH, E. KINLOCH, H.J. KLUMPEN, T. KOLAROVA, K. KOPECKOVA, J. LOVEY, M. MAGALHAES, K. OSELIN, S. PIPERNO-NEUMANN, A. RAVNSBAEK, M. ROGASIK, A. SAFWAT, S. SCHEIPL, M. SECKL, J. TAYLOR, M. TEMNYK, A. TRAMA, M. URBONAS, M. WARTENBERG a A. WEINMAN. European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN. ESMO OPEN. LONDON: BMJ PUBLISHING GROUP, 2021, roč. 6, č. 4, s. 1-10. ISSN 2059-7029. Dostupné z: https://dx.doi.org/10.1016/j.esmoop.2021.100174.

@article{1840919,
   author = {Blay, J.Y. and Casali, P. and Bouvier, C. and Dehais, C. and Galloway, I. and Gietema, J. and Halámková, Jana and Hindi, N. and Idbaih, A. and Kinloch, E. and Klumpen, H.J. and Kolarova, T. and Kopeckova, K. and Lovey, J. and Magalhaes, M. and Oselin, K. and PipernoandNeumann, S. and Ravnsbaek, A. and Rogasik, M. and Safwat, A. and Scheipl, S. and Seckl, M. and Taylor, J. and Temnyk, M. and Trama, A. and Urbonas, M. and Wartenberg, M. and Weinman, A.},
   article_location = {LONDON},
   article_number = {4},
   doi = {http://dx.doi.org/10.1016/j.esmoop.2021.100174},
   keywords = {ERN; European Reference Network; EU; European Union; EURACAN; ESMO; solid cancers;},
   language = {eng},
   issn = {2059-7029},
   journal = {ESMO OPEN},
   title = {European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN},
   url = {https://www.sciencedirect.com/science/article/pii/S2059702921001344?via%3Dihub},
   volume = {6},
   year = {2021}
}

TY  - JOUR
ID  - 1840919
AU  - Blay, J.Y. - Casali, P. - Bouvier, C. - Dehais, C. - Galloway, I. - Gietema, J. - Halámková, Jana - Hindi, N. - Idbaih, A. - Kinloch, E. - Klumpen, H.J. - Kolarova, T. - Kopeckova, K. - Lovey, J. - Magalhaes, M. - Oselin, K. - Piperno-Neumann, S. - Ravnsbaek, A. - Rogasik, M. - Safwat, A. - Scheipl, S. - Seckl, M. - Taylor, J. - Temnyk, M. - Trama, A. - Urbonas, M. - Wartenberg, M. - Weinman, A.
PY  - 2021
TI  - European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN
JF  - ESMO OPEN
VL  - 6
IS  - 4
SP  - 1-10
EP  - 1-10
PB  - BMJ PUBLISHING GROUP
SN  - 20597029
KW  - ERN
KW  - European Reference Network
KW  - EU
KW  - European Union
KW  - EURACAN
KW  - ESMO
KW  - solid cancers;
UR  - https://www.sciencedirect.com/science/article/pii/S2059702921001344?via%3Dihub
N2  - A better understanding of the biology of rare cancers, an improved access to optimal diagnosis, to effective therapies, and to evidence-based treatment guidelines will all improve the outcome of patients with rare cancers. Still, disparities exist across Europe between countries and regions, with heterogeneous patient pathways, and different points of access contacted for initial health care management. Health migration issues also need to be addressed to reduce inequities in care for the European patient.
ER  -

BLAY, J.Y., P. CASALI, C. BOUVIER, C. DEHAIS, I. GALLOWAY, J. GIETEMA, Jana HALÁMKOVÁ, N. HINDI, A. IDBAIH, E. KINLOCH, H.J. KLUMPEN, T. KOLAROVA, K. KOPECKOVA, J. LOVEY, M. MAGALHAES, K. OSELIN, S. PIPERNO-NEUMANN, A. RAVNSBAEK, M. ROGASIK, A. SAFWAT, S. SCHEIPL, M. SECKL, J. TAYLOR, M. TEMNYK, A. TRAMA, M. URBONAS, M. WARTENBERG a A. WEINMAN. European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN. \textit{ESMO OPEN}. LONDON: BMJ PUBLISHING GROUP, 2021, roč.~6, č.~4, s.~1-10. ISSN~2059-7029. Dostupné z: https://dx.doi.org/10.1016/j.esmoop.2021.100174.

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