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@article{2250983,
author = {Sedlackova, Dagmar and Kantor, Jiri and Domischova, Ivona and Kantorová, Lucia},
article_location = {Hoboken},
article_number = {1},
doi = {http://dx.doi.org/10.1111/bld.12443},
keywords = {challenges; lived experiences; mothers; multiple disability; profound intellectual and multiple disability; services},
language = {eng},
issn = {1354-4187},
journal = {BRITISH JOURNAL OF LEARNING DISABILITIES},
title = {Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic},
url = {https://onlinelibrary.wiley.com/doi/10.1111/bld.12443},
volume = {51},
year = {2023}
}
TY - JOUR
ID - 2250983
AU - Sedlackova, Dagmar - Kantor, Jiri - Domischova, Ivona - Kantorová, Lucia
PY - 2023
TI - Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic
JF - BRITISH JOURNAL OF LEARNING DISABILITIES
VL - 51
IS - 1
SP - 3-12
EP - 3-12
PB - WILEY
SN - 13544187
KW - challenges
KW - lived experiences
KW - mothers
KW - multiple disability
KW - profound intellectual and multiple disability
KW - services
UR - https://onlinelibrary.wiley.com/doi/10.1111/bld.12443
N2 - Background The objective of this study is to explore experiences of Czech mothers caring for children with profound intellectual and multiple disabilities. Methods Semistructured interviews combined with biographical narration of mothers of children with profound intellectual and multiple disabilities and a short questionnaire for demographic data were used for data collection. Data analyses were carried out according to Van Manen's approach, including defining the main themes and description of the lived experiences of mothers. Findings The dominant themes that emerged from the interviews were (1) losses and limits, (2) increased demands and exhaustion, (3) worries, (4) challenges connected to help and support, (5) transformation, (6) pleasures with contentment of the child and a small development and (7) functional support. Conclusions The findings demonstrate that mothers of children with profound intellectual and multiple disabilities are at risk of facing many kinds of life difficulties, but the children have also positive impact on the mothers' lives. Relevant professionals and policy makers should be aware of the needs and challenges experienced by this vulnerable population.
ER -
SEDLACKOVA, Dagmar, Jiri KANTOR, Ivona DOMISCHOVA and Lucia KANTOROVÁ. Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic. \textit{BRITISH JOURNAL OF LEARNING DISABILITIES}. Hoboken: WILEY, 2023, vol.~51, No~1, p.~3-12. ISSN~1354-4187. Available from: https://dx.doi.org/10.1111/bld.12443.
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