The Chronic Angioedema Registry (CARE): Rationale, Methods and Implementation
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BUTTGEREIT, T, F AULENBACHER, A GUTSCHE, P KOLKHIR, K WELLER, Vera Ayala C, M MAGERL, H FARKAS, A S GRUMACH, E AYGOEREN-PUERSUEN, N BARA, M BEN-SHOSHAN, J BERNSTEIN, S BETSCHEL, L BOUILLET, T CABALLERO, M CANCIAN, A J CASTALDO, S CIMBOLLEK, D M COHN, T CRAIG, D FOMINA, A GELINCIK, V GRIVCHEVA-PANOVSKA, A JINDAL, C KATELARIS, A KESSEL, T KINACIYAN, H J LONGHURST, I MARTINEZ-SAGUER, M RIEDL, C SCHOEFFL, P STAUBACH, A ZANICHELLI, Y ZHI, Balle Boysen H, J S FOK, P H LI, Roman HAKL, M HIDE, J PETER a M MAURER
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CLINICAL AND EXPERIMENTAL ALLERGY, Hoboken, WILEY, 2024, 0954-7894
Angioedema (AE) is a paroxysmal, localised and self-limiting swelling of the subcutaneous and/or submucosal tissue, because of a temporary increase in vascular permeability. Recurrent AE is a heterogeneous disease, which is categorised into different types. Clinical and sociodemographic core factors in AE remain insufficiently investigated. A need exists for a large, comprehensive worldwide registry for all types of recurrent AE, applying modern methodologies and parameters from recent scientific knowledge.
BUTTGEREIT, T, F AULENBACHER, A GUTSCHE, P KOLKHIR, K WELLER, Vera Ayala C, M MAGERL, H FARKAS, A S GRUMACH, E AYGOEREN-PUERSUEN, N BARA, M BEN-SHOSHAN, J BERNSTEIN, S BETSCHEL, L BOUILLET, T CABALLERO, M CANCIAN, A J CASTALDO, S CIMBOLLEK, D M COHN, T CRAIG, D FOMINA, A GELINCIK, V GRIVCHEVA-PANOVSKA, A JINDAL, C KATELARIS, A KESSEL, T KINACIYAN, H J LONGHURST, I MARTINEZ-SAGUER, M RIEDL, C SCHOEFFL, P STAUBACH, A ZANICHELLI, Y ZHI, Balle Boysen H, J S FOK, P H LI, Roman HAKL, M HIDE, J PETER a M MAURER. The Chronic Angioedema Registry (CARE): Rationale, Methods and Implementation. CLINICAL AND EXPERIMENTAL ALLERGY. Hoboken: WILEY, 2024, 5 s. ISSN 0954-7894. Dostupné z: https://dx.doi.org/10.1111/cea.14527.
@article{2417976, author = {Buttgereit, T and Aulenbacher, F and Gutsche, A and Kolkhir, P and Weller, K and C, Vera Ayala and Magerl, M and Farkas, H and Grumach, A S and AygoerenandPuersuen, E and Bara, N and BenandShoshan, M and Bernstein, J and Betschel, S and Bouillet, L and Caballero, T and Cancian, M and Castaldo, A J and Cimbollek, S and Cohn, D M and Craig, T and Fomina, D and Gelincik, A and GrivchevaandPanovska, V and Jindal, A and Katelaris, C and Kessel, A and Kinaciyan, T and Longhurst, H J and MartinezandSaguer, I and Riedl, M and Schoeffl, C and Staubach, P and Zanichelli, A and Zhi, Y and H, Balle Boysen and Fok, J S and Li, P H and Hakl, Roman and Hide, M and Peter, J and Maurer, M}, article_location = {Hoboken}, doi = {http://dx.doi.org/10.1111/cea.14527}, keywords = {ACARE; angioedema; CARE; chronic; registry}, language = {eng}, issn = {0954-7894}, journal = {CLINICAL AND EXPERIMENTAL ALLERGY}, title = {The Chronic Angioedema Registry (CARE): Rationale, Methods and Implementation}, url = {https://onlinelibrary.wiley.com/doi/10.1111/cea.14527}, year = {2024} }
TY - JOUR ID - 2417976 AU - Buttgereit, T - Aulenbacher, F - Gutsche, A - Kolkhir, P - Weller, K - C, Vera Ayala - Magerl, M - Farkas, H - Grumach, A S - Aygoeren-Puersuen, E - Bara, N - Ben-Shoshan, M - Bernstein, J - Betschel, S - Bouillet, L - Caballero, T - Cancian, M - Castaldo, A J - Cimbollek, S - Cohn, D M - Craig, T - Fomina, D - Gelincik, A - Grivcheva-Panovska, V - Jindal, A - Katelaris, C - Kessel, A - Kinaciyan, T - Longhurst, H J - Martinez-Saguer, I - Riedl, M - Schoeffl, C - Staubach, P - Zanichelli, A - Zhi, Y - H, Balle Boysen - Fok, J S - Li, P H - Hakl, Roman - Hide, M - Peter, J - Maurer, M PY - 2024 TI - The Chronic Angioedema Registry (CARE): Rationale, Methods and Implementation JF - CLINICAL AND EXPERIMENTAL ALLERGY PB - WILEY SN - 09547894 KW - ACARE KW - angioedema KW - CARE KW - chronic KW - registry UR - https://onlinelibrary.wiley.com/doi/10.1111/cea.14527 N2 - Angioedema (AE) is a paroxysmal, localised and self-limiting swelling of the subcutaneous and/or submucosal tissue, because of a temporary increase in vascular permeability. Recurrent AE is a heterogeneous disease, which is categorised into different types. Clinical and sociodemographic core factors in AE remain insufficiently investigated. A need exists for a large, comprehensive worldwide registry for all types of recurrent AE, applying modern methodologies and parameters from recent scientific knowledge. ER -
BUTTGEREIT, T, F AULENBACHER, A GUTSCHE, P KOLKHIR, K WELLER, Vera Ayala C, M MAGERL, H FARKAS, A S GRUMACH, E AYGOEREN-PUERSUEN, N BARA, M BEN-SHOSHAN, J BERNSTEIN, S BETSCHEL, L BOUILLET, T CABALLERO, M CANCIAN, A J CASTALDO, S CIMBOLLEK, D M COHN, T CRAIG, D FOMINA, A GELINCIK, V GRIVCHEVA-PANOVSKA, A JINDAL, C KATELARIS, A KESSEL, T KINACIYAN, H J LONGHURST, I MARTINEZ-SAGUER, M RIEDL, C SCHOEFFL, P STAUBACH, A ZANICHELLI, Y ZHI, Balle Boysen H, J S FOK, P H LI, Roman HAKL, M HIDE, J PETER a M MAURER. The Chronic Angioedema Registry (CARE): Rationale, Methods and Implementation. \textit{CLINICAL AND EXPERIMENTAL ALLERGY}. Hoboken: WILEY, 2024, 5 s. ISSN~0954-7894. Dostupné z: https://dx.doi.org/10.1111/cea.14527.