2024
florio® HAEMO: A Longitudinal Survey of Patient Preference, Adherence and Wearable Functionality in Central Europe
ZAPOTOCKA, Ester, Angelika BATOROVA, Ernest BILIC, Ana BOBAN, Carmen Escuriola ETTINGSHAUSEN et. al.Základní údaje
Originální název
florio® HAEMO: A Longitudinal Survey of Patient Preference, Adherence and Wearable Functionality in Central Europe
Autoři
ZAPOTOCKA, Ester (203 Česká republika), Angelika BATOROVA (703 Slovensko), Ernest BILIC (191 Chorvatsko), Ana BOBAN (191 Chorvatsko), Carmen Escuriola ETTINGSHAUSEN (276 Německo), Barbara FAGANEL KOTNIK (705 Slovinsko), Radomira HRDLICKOVA (203 Česká republika), Pawel LAGUNA (616 Polsko), Jan MÁCHAL (203 Česká republika, domácí), Laszlo NEMES (348 Maďarsko), Irena PRELOZNIK ZUPAN (705 Slovinsko), Gediminas PURAS (756 Švýcarsko) a Marianna ZOMBORI (348 Maďarsko)
Vydání
ADVANCES IN THERAPY, NEW YORK, SPRINGER, 2024, 0741-238X
Další údaje
Jazyk
angličtina
Typ výsledku
Článek v odborném periodiku
Obor
30205 Hematology
Stát vydavatele
Spojené státy
Utajení
není předmětem státního či obchodního tajemství
Odkazy
Impakt faktor
Impact factor: 3.800 v roce 2022
Organizační jednotka
Lékařská fakulta
UT WoS
001226881300001
Klíčová slova anglicky
Hemophilia; Wearable; Florio HAEMO; Adherence; Patient satisfaction
Příznaky
Mezinárodní význam, Recenzováno
Změněno: 16. 8. 2024 08:04, Mgr. Tereza Miškechová
Anotace
V originále
Introduction: florio (R) HAEMO is a hemophilia treatment monitoring application (app) offering activity tracking and wearable device connectivity. Its use might support everyday activities for people with hemophilia. The aim of this study was to evaluate user satisfaction, long-term usage and the impact on data entry when pairing a wearable with a hemophilia monitoring app. Methods: This is a follow-up of a two-part user survey conducted in Central Europe. People with hemophilia and parents/caregivers of children with hemophilia using florio HAEMO and who completed part one were invited to complete a second online questionnaire at least 4 months later. Results: Fifty participants (83.3%) who completed part one of the survey continued to use the florio HAEMO app and completed part two. Of 14 participants who chose to use the app with a wearable, more than half (57.1%) were aged between 13 and 25 years. Overall, the results demonstrated that florio HAEMO is very easy or rather easy to use, especially for individuals pairing the app with a wearable. Most people using a wearable indicated that florio HAEMO was very or rather important in bringing certainty to daily activities (85.7%). Notably, 14 of 36 (38.9%) non-wearable users indicated that they would prefer to pair the app with a wearable in the future. Conclusions: Adherence to the florio HAEMO app is maintained over an extended period of use. Pairing the app with a wearable might enable easier access to app features, increase data entry motivation and provide more certainty about daily activities for people with hemophilia.