Opinion on Application of the ERN model in European cross
border healthcare cooperation outside the rare diseases area

u 2018

Opinion on Application of the ERN model in European cross border healthcare cooperation outside the rare diseases area

MCKEE, M.; W. RICCIARDI; S. NUTI; L. LEHTONEN; D. KRINGOS et al.

Základní údaje

Originální název

Opinion on Application of the ERN model in European cross border healthcare cooperation outside the rare diseases area

Autoři

MCKEE, M.; W. RICCIARDI; S. NUTI; L. LEHTONEN; D. KRINGOS; Aleš BOUREK; J. DE MAESENEER; C. ANASTASY a L. SICILIANI

Vydání

Luxembourg, 40 s. Expert Panel on effective ways of investing in Health, 2018

Nakladatel

Publications Office of the European Union

Další údaje

Jazyk

angličtina

Typ výsledku

Účelové publikace

Obor

30304 Public and environmental health

Stát vydavatele

Lucembursko

Utajení

není předmětem státního či obchodního tajemství

Odkazy

URL

Označené pro přenos do RIV

Ano

Kód RIV

RIV/00216224:14110/18:00106244

Organizační jednotka

Lékařská fakulta

ISBN

978-92-79-97291-1

DOI

https://doi.org/10.2875/211563

Klíčová slova anglicky

ERN model European cross border healthcare cooperation

Štítky

rivok

Příznaky

Mezinárodní význam, Recenzováno

Změněno: 22. 2. 2019 13:14, Soňa Böhmová

Anotace

V originále

Application of the ERN model in European cross - border healthcare cooperation 4 SUMMARY European Reference Networks (ERNs) were created by the Directive on the Application of Patients’ Rights in Cross - Border Healthcare. They offer a means by which patients with rare and complex diseases can gain access to highly specialised knowledge from across the European Union. The Expert Panel has been a sked to advise on areas that can benefit most from the ERN model, options for the new networks in the longer term and the roles that they might assume, and how best national health systems could integrate networks into their national frameworks. ERNs are still a very new concept, having been launched in March 2017. So far, 24 have been established, bringing together over 300 hospitals from 26 M ember S tates. Given the short time that they have been operating, the Expert Panel concluded that it was premature to draw any conclusions on their effectiveness. Instead, it sought to understand how other networks with similar goals have operated within member states and the lessons that have been learned, coupled with interviews with two of the coordinators of exist ing ERNs. The Expert Panel concluded that, while ERNs have considerable potential to improve the care of patients with rare diseases across the EU, both through advice on the management of individual patients, as well as through collaboration on research and development of guidelines, it is not yet possible to ascertain the extent to which these goals will be achieved. The Expert Panel also identified several issues which, even at this stage, appeared to need to be addressed, including long - term financial sustainability and the implementation of effective IT systems.

Citovat

MCKEE, M.; W. RICCIARDI; S. NUTI; L. LEHTONEN; D. KRINGOS; Aleš BOUREK; J. DE MAESENEER; C. ANASTASY a L. SICILIANI. Opinion on Application of the ERN model in European cross border healthcare cooperation outside the rare diseases area. Luxembourg: Publications Office of the European Union, 2018, 40 s. Expert Panel on effective ways of investing in Health. ISBN 978-92-79-97291-1. Dostupné z: https://doi.org/10.2875/211563.

@misc{1498137,
   author = {McKee, M. and Ricciardi, W. and Nuti, S. and Lehtonen, L. and Kringos, D. and Bourek, Aleš and De Maeseneer, J. and Anastasy, C. and Siciliani, L.},
   address = {Luxembourg},
   doi = {https://doi.org/10.2875/211563},
   keywords = {ERN model European cross border healthcare cooperation},
   language = {eng},
   location = {Luxembourg},
   isbn = {978-92-79-97291-1},
   publisher = {Publications Office of the European Union},
   title = {Opinion on Application of the ERN model in European cross border healthcare cooperation outside the rare diseases area},
   url = {https://ec.europa.eu/health/expert_panel/sites/expertpanel/files/021_erns_en.pdf},
   year = {2018}
}

TY  - GEN
ID  - 1498137
AU  - McKee, M. - Ricciardi, W. - Nuti, S. - Lehtonen, L. - Kringos, D. - Bourek, Aleš - De Maeseneer, J. - Anastasy, C. - Siciliani, L.
PY  - 2018
TI  - Opinion on Application of the ERN model in European cross border healthcare cooperation outside the rare diseases area
VL  - Expert Panel on effective ways of investing in Health
PB  - Publications Office of the European Union
CY  - Luxembourg
SN  - 9789279972911
KW  - ERN model European cross border healthcare cooperation
UR  - https://ec.europa.eu/health/expert_panel/sites/expertpanel/files/021_erns_en.pdf
L2  - https://ec.europa.eu/health/expert_panel/sites/expertpanel/files/021_erns_en.pdf
N2  - Application of the ERN model in European cross - border healthcare cooperation 4 SUMMARY European Reference Networks (ERNs) were created by the Directive on the Application of Patients’ Rights in Cross - Border Healthcare. They offer a means by which patients with rare and complex diseases can gain access to highly specialised knowledge from across the European Union. The Expert Panel has been a sked to advise on areas that can benefit most from the ERN model, options for the new networks in the longer term and the roles that they might assume, and how best national health systems could integrate networks into their national frameworks. ERNs are still a very new concept, having been launched in March 2017. So far, 24 have been established, bringing together over 300 hospitals from 26 M ember S tates. Given the short time that they have been operating, the Expert Panel concluded that it was premature to draw any conclusions on their effectiveness. Instead, it sought to understand how other networks with similar goals have operated within member states and the lessons that have been learned, coupled with interviews with two of the coordinators of exist ing ERNs. The Expert Panel concluded that, while ERNs have considerable potential to improve the care of patients with rare diseases across the EU, both through advice on the management of individual patients, as well as through collaboration on research and development of guidelines, it is not yet possible to ascertain the extent to which these goals will be achieved. The Expert Panel also identified several issues which, even at this stage, appeared to need to be addressed, including long - term financial sustainability and the implementation of effective IT systems.
ER  -

MCKEE, M.; W. RICCIARDI; S. NUTI; L. LEHTONEN; D. KRINGOS; Aleš BOUREK; J. DE MAESENEER; C. ANASTASY a L. SICILIANI. \textit{Opinion on Application of the ERN model in European cross border healthcare cooperation outside the rare diseases area}. Luxembourg: Publications Office of the European Union, 2018, 40 s. Expert Panel on effective ways of investing in Health. ISBN~978-92-79-97291-1. Dostupné z: https://doi.org/10.2875/211563.

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