HOLUB, Petr, Florian KOHLMAYER, Fabian PRASSER, Michaela Theresia MAYRHOFER, Irene SCHLUNDER, Gillian M. MARTIN, Sara CASATI, Lefteris KOUMAKIS, Andrea WUTTE, Lukas KOZERA, Dominik STRAPAGIEL, Gabriele ANTON, Gianluigi ZANETTI, Osman Ugur SEZERMAN, Maimuna MENDY, Dalibor VALÍK, Marialuisa LAVITRANO, Georges DAGHER, Kurt ZATLOUKAL, GertJan B. VAN OMMEN a Jan-Eric LITTON. Enhancing Reuse of Data and Biological Material in Medical Research: From FAIR to FAIR-Health. Biopreservation and Biobanking, NEW ROCHELLE: MARY ANN LIEBERT, INC, 2018, roč. 16, č. 2, s. 97-105. ISSN 1947-5535. doi:10.1089/bio.2017.0110.
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Základní údaje
Originální název Enhancing Reuse of Data and Biological Material in Medical Research: From FAIR to FAIR-Health
Autoři HOLUB, Petr, Florian KOHLMAYER, Fabian PRASSER, Michaela Theresia MAYRHOFER, Irene SCHLUNDER, Gillian M. MARTIN, Sara CASATI, Lefteris KOUMAKIS, Andrea WUTTE, Lukas KOZERA, Dominik STRAPAGIEL, Gabriele ANTON, Gianluigi ZANETTI, Osman Ugur SEZERMAN, Maimuna MENDY, Dalibor VALÍK, Marialuisa LAVITRANO, Georges DAGHER, Kurt ZATLOUKAL, GertJan B. VAN OMMEN a Jan-Eric LITTON.
Vydání Biopreservation and Biobanking, NEW ROCHELLE, MARY ANN LIEBERT, INC, 2018, 1947-5535.
Další údaje
Originální jazyk angličtina
Typ výsledku Článek v odborném periodiku
Obor 10201 Computer sciences, information science, bioinformatics
Stát vydavatele Spojené státy
Utajení není předmětem státního či obchodního tajemství
WWW URL
Impakt faktor Impact factor: 1.362
Doi http://dx.doi.org/10.1089/bio.2017.0110
UT WoS 000423127500001
Klíčová slova anglicky FAIR (Findable, Accessible, Interoperable, and Reusable) principles; provenance information management; privacy protection; open science; quality; incentives
Změnil Změnil: doc. RNDr. Petr Holub, Ph.D., učo 3248. Změněno: 28. 5. 2019 18:55.
Anotace
The known challenge of underutilization of data and biological material from biorepositories as potential resources for medical research has been the focus of discussion for over a decade. Recently developed guidelines for improved data availability and reusability-entitled FAIR Principles (Findability, Accessibility, Interoperability, and Reusability)-are likely to address only parts of the problem. In this article, we argue that biological material and data should be viewed as a unified resource. This approach would facilitate access to complete provenance information, which is a prerequisite for reproducibility and meaningful integration of the data. A unified view also allows for optimization of long-term storage strategies, as demonstrated in the case of biobanks. We propose an extension of the FAIR Principles to include the following additional components: (1) quality aspects related to research reproducibility and meaningful reuse of the data, (2) incentives to stimulate effective enrichment of data sets and biological material collections and its reuse on all levels, and (3) privacy-respecting approaches for working with the human material and data. These FAIR-Health principles should then be applied to both the biological material and data. We also propose the development of common guidelines for cloud architectures, due to the unprecedented growth of volume and breadth of medical data generation, as well as the associated need to process the data efficiently.
VytisknoutZobrazeno: 25. 10. 2020 02:36