The Open Brain Consent: Informing research participants and obtaining consent to share brain imaging data

BANNIER, E., G. BARKER, V. BORGHESANI, N. BROECKX, P. CLEMENT, K. E. EMBLEM, S. GHOSH, E. GLEREAN, K. J. GORGOLEWSKI, M. HAVU, Y. O. HALCHENKO, P. HERHOLZ, A. HESPEL, S. HEUNIS, Y. HU, C. P. HU, D. HUIJSER, M. D. VAYA, Radim JANČÁLEK, V. K. KATSAROS, M. L. KIESELER, C. MAUMET, C. A. MOREAU, H. J. MUTSAERTS, R. OOSTENVELD, E. OZTURK-ISIK, N. P. L. ESPINOSA, J. PELLMAN, C. R. PERNET, F. B. PIZZINI, A. S. TRBALIC, P. J. TOUSSAINT, M. V. D. CASTELLO, F. J. WANG, C. WANG a H. ZHU. The Open Brain Consent: Informing research participants and obtaining consent to share brain imaging data. Human Brain mapping. Hoboken: Wiley, 2021, roč. 42, č. 7, s. 1945-1951. ISSN 1065-9471. Dostupné z: https://dx.doi.org/10.1002/hbm.25351.

Základní údaje

Originální název

The Open Brain Consent: Informing research participants and obtaining consent to share brain imaging data

Autoři

BANNIER, E., G. BARKER, V. BORGHESANI, N. BROECKX, P. CLEMENT, K. E. EMBLEM, S. GHOSH, E. GLEREAN, K. J. GORGOLEWSKI, M. HAVU, Y. O. HALCHENKO (garant), P. HERHOLZ, A. HESPEL, S. HEUNIS, Y. HU, C. P. HU, D. HUIJSER, M. D. VAYA, Radim JANČÁLEK (203 Česká republika, domácí), V. K. KATSAROS, M. L. KIESELER, C. MAUMET, C. A. MOREAU, H. J. MUTSAERTS, R. OOSTENVELD, E. OZTURK-ISIK, N. P. L. ESPINOSA, J. PELLMAN, C. R. PERNET, F. B. PIZZINI, A. S. TRBALIC, P. J. TOUSSAINT, M. V. D. CASTELLO, F. J. WANG, C. WANG a H. ZHU

Vydání

Human Brain mapping, Hoboken, Wiley, 2021, 1065-9471

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Další údaje

Jazyk

angličtina

Typ výsledku

Článek v odborném periodiku

Obor

30103 Neurosciences

Stát vydavatele

Spojené státy

Utajení

není předmětem státního či obchodního tajemství

Odkazy

URL

Impakt faktor

Impact factor: 5.399

Kód RIV

RIV/00216224:14110/21:00122118

Organizační jednotka

Lékařská fakulta

DOI

http://dx.doi.org/10.1002/hbm.25351

UT WoS

000613327300001

Klíčová slova anglicky

brain imaging; general data protection regulation; informed consent

Štítky

14110131, rivok

Příznaky

Mezinárodní význam, Recenzováno

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Anotace

V originále

Having the means to share research data openly is essential to modern science. For human research, a key aspect in this endeavor is obtaining consent from participants, not just to take part in a study, which is a basic ethical principle, but also to share their data with the scientific community. To ensure that the participants' privacy is respected, national and/or supranational regulations and laws are in place. It is, however, not always clear to researchers what the implications of those are, nor how to comply with them. The Open Brain Consent (https://open-brain-consent.readthedocs.io) is an international initiative that aims to provide researchers in the brain imaging community with information about data sharing options and tools. We present here a short history of this project and its latest developments, and share pointers to consent forms, including a template consent form that is compliant with the EU general data protection regulation. We also share pointers to an associated data user agreement that is not only useful in the EU context, but also for any researchers dealing with personal (clinical) data elsewhere.