First experience of a hemophilia monitoring platform: florio
HAEMO

J 2022

First experience of a hemophilia monitoring platform: florio HAEMO

ZAPOTOCKA, Ester, Angelika BATOROVA, Ernest BILIC, Ana BOBAN, Carmen Escuriola ETTINGSHAUSEN et. al.

Základní údaje

Originální název

First experience of a hemophilia monitoring platform: florio HAEMO

Autoři

ZAPOTOCKA, Ester (203 Česká republika, garant), Angelika BATOROVA, Ernest BILIC, Ana BOBAN, Carmen Escuriola ETTINGSHAUSEN, Barbara Faganel KOTNIK, Radomira HRDLICKOVA, Pawel LAGUNA, Jan MÁCHAL (203 Česká republika, domácí), Laszlo NEMES, Irena Preloznik ZUPAN, Gediminas PURAS a Marianna ZOMBORI

Vydání

RESEARCH AND PRACTICE IN THROMBOSIS AND HAEMOSTASIS, HOBOKEN, WILEY, 2022, 2475-0379

Další údaje

Jazyk

angličtina

Typ výsledku

Článek v odborném periodiku

Obor

30205 Hematology

Stát vydavatele

Spojené státy

Utajení

není předmětem státního či obchodního tajemství

Odkazy

URL

Impakt faktor

Impact factor: 4.600

Kód RIV

RIV/00216224:14110/22:00128315

Organizační jednotka

Lékařská fakulta

DOI

http://dx.doi.org/10.1002/rth2.12685

UT WoS

000783276100005

Klíčová slova anglicky

hemophilia; patient preference; pharmacokinetics; telemedicine

Štítky

14110317, rivok

Příznaky

Mezinárodní význam, Recenzováno

Změněno: 22. 2. 2024 07:28, Mgr. Tereza Miškechová

Anotace

V originále

Background: florio HAEMO is a new hemophilia treatment monitoring application consisting of a patient smartphone application (app) and a web-based dashboard for healthcare professionals, providing several novel features, including activity tracking, wearable connectivity, kids and caregiver mode, and real-time pharmacokinetic factor level estimation. Objectives: To assess intuitiveness, ease-of-use, and patient preference of florio HAEMO in Central Europe using a cross-sectional survey. Methods: This survey was conducted in six Central European countries between 9 December 2020 and 24 May 2021, The online questionnaire included 17 questions about overall satisfaction, ease-of-use, intuitiveness, and patient preference. Adults or children with hemophilia on regular prophylaxis and using the florio HAEM app for a minimum of 1 week were invited to complete the online questionnaire by their treating physician. Results: Sixty-six participants took part in the survey. The median duration for all respondents using the florio HAEMO app was 3 to 4 weeks. Overall, 89.4% of users reported being very satisfied or rather satisfied after using florio HAEMO. Of the 23 respondents who had switched from another hemophilia app, 87.0% indicated that they strongly preferred or preferred using florio HAEMO. Most florio HAEMO users reported that the app was very easy or rather easy to use (97.0%) and intuitive (94.0%). florio HAEMO had a positive impact on daily living, with 78.8% of users reporting that the app was very important or rather important to them. Conclusions: This survey suggests that florio HAEMO is an easy-to-use and intuitive app to assist self-management of home prophylaxis.

Citovat

ZAPOTOCKA, Ester, Angelika BATOROVA, Ernest BILIC, Ana BOBAN, Carmen Escuriola ETTINGSHAUSEN, Barbara Faganel KOTNIK, Radomira HRDLICKOVA, Pawel LAGUNA, Jan MÁCHAL, Laszlo NEMES, Irena Preloznik ZUPAN, Gediminas PURAS a Marianna ZOMBORI. First experience of a hemophilia monitoring platform: florio HAEMO. RESEARCH AND PRACTICE IN THROMBOSIS AND HAEMOSTASIS. HOBOKEN: WILEY, 2022, roč. 6, č. 2, s. 1-9. ISSN 2475-0379. Dostupné z: https://dx.doi.org/10.1002/rth2.12685.

@article{2250031,
   author = {Zapotocka, Ester and Batorova, Angelika and Bilic, Ernest and Boban, Ana and Ettingshausen, Carmen Escuriola and Kotnik, Barbara Faganel and Hrdlickova, Radomira and Laguna, Pawel and Máchal, Jan and Nemes, Laszlo and Zupan, Irena Preloznik and Puras, Gediminas and Zombori, Marianna},
   article_location = {HOBOKEN},
   article_number = {2},
   doi = {http://dx.doi.org/10.1002/rth2.12685},
   keywords = {hemophilia; patient preference; pharmacokinetics; telemedicine},
   language = {eng},
   issn = {2475-0379},
   journal = {RESEARCH AND PRACTICE IN THROMBOSIS AND HAEMOSTASIS},
   title = {First experience of a hemophilia monitoring platform: florio HAEMO},
   url = {https://www.sciencedirect.com/science/article/pii/S2475037922011736?via%3Dihub},
   volume = {6},
   year = {2022}
}

TY  - JOUR
ID  - 2250031
AU  - Zapotocka, Ester - Batorova, Angelika - Bilic, Ernest - Boban, Ana - Ettingshausen, Carmen Escuriola - Kotnik, Barbara Faganel - Hrdlickova, Radomira - Laguna, Pawel - Máchal, Jan - Nemes, Laszlo - Zupan, Irena Preloznik - Puras, Gediminas - Zombori, Marianna
PY  - 2022
TI  - First experience of a hemophilia monitoring platform: florio HAEMO
JF  - RESEARCH AND PRACTICE IN THROMBOSIS AND HAEMOSTASIS
VL  - 6
IS  - 2
SP  - 1-9
EP  - 1-9
PB  - WILEY
SN  - 24750379
KW  - hemophilia
KW  - patient preference
KW  - pharmacokinetics
KW  - telemedicine
UR  - https://www.sciencedirect.com/science/article/pii/S2475037922011736?via%3Dihub
N2  - Background: florio HAEMO is a new hemophilia treatment monitoring application consisting of a patient smartphone application (app) and a web-based dashboard for healthcare professionals, providing several novel features, including activity tracking, wearable connectivity, kids and caregiver mode, and real-time pharmacokinetic factor level estimation. Objectives: To assess intuitiveness, ease-of-use, and patient preference of florio HAEMO in Central Europe using a cross-sectional survey. Methods: This survey was conducted in six Central European countries between 9 December 2020 and 24 May 2021, The online questionnaire included 17 questions about overall satisfaction, ease-of-use, intuitiveness, and patient preference. Adults or children with hemophilia on regular prophylaxis and using the florio HAEM app for a minimum of 1 week were invited to complete the online questionnaire by their treating physician. Results: Sixty-six participants took part in the survey. The median duration for all respondents using the florio HAEMO app was 3 to 4 weeks. Overall, 89.4% of users reported being very satisfied or rather satisfied after using florio HAEMO. Of the 23 respondents who had switched from another hemophilia app, 87.0% indicated that they strongly preferred or preferred using florio HAEMO. Most florio HAEMO users reported that the app was very easy or rather easy to use (97.0%) and intuitive (94.0%). florio HAEMO had a positive impact on daily living, with 78.8% of users reporting that the app was very important or rather important to them. Conclusions: This survey suggests that florio HAEMO is an easy-to-use and intuitive app to assist self-management of home prophylaxis.
ER  -

ZAPOTOCKA, Ester, Angelika BATOROVA, Ernest BILIC, Ana BOBAN, Carmen Escuriola ETTINGSHAUSEN, Barbara Faganel KOTNIK, Radomira HRDLICKOVA, Pawel LAGUNA, Jan MÁCHAL, Laszlo NEMES, Irena Preloznik ZUPAN, Gediminas PURAS a Marianna ZOMBORI. First experience of a hemophilia monitoring platform: florio HAEMO. \textit{RESEARCH AND PRACTICE IN THROMBOSIS AND HAEMOSTASIS}. HOBOKEN: WILEY, 2022, roč.~6, č.~2, s.~1-9. ISSN~2475-0379. Dostupné z: https://dx.doi.org/10.1002/rth2.12685.

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