Experiences of mothers of children with profound intellectual
and multiple disabilities in the Czech Republic

J 2023

Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic

SEDLACKOVA, Dagmar, Jiri KANTOR, Ivona DOMISCHOVA a Lucia KANTOROVÁ

Základní údaje

Originální název

Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic

Autoři

SEDLACKOVA, Dagmar (203 Česká republika, garant), Jiri KANTOR (203 Česká republika), Ivona DOMISCHOVA (203 Česká republika) a Lucia KANTOROVÁ (703 Slovensko, domácí)

Vydání

BRITISH JOURNAL OF LEARNING DISABILITIES, Hoboken, WILEY, 2023, 1354-4187

Další údaje

Jazyk

angličtina

Typ výsledku

Článek v odborném periodiku

Obor

30230 Other clinical medicine subjects

Stát vydavatele

Spojené státy

Utajení

není předmětem státního či obchodního tajemství

Odkazy

URL

Impakt faktor

Impact factor: 1.500 v roce 2022

Kód RIV

RIV/00216224:14110/23:00130252

Organizační jednotka

Lékařská fakulta

DOI

http://dx.doi.org/10.1111/bld.12443

UT WoS

000751880500001

Klíčová slova anglicky

challenges; lived experiences; mothers; multiple disability; profound intellectual and multiple disability; services

Štítky

14119612, 14119613, rivok

Příznaky

Mezinárodní význam, Recenzováno

Změněno: 26. 1. 2024 10:52, Mgr. Tereza Miškechová

Anotace

V originále

Background The objective of this study is to explore experiences of Czech mothers caring for children with profound intellectual and multiple disabilities. Methods Semistructured interviews combined with biographical narration of mothers of children with profound intellectual and multiple disabilities and a short questionnaire for demographic data were used for data collection. Data analyses were carried out according to Van Manen's approach, including defining the main themes and description of the lived experiences of mothers. Findings The dominant themes that emerged from the interviews were (1) losses and limits, (2) increased demands and exhaustion, (3) worries, (4) challenges connected to help and support, (5) transformation, (6) pleasures with contentment of the child and a small development and (7) functional support. Conclusions The findings demonstrate that mothers of children with profound intellectual and multiple disabilities are at risk of facing many kinds of life difficulties, but the children have also positive impact on the mothers' lives. Relevant professionals and policy makers should be aware of the needs and challenges experienced by this vulnerable population.

Citovat

SEDLACKOVA, Dagmar, Jiri KANTOR, Ivona DOMISCHOVA a Lucia KANTOROVÁ. Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic. BRITISH JOURNAL OF LEARNING DISABILITIES. Hoboken: WILEY, 2023, roč. 51, č. 1, s. 3-12. ISSN 1354-4187. Dostupné z: https://dx.doi.org/10.1111/bld.12443.

@article{2250983,
   author = {Sedlackova, Dagmar and Kantor, Jiri and Domischova, Ivona and Kantorová, Lucia},
   article_location = {Hoboken},
   article_number = {1},
   doi = {http://dx.doi.org/10.1111/bld.12443},
   keywords = {challenges; lived experiences; mothers; multiple disability; profound intellectual and multiple disability; services},
   language = {eng},
   issn = {1354-4187},
   journal = {BRITISH JOURNAL OF LEARNING DISABILITIES},
   title = {Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic},
   url = {https://onlinelibrary.wiley.com/doi/10.1111/bld.12443},
   volume = {51},
   year = {2023}
}

TY  - JOUR
ID  - 2250983
AU  - Sedlackova, Dagmar - Kantor, Jiri - Domischova, Ivona - Kantorová, Lucia
PY  - 2023
TI  - Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic
JF  - BRITISH JOURNAL OF LEARNING DISABILITIES
VL  - 51
IS  - 1
SP  - 3-12
EP  - 3-12
PB  - WILEY
SN  - 13544187
KW  - challenges
KW  - lived experiences
KW  - mothers
KW  - multiple disability
KW  - profound intellectual and multiple disability
KW  - services
UR  - https://onlinelibrary.wiley.com/doi/10.1111/bld.12443
N2  - Background The objective of this study is to explore experiences of Czech mothers caring for children with profound intellectual and multiple disabilities. Methods Semistructured interviews combined with biographical narration of mothers of children with profound intellectual and multiple disabilities and a short questionnaire for demographic data were used for data collection. Data analyses were carried out according to Van Manen's approach, including defining the main themes and description of the lived experiences of mothers. Findings The dominant themes that emerged from the interviews were (1) losses and limits, (2) increased demands and exhaustion, (3) worries, (4) challenges connected to help and support, (5) transformation, (6) pleasures with contentment of the child and a small development and (7) functional support. Conclusions The findings demonstrate that mothers of children with profound intellectual and multiple disabilities are at risk of facing many kinds of life difficulties, but the children have also positive impact on the mothers' lives. Relevant professionals and policy makers should be aware of the needs and challenges experienced by this vulnerable population.
ER  -

SEDLACKOVA, Dagmar, Jiri KANTOR, Ivona DOMISCHOVA a Lucia KANTOROVÁ. Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic. \textit{BRITISH JOURNAL OF LEARNING DISABILITIES}. Hoboken: WILEY, 2023, roč.~51, č.~1, s.~3-12. ISSN~1354-4187. Dostupné z: https://dx.doi.org/10.1111/bld.12443.

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