Mapping the burden on caregivers of people with epilepsy during
the COVID-19 pandemic - pilot study

J 2024

Mapping the burden on caregivers of people with epilepsy during the COVID-19 pandemic - pilot study

BÚŘILOVÁ, Petra, Jiří BÚŘIL, Andrea POKORNÁ, Lucie HEJNÍKOVÁ, Jakub PADĚLEK et. al.

Základní údaje

Originální název

Mapping the burden on caregivers of people with epilepsy during the COVID-19 pandemic - pilot study

Autoři

BÚŘILOVÁ, Petra (203 Česká republika, domácí), Jiří BÚŘIL (203 Česká republika, domácí), Andrea POKORNÁ (203 Česká republika, domácí), Lucie HEJNÍKOVÁ (203 Česká republika, domácí), Jakub PADĚLEK (203 Česká republika, domácí), Barbora SKLENÁROVÁ (703 Slovensko, domácí), Marta ZEDNÍČKOVÁ (203 Česká republika, domácí) a Irena DOLEŽALOVÁ (203 Česká republika, domácí)

Vydání

Československá psychologie, Brno, Institute of Psychologym Czech Academy of Sciences, 2024, 0009-062X

Další údaje

Jazyk

angličtina

Typ výsledku

Článek v odborném periodiku

Obor

30304 Public and environmental health

Stát vydavatele

Česká republika

Utajení

není předmětem státního či obchodního tajemství

Odkazy

URL

Impakt faktor

Impact factor: 0.400 v roce 2022

Organizační jednotka

Lékařská fakulta

DOI

http://dx.doi.org/10.51561/cspsych.68.1.96

UT WoS

001180803800001

Klíčová slova anglicky

COVID-19; epilepsy; caregivers

Štítky

14110127, 14110611, rivok

Příznaky

Mezinárodní význam, Recenzováno

Změněno: 24. 6. 2024 12:42, Mgr. Tereza Miškechová

Anotace

V originále

Objectives. The combination of epilepsy, intellectual disability, and other psychiatric comorbidities disorders represents an extreme burden on their families and lay caregivers. The study aimed to investigate previously missing data on the burden and level of stress lay caregivers of patients with epilepsy and mental/intellectual disability and possible changes during the COVID-19 pandemic. Methods. The unicentric pilot study in lay caregivers of dispensed patients with epilepsy and concurrent mental/intellectual disability in an Epilepsy Center focused on lay caregivers burden. Caregiver burden was subjectively assessed for a period before and during the COVID-19 pandemic using the Caregiver Burden Scale. The Chi-Square Test was used for statistical evaluation at a significance level of 0.05. Results. Since the beginning of the COVID-19 pandemic, 526 patients were dispensed with the principal diagnosis of G40.* in the selected center; 46 lay caregivers were included in the study (9 males, and 37 females; the patient’s average age was 52.1 years). Due to the limitation of respite services, 25 (54.3%) caregivers reported worsening economic situations, and 31 (67.4%) reported increased stress levels. Increased caregiver burden during the COVID-19 pandemic was verified for walking (15 cases, p = 0.001), dressing, and bathing (12 cases, p = 0.010) activities. Conclusion. The obtained results confirmed the high dependency rate of patients and identified several factors (impaired mobility, falls, aggression, fear of COVID-19 disease) that increase the level of burden and stress in their caregivers due to the inability to use respite care and common tools for external assistance in care. Worsening socioeconomic situation and increased use of antidepressants by caregivers have been identified. The analysis also confirmed differences in the availability of respite care by place of residence at the national level.

Návaznosti

MUNI/A/1560/2023, interní kód MU

Název: Komprehensivní přístup k hodnocení kvality ošetřovatelské péče

Investor: Masarykova univerzita, Komprehensivní přístup k hodnocení kvality ošetřovatelské péče

Citovat

BÚŘILOVÁ, Petra, Jiří BÚŘIL, Andrea POKORNÁ, Lucie HEJNÍKOVÁ, Jakub PADĚLEK, Barbora SKLENÁROVÁ, Marta ZEDNÍČKOVÁ a Irena DOLEŽALOVÁ. Mapping the burden on caregivers of people with epilepsy during the COVID-19 pandemic - pilot study. Československá psychologie. Brno: Institute of Psychologym Czech Academy of Sciences, 2024, roč. 68, č. 1, s. 96-106. ISSN 0009-062X. Dostupné z: https://dx.doi.org/10.51561/cspsych.68.1.96.

@article{2383317,
   author = {Búřilová, Petra and Búřil, Jiří and Pokorná, Andrea and Hejníková, Lucie and Padělek, Jakub and Sklenárová, Barbora and Zedníčková, Marta and Doležalová, Irena},
   article_location = {Brno},
   article_number = {1},
   doi = {http://dx.doi.org/10.51561/cspsych.68.1.96},
   keywords = {COVID-19; epilepsy; caregivers},
   language = {eng},
   issn = {0009-062X},
   journal = {Československá psychologie},
   title = {Mapping the burden on caregivers of people with epilepsy during the COVID-19 pandemic - pilot study},
   url = {https://ceskoslovenskapsychologie.cz/index.php/csps/article/view/421},
   volume = {68},
   year = {2024}
}

TY  - JOUR
ID  - 2383317
AU  - Búřilová, Petra - Búřil, Jiří - Pokorná, Andrea - Hejníková, Lucie - Padělek, Jakub - Sklenárová, Barbora - Zedníčková, Marta - Doležalová, Irena
PY  - 2024
TI  - Mapping the burden on caregivers of people with epilepsy during the COVID-19 pandemic - pilot study
JF  - Československá psychologie
VL  - 68
IS  - 1
SP  - 96-106
EP  - 96-106
PB  - Institute of Psychologym Czech Academy of Sciences
SN  - 0009062X
KW  - COVID-19
KW  - epilepsy
KW  - caregivers
UR  - https://ceskoslovenskapsychologie.cz/index.php/csps/article/view/421
N2  - Objectives. The combination of epilepsy, intellectual disability, and other psychiatric comorbidities disorders represents an extreme burden on their families and lay caregivers. The study aimed to investigate previously missing data on the burden and level of stress lay caregivers of patients with epilepsy and mental/intellectual disability and possible changes during the COVID-19 pandemic. Methods. The unicentric pilot study in lay caregivers of dispensed patients with epilepsy and concurrent mental/intellectual disability in an Epilepsy Center focused on lay caregivers burden. Caregiver burden was subjectively assessed for a period before and during the COVID-19 pandemic using the Caregiver Burden Scale. The Chi-Square Test was used for statistical evaluation at a significance level of 0.05. Results. Since the beginning of the COVID-19 pandemic, 526 patients were dispensed with the principal diagnosis of G40.* in the selected center; 46 lay caregivers were included in the study (9 males, and 37 females; the patient’s average age was 52.1 years). Due to the limitation of respite services, 25 (54.3%) caregivers reported worsening economic situations, and 31 (67.4%) reported increased stress levels. Increased caregiver burden during the COVID-19 pandemic was verified for walking (15 cases, p = 0.001), dressing, and bathing (12 cases, p = 0.010) activities. Conclusion. The obtained results confirmed the high dependency rate of patients and identified several factors (impaired mobility, falls, aggression, fear of COVID-19 disease) that increase the level of burden and stress in their caregivers due to the inability to use respite care and common tools for external assistance in care. Worsening socioeconomic situation and increased use of antidepressants by caregivers have been identified. The analysis also confirmed differences in the availability of respite care by place of residence at the national level.
ER  -

BÚŘILOVÁ, Petra, Jiří BÚŘIL, Andrea POKORNÁ, Lucie HEJNÍKOVÁ, Jakub PADĚLEK, Barbora SKLENÁROVÁ, Marta ZEDNÍČKOVÁ a Irena DOLEŽALOVÁ. Mapping the burden on caregivers of people with epilepsy during the COVID-19 pandemic - pilot study. \textit{Československá psychologie}. Brno: Institute of Psychologym Czech Academy of Sciences, 2024, roč.~68, č.~1, s.~96-106. ISSN~0009-062X. Dostupné z: https://dx.doi.org/10.51561/cspsych.68.1.96.

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