florio® HAEMO: A Longitudinal Survey of Patient Preference,
Adherence and Wearable Functionality in Central Europe

J 2024

florio® HAEMO: A Longitudinal Survey of Patient Preference, Adherence and Wearable Functionality in Central Europe

ZAPOTOCKA, Ester; Angelika BATOROVA; Ernest BILIC; Ana BOBAN; Carmen Escuriola ETTINGSHAUSEN et al.

Základní údaje

Originální název

florio® HAEMO: A Longitudinal Survey of Patient Preference, Adherence and Wearable Functionality in Central Europe

Autoři

Vydání

ADVANCES IN THERAPY, NEW YORK, SPRINGER, 2024, 0741-238X

Další údaje

Jazyk

angličtina

Typ výsledku

Článek v odborném periodiku

Obor

30205 Hematology

Stát vydavatele

Spojené státy

Utajení

není předmětem státního či obchodního tajemství

Odkazy

URL

Impakt faktor

Impact factor: 4.000

Označené pro přenos do RIV

Ano

Kód RIV

RIV/00216224:14110/24:00136821

Organizační jednotka

Lékařská fakulta

Klíčová slova anglicky

Hemophilia; Wearable; Florio HAEMO; Adherence; Patient satisfaction

Štítky

14110321, rivok

Příznaky

Mezinárodní význam, Recenzováno

Změněno: 20. 1. 2026 10:53, Mgr. Tereza Miškechová

Anotace

V originále

Introduction: florio (R) HAEMO is a hemophilia treatment monitoring application (app) offering activity tracking and wearable device connectivity. Its use might support everyday activities for people with hemophilia. The aim of this study was to evaluate user satisfaction, long-term usage and the impact on data entry when pairing a wearable with a hemophilia monitoring app. Methods: This is a follow-up of a two-part user survey conducted in Central Europe. People with hemophilia and parents/caregivers of children with hemophilia using florio HAEMO and who completed part one were invited to complete a second online questionnaire at least 4 months later. Results: Fifty participants (83.3%) who completed part one of the survey continued to use the florio HAEMO app and completed part two. Of 14 participants who chose to use the app with a wearable, more than half (57.1%) were aged between 13 and 25 years. Overall, the results demonstrated that florio HAEMO is very easy or rather easy to use, especially for individuals pairing the app with a wearable. Most people using a wearable indicated that florio HAEMO was very or rather important in bringing certainty to daily activities (85.7%). Notably, 14 of 36 (38.9%) non-wearable users indicated that they would prefer to pair the app with a wearable in the future. Conclusions: Adherence to the florio HAEMO app is maintained over an extended period of use. Pairing the app with a wearable might enable easier access to app features, increase data entry motivation and provide more certainty about daily activities for people with hemophilia.

Citovat

ZAPOTOCKA, Ester; Angelika BATOROVA; Ernest BILIC; Ana BOBAN; Carmen Escuriola ETTINGSHAUSEN; Barbara FAGANEL KOTNIK; Radomira HRDLICKOVA; Pawel LAGUNA; Jan MÁCHAL; Laszlo NEMES; Irena PRELOZNIK ZUPAN; Gediminas PURAS a Marianna ZOMBORI. florio® HAEMO: A Longitudinal Survey of Patient Preference, Adherence and Wearable Functionality in Central Europe. ADVANCES IN THERAPY. NEW YORK: SPRINGER, 2024, roč. 41, č. 7, s. 2791-2807. ISSN 0741-238X. Dostupné z: https://doi.org/10.1007/s12325-024-02872-3.

@article{2423264,
   author = {Zapotocka, Ester and Batorova, Angelika and Bilic, Ernest and Boban, Ana and Ettingshausen, Carmen Escuriola and Faganel Kotnik, Barbara and Hrdlickova, Radomira and Laguna, Pawel and Máchal, Jan and Nemes, Laszlo and Preloznik Zupan, Irena and Puras, Gediminas and Zombori, Marianna},
   article_location = {NEW YORK},
   article_number = {7},
   doi = {https://doi.org/10.1007/s12325-024-02872-3},
   keywords = {Hemophilia; Wearable; Florio HAEMO; Adherence; Patient satisfaction},
   language = {eng},
   issn = {0741-238X},
   journal = {ADVANCES IN THERAPY},
   title = {florio® HAEMO: A Longitudinal Survey of Patient Preference, Adherence and Wearable Functionality in Central Europe},
   url = {https://link.springer.com/article/10.1007/s12325-024-02872-3},
   volume = {41},
   year = {2024}
}

TY  - JOUR
ID  - 2423264
AU  - Zapotocka, Ester - Batorova, Angelika - Bilic, Ernest - Boban, Ana - Ettingshausen, Carmen Escuriola - Faganel Kotnik, Barbara - Hrdlickova, Radomira - Laguna, Pawel - Máchal, Jan - Nemes, Laszlo - Preloznik Zupan, Irena - Puras, Gediminas - Zombori, Marianna
PY  - 2024
TI  - florio® HAEMO: A Longitudinal Survey of Patient Preference, Adherence and Wearable Functionality in Central Europe
JF  - ADVANCES IN THERAPY
VL  - 41
IS  - 7
SP  - 2791-2807
EP  - 2791-2807
PB  - SPRINGER
SN  - 0741238X
KW  - Hemophilia
KW  - Wearable
KW  - Florio HAEMO
KW  - Adherence
KW  - Patient satisfaction
UR  - https://link.springer.com/article/10.1007/s12325-024-02872-3
N2  - Introduction: florio (R) HAEMO is a hemophilia treatment monitoring application (app) offering activity tracking and wearable device connectivity. Its use might support everyday activities for people with hemophilia. The aim of this study was to evaluate user satisfaction, long-term usage and the impact on data entry when pairing a wearable with a hemophilia monitoring app. Methods: This is a follow-up of a two-part user survey conducted in Central Europe. People with hemophilia and parents/caregivers of children with hemophilia using florio HAEMO and who completed part one were invited to complete a second online questionnaire at least 4 months later. Results: Fifty participants (83.3%) who completed part one of the survey continued to use the florio HAEMO app and completed part two. Of 14 participants who chose to use the app with a wearable, more than half (57.1%) were aged between 13 and 25 years. Overall, the results demonstrated that florio HAEMO is very easy or rather easy to use, especially for individuals pairing the app with a wearable. Most people using a wearable indicated that florio HAEMO was very or rather important in bringing certainty to daily activities (85.7%). Notably, 14 of 36 (38.9%) non-wearable users indicated that they would prefer to pair the app with a wearable in the future. Conclusions: Adherence to the florio HAEMO app is maintained over an extended period of use. Pairing the app with a wearable might enable easier access to app features, increase data entry motivation and provide more certainty about daily activities for people with hemophilia.
ER  -

ZAPOTOCKA, Ester; Angelika BATOROVA; Ernest BILIC; Ana BOBAN; Carmen Escuriola ETTINGSHAUSEN; Barbara FAGANEL KOTNIK; Radomira HRDLICKOVA; Pawel LAGUNA; Jan MÁCHAL; Laszlo NEMES; Irena PRELOZNIK ZUPAN; Gediminas PURAS a Marianna ZOMBORI. florio® HAEMO: A Longitudinal Survey of Patient Preference, Adherence and Wearable Functionality in Central Europe. \textit{ADVANCES IN THERAPY}. NEW YORK: SPRINGER, 2024, roč.~41, č.~7, s.~2791-2807. ISSN~0741-238X. Dostupné z: https://doi.org/10.1007/s12325-024-02872-3.

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