2024
Customizing subcutaneous immunoglobulin administration in primary antibody deficiency: patient-centric care perspectives
KOBAYASHI, Roger H; Joanna MALTESE; Jiří LITZMAN; Huub KREUWEL; Theresa ZEKOLL et al.Základní údaje
Originální název
Customizing subcutaneous immunoglobulin administration in primary antibody deficiency: patient-centric care perspectives
Autoři
KOBAYASHI, Roger H; Joanna MALTESE; Jiří LITZMAN; Huub KREUWEL; Theresa ZEKOLL; Ai Lan KOBAYASHI a Sudhir GUPTA
Vydání
IMMUNOTHERAPY, London, FUTURE MEDICINE LTD, 2024, 1750-743X
Další údaje
Jazyk
angličtina
Typ výsledku
Článek v odborném periodiku
Obor
30102 Immunology
Stát vydavatele
Velká Británie a Severní Irsko
Utajení
není předmětem státního či obchodního tajemství
Odkazy
Impakt faktor
Impact factor: 2.300
Označené pro přenos do RIV
Ano
Kód RIV
RIV/00216224:14110/24:00138628
Organizační jednotka
Lékařská fakulta
UT WoS
EID Scopus
Klíčová slova anglicky
Immunoglobulin replacement therapy; patient-centric; primary antibody deficiency disease; shared decision-making; subcutaneous immunoglobulin; Cutaquig
Příznaky
Mezinárodní význam, Recenzováno
Změněno: 4. 4. 2025 13:28, Mgr. Tereza Miškechová
Anotace
V originále
This report delves into the challenges and potential solutions associated with flexible, customized subcutaneous immunoglobulin (SCIG) infusion regimens for patients with primary antibody deficiency disease (PAD). Advances in the treatment of inborn errors of immunity, particularly PAD, have converted fatal diseases into chronic, complex, long-term conditions that make adherence to treatment a critical issue. Conventional SCIG infusion regimens, while clinically effective, may not always align with the varied lifestyles, changing lifestyles and commitments of patients which can lead to missed doses, diminishing adherence thus posing potential health risks and compromising the overall effectiveness of treatment. For these reasons, it's important to develop flexible infusion regimens tailored to meet individual patient needs. Patient-centric strategies that promote shared decision-making and awareness of patient status not only promote medical efficacy but also enhance the overall patient experience. The authors of this report call attention for a need to shift toward more adaptable and individualized SCIG treatment plans for PAD patients whose needs may change over the long-term course of treatment.