J 2024

Customizing subcutaneous immunoglobulin administration in primary antibody deficiency: patient-centric care perspectives

KOBAYASHI, Roger H; Joanna MALTESE; Jiří LITZMAN; Huub KREUWEL; Theresa ZEKOLL et al.

Základní údaje

Originální název

Customizing subcutaneous immunoglobulin administration in primary antibody deficiency: patient-centric care perspectives

Autoři

KOBAYASHI, Roger H; Joanna MALTESE; Jiří LITZMAN; Huub KREUWEL; Theresa ZEKOLL; Ai Lan KOBAYASHI a Sudhir GUPTA

Vydání

IMMUNOTHERAPY, London, FUTURE MEDICINE LTD, 2024, 1750-743X

Další údaje

Jazyk

angličtina

Typ výsledku

Článek v odborném periodiku

Obor

30102 Immunology

Stát vydavatele

Velká Británie a Severní Irsko

Utajení

není předmětem státního či obchodního tajemství

Odkazy

Impakt faktor

Impact factor: 2.300

Označené pro přenos do RIV

Ano

Kód RIV

RIV/00216224:14110/24:00138628

Organizační jednotka

Lékařská fakulta

EID Scopus

Klíčová slova anglicky

Immunoglobulin replacement therapy; patient-centric; primary antibody deficiency disease; shared decision-making; subcutaneous immunoglobulin; Cutaquig

Štítky

Příznaky

Mezinárodní význam, Recenzováno
Změněno: 4. 4. 2025 13:28, Mgr. Tereza Miškechová

Anotace

V originále

This report delves into the challenges and potential solutions associated with flexible, customized subcutaneous immunoglobulin (SCIG) infusion regimens for patients with primary antibody deficiency disease (PAD). Advances in the treatment of inborn errors of immunity, particularly PAD, have converted fatal diseases into chronic, complex, long-term conditions that make adherence to treatment a critical issue. Conventional SCIG infusion regimens, while clinically effective, may not always align with the varied lifestyles, changing lifestyles and commitments of patients which can lead to missed doses, diminishing adherence thus posing potential health risks and compromising the overall effectiveness of treatment. For these reasons, it's important to develop flexible infusion regimens tailored to meet individual patient needs. Patient-centric strategies that promote shared decision-making and awareness of patient status not only promote medical efficacy but also enhance the overall patient experience. The authors of this report call attention for a need to shift toward more adaptable and individualized SCIG treatment plans for PAD patients whose needs may change over the long-term course of treatment.