Teenagers and Adolescents with Hemophilia-Need for a Specific
Approach

J 2024

Teenagers and Adolescents with Hemophilia-Need for a Specific Approach

KOENIGS, Christoph; Jayashree MOTWANI; Victor JIMENEZ-YUSTE a Jan BLATNÝ

Základní údaje

Originální název

Teenagers and Adolescents with Hemophilia-Need for a Specific Approach

Autoři

KOENIGS, Christoph; Jayashree MOTWANI; Victor JIMENEZ-YUSTE a Jan BLATNÝ

Vydání

Journal of Clinical Medicine, BASEL, MDPI, 2024, 2077-0383

Další údaje

Jazyk

angličtina

Typ výsledku

Článek v odborném periodiku

Obor

30205 Hematology

Stát vydavatele

Švýcarsko

Utajení

není předmětem státního či obchodního tajemství

Odkazy

URL

Impakt faktor

Impact factor: 2.900

Označené pro přenos do RIV

Ano

Kód RIV

RIV/00216224:14110/24:00138894

Organizační jednotka

Lékařská fakulta

Klíčová slova anglicky

adolescence; adolescent; hemophilia; management

Štítky

14110321, rivok

Příznaky

Mezinárodní význam, Recenzováno

Změněno: 20. 2. 2025 10:30, Mgr. Tereza Miškechová

Anotace

V originále

Adolescents with hemophilia are a patient population with special requirements, having to manage their condition alongside the typical challenges of adolescence. Given the psychosocial impact of hemophilia and a desire to fit in with non-hemophilic peers, they may perceive treatment as more of a burden than a benefit. This can result in low adherence and a high risk of hemophilia-related complications. Hemophilia management has changed over time. To best inform shared decision-making with adolescent patients and their families, healthcare professionals must consider all the currently available evidence, highlighting treatment benefits as appropriate. They should also appreciate the requirements of all adolescents affected by hemophilia, including individuals with non-severe disease and girls/women. We discuss specific issues relating to the management of adolescents with hemophilia: prevention and management of bleeds, treatment adherence, joint health and physical activity, and other health-related issues. A multidisciplinary approach is advocated, and the potential role of digital technology in helping to equip patients with self-management skills to fully engage with treatment is considered. Currently, available hemophilia management generally enables adolescents with hemophilia to lead normal lives, participating in physical activities while maintaining good joint health. However, more work is required to help address both actual and perceived limitations.

Citovat

KOENIGS, Christoph; Jayashree MOTWANI; Victor JIMENEZ-YUSTE a Jan BLATNÝ. Teenagers and Adolescents with Hemophilia-Need for a Specific Approach. Journal of Clinical Medicine. BASEL: MDPI, 2024, roč. 13, č. 17, s. 1-12. ISSN 2077-0383. Dostupné z: https://doi.org/10.3390/jcm13175121.

@article{2478498,
   author = {Koenigs, Christoph and Motwani, Jayashree and JimenezandYuste, Victor and Blatný, Jan},
   article_location = {BASEL},
   article_number = {17},
   doi = {https://doi.org/10.3390/jcm13175121},
   keywords = {adolescence; adolescent; hemophilia; management},
   language = {eng},
   issn = {2077-0383},
   journal = {Journal of Clinical Medicine},
   title = {Teenagers and Adolescents with Hemophilia-Need for a Specific Approach},
   url = {https://www.mdpi.com/2077-0383/13/17/5121},
   volume = {13},
   year = {2024}
}

TY  - JOUR
ID  - 2478498
AU  - Koenigs, Christoph - Motwani, Jayashree - Jimenez-Yuste, Victor - Blatný, Jan
PY  - 2024
TI  - Teenagers and Adolescents with Hemophilia-Need for a Specific Approach
JF  - Journal of Clinical Medicine
VL  - 13
IS  - 17
SP  - 1-12
EP  - 1-12
PB  - MDPI
SN  - 20770383
KW  - adolescence
KW  - adolescent
KW  - hemophilia
KW  - management
UR  - https://www.mdpi.com/2077-0383/13/17/5121
N2  - Adolescents with hemophilia are a patient population with special requirements, having to manage their condition alongside the typical challenges of adolescence. Given the psychosocial impact of hemophilia and a desire to fit in with non-hemophilic peers, they may perceive treatment as more of a burden than a benefit. This can result in low adherence and a high risk of hemophilia-related complications. Hemophilia management has changed over time. To best inform shared decision-making with adolescent patients and their families, healthcare professionals must consider all the currently available evidence, highlighting treatment benefits as appropriate. They should also appreciate the requirements of all adolescents affected by hemophilia, including individuals with non-severe disease and girls/women. We discuss specific issues relating to the management of adolescents with hemophilia: prevention and management of bleeds, treatment adherence, joint health and physical activity, and other health-related issues. A multidisciplinary approach is advocated, and the potential role of digital technology in helping to equip patients with self-management skills to fully engage with treatment is considered. Currently, available hemophilia management generally enables adolescents with hemophilia to lead normal lives, participating in physical activities while maintaining good joint health. However, more work is required to help address both actual and perceived limitations.
ER  -

KOENIGS, Christoph; Jayashree MOTWANI; Victor JIMENEZ-YUSTE a Jan BLATNÝ. Teenagers and Adolescents with Hemophilia-Need for a Specific Approach. \textit{Journal of Clinical Medicine}. BASEL: MDPI, 2024, roč.~13, č.~17, s.~1-12. ISSN~2077-0383. Dostupné z: https://doi.org/10.3390/jcm13175121.

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